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Hello - New Here

Amooliakin

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Amooliakin Apprentice
Amooliakin
Posted

Hi everyone. I am glad I found this forum and look forward to learning a lot from all of you. My daughter (8 years old) was diagnosed 3 weeks ago and we have been trying VERY hard to be gluten-free since then. We have of course made a few mistakes since this is all brand new to us. But I think we are doing great with fresh foods, gluten-free baking at home, shopping for gluten-free foods on line and at health food stores. It helps that we live in New York City where you can get just about anything (except maybe peace and quiet ;) )

I have so many small questions that come up but of course I can't think of any of them now.

I just wanted to say hi and I will be reading posts and joining in soon.

Amy

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jayhawkmom Enthusiast
jayhawkmom
Posted

*Peek A Boo*

Hi Amy! =)

Corkdarrr Enthusiast
Corkdarrr
Posted

Hi Amy!

Welcome to the forum. I'm sure you'll find this to be a great place for support and resource for knowledge...these people know everything! I don't know where I'd be without this forum...lost, probably! :D

Courtney

mouse Enthusiast
mouse
Posted

Welcome to the forum Amy. It sounds like you have the diet well in hand. Just remember when you do have questions, we never consider any too dumb to ask. We have all been where you are, whether with kids, ourselves, friends or spouses.

Amooliakin Apprentice
Amooliakin
Posted
  • Author

Thanks - I have learned a lot from another forum where I asked my first batch of 1,000 or so questions :blink:

And of course I have been talking to everyone I know and reading every book I can get my hands on. But this will be more helpful because I specifically have questions about my child.

As I mentioned, my daughter was just diagnosed a few weeks ago. Since then my son (12) and I have also gotten the blood test but don't have results yet. If it turns out we have it too it should be easier in some ways. But I don't think either of us will take it at all as well as my daughter.

In her case she was really feeling lousy for a long time. So going on a diet to make herself feel better makes sense. MY son and I feel fine now. So if we have Celiac it will be one of those cases of hidden without symptoms.

Wish us good luck....

tarnalberry Community Regular
tarnalberry
Posted

Welcome! This is a fab place, filled with helpful, friendly people! I'm glad to hear that you're getting the hang of the diet so quickly, and that it's helping. :)

AndreaB Contributor
AndreaB
Posted

Welcome Amy! :D

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Guest nini
Guest nini
Posted

Welcome! I've got a six year old daughter and both of us are gluten-free...

Guhlia Rising Star
Guhlia
Posted

Welcome, Amy!

kevsmom Contributor
kevsmom
Posted

Welcome, Amy -

This is a great place to come for information and support.

Cindy

happygirl Collaborator
happygirl
Posted

Amy,

We are happy to have you here! This is a great place for information, support, research, recipes, etc. No question is too silly, stupid, or gross---we have all been there and done that, so to speak. :)

Your daughter is so lucky to have a mom that is so helpful and is determined to keep her 100% gluten free.

Some personal favorites of mine:

Tinkyada brand (rice) pastas...in all varieties of "normal" pastas.

San-J gluten free soy sauce (be careful, they have gluten containing ones, so make sure you get the right ones!)

gluten free pretzels

many McCormick brand seasoning packets (like tacos, enchiladas, etc) happen to be gluten free. Make sure to read the label each time as they can change. But you can go onto www.mccormick.com and find the ingredients for all their products.

many mainstream products happen to be gluten free....coke/pepsi/most sodas, corn/tortilla chips (which I just used in place of crackers), ....

Let us know what we can do. Welcome to the board.

Laura

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  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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