Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back From Endoscopy-colonoscopy


breann6

Recommended Posts

breann6 Contributor

they took one sample of the small intestine and three in the colon. I am irritated because we discussed taking more for accuracy. ARGH! :angry: i am p/o'd because i went through all that last night and today for what feels like a shot in the dark. Meanwhile- my supposedly negative blood tests from last week were actually "weak" positives. I had been off gluten for nearly a week when doing the repeat at the GI's. they were lower than the two weeks previously which furthers me to believe it IS celiac. -remove gluten; numbers go down- makes sense to me. I am so annoyed that my GI doesn't want to validate a "weak" postive but yet keep looking at other options -per his words- which i interpret as keep funneling the money i don't have. :angry:

i've had it with him.

I am doing Enterolab, hopefully this week. Any one here with BCBS (im in GA) Do they/Will they reimburse for Enterolab testing?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I don't know about the insurance. That stinks about him only taking one biopsy! With a weak positive, you could just try the diet and see how it goes. Dietary response is a valid diagnostic tool.

As you can see, I used Enterolab, but my doc only tested IgA and I was gluten-free ... I wanted more validation since I didn't have positive blood work.

oceangirl Collaborator
I don't know about the insurance. That stinks about him only taking one biopsy! With a weak positive, you could just try the diet and see how it goes. Dietary response is a valid diagnostic tool.

As you can see, I used Enterolab, but my doc only tested IgA and I was gluten-free ... I wanted more validation since I didn't have positive blood work.

Hi!

I, too, had a "weak" positive after 2 and 1 half MONTHS gluten-free. (tTg= 28, normal is 0 to 19) Endoscopy inconclusive so Gastro dismissed me and I was on my way. Eeeekkkk!!! Went through Enterolab and was positive for gluten-reactivity (after 4 months supposedly gluten-free-missed some) and 2 genes for gluten intolerance. Positive dietary response. I'm sorry you have had this frustrating experience and I do not know about your insurance. Anthem Blue Cross covered Enterolab on my Maine group policy. (through High school) Maybe you could call and ask? I am going to see my regular doc re: other possiblities that may cause elevated tTg, but I KNOW I can't have gluten! Good luck to you.

lisa

dionnek Enthusiast

I have BCBS PPO in GA and when I called they said they would cover the enterolab testing, however, after I got the :angry: test and sent in the claim (with the Enterolab codes), they denied it all. I didn't push it b/c I only did the genetic tests (for my daughter - I already had positive biopsy and blood tests on myself). So, even if they tell you it will be covered, I think you'll have to do a lot of pushing to actually get paid.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    2. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    3. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    5. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,237
    • Most Online (within 30 mins)
      7,748

    Nancy MacManus
    Newest Member
    Nancy MacManus
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
    • trents
      Welcome to celiac.com, @Teaganwhowantsanexpltion! Joint pain is a well-established symptom of celiac disease. But joint pain may also be caused by other medical problems such as rheumatoid arthritis, chronic fatigue syndrome, etc. Make sure you share these concerns with your physician so that he or she can initiate testing or make referrals to specialists. As someone with celiac disease it is very important that you be consistent with the gluten free diet.
    • Scott Adams
      Let us know how things go.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.