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Amooliakin

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Amooliakin Apprentice
Amooliakin
Posted

Hi everyone. I am glad I found this forum and look forward to learning a lot from all of you. My daughter (8 years old) was diagnosed 3 weeks ago and we have been trying VERY hard to be gluten-free since then. We have of course made a few mistakes since this is all brand new to us. But I think we are doing great with fresh foods, gluten-free baking at home, shopping for gluten-free foods on line and at health food stores. It helps that we live in New York City where you can get just about anything (except maybe peace and quiet ;) )

I have so many small questions that come up but of course I can't think of any of them now.

I just wanted to say hi and I will be reading posts and joining in soon.

Amy

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jayhawkmom Enthusiast
jayhawkmom
Posted

*Peek A Boo*

Hi Amy! =)

Corkdarrr Enthusiast
Corkdarrr
Posted

Hi Amy!

Welcome to the forum. I'm sure you'll find this to be a great place for support and resource for knowledge...these people know everything! I don't know where I'd be without this forum...lost, probably! :D

Courtney

mouse Enthusiast
mouse
Posted

Welcome to the forum Amy. It sounds like you have the diet well in hand. Just remember when you do have questions, we never consider any too dumb to ask. We have all been where you are, whether with kids, ourselves, friends or spouses.

Amooliakin Apprentice
Amooliakin
Posted
  • Author

Thanks - I have learned a lot from another forum where I asked my first batch of 1,000 or so questions :blink:

And of course I have been talking to everyone I know and reading every book I can get my hands on. But this will be more helpful because I specifically have questions about my child.

As I mentioned, my daughter was just diagnosed a few weeks ago. Since then my son (12) and I have also gotten the blood test but don't have results yet. If it turns out we have it too it should be easier in some ways. But I don't think either of us will take it at all as well as my daughter.

In her case she was really feeling lousy for a long time. So going on a diet to make herself feel better makes sense. MY son and I feel fine now. So if we have Celiac it will be one of those cases of hidden without symptoms.

Wish us good luck....

tarnalberry Community Regular
tarnalberry
Posted

Welcome! This is a fab place, filled with helpful, friendly people! I'm glad to hear that you're getting the hang of the diet so quickly, and that it's helping. :)

AndreaB Contributor
AndreaB
Posted

Welcome Amy! :D

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Guest nini
Guest nini
Posted

Welcome! I've got a six year old daughter and both of us are gluten-free...

Guhlia Rising Star
Guhlia
Posted

Welcome, Amy!

kevsmom Contributor
kevsmom
Posted

Welcome, Amy -

This is a great place to come for information and support.

Cindy

happygirl Collaborator
happygirl
Posted

Amy,

We are happy to have you here! This is a great place for information, support, research, recipes, etc. No question is too silly, stupid, or gross---we have all been there and done that, so to speak. :)

Your daughter is so lucky to have a mom that is so helpful and is determined to keep her 100% gluten free.

Some personal favorites of mine:

Tinkyada brand (rice) pastas...in all varieties of "normal" pastas.

San-J gluten free soy sauce (be careful, they have gluten containing ones, so make sure you get the right ones!)

gluten free pretzels

many McCormick brand seasoning packets (like tacos, enchiladas, etc) happen to be gluten free. Make sure to read the label each time as they can change. But you can go onto www.mccormick.com and find the ingredients for all their products.

many mainstream products happen to be gluten free....coke/pepsi/most sodas, corn/tortilla chips (which I just used in place of crackers), ....

Let us know what we can do. Welcome to the board.

Laura

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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