Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back From Endoscopy-colonoscopy


breann6

Recommended Posts

breann6 Contributor

they took one sample of the small intestine and three in the colon. I am irritated because we discussed taking more for accuracy. ARGH! :angry: i am p/o'd because i went through all that last night and today for what feels like a shot in the dark. Meanwhile- my supposedly negative blood tests from last week were actually "weak" positives. I had been off gluten for nearly a week when doing the repeat at the GI's. they were lower than the two weeks previously which furthers me to believe it IS celiac. -remove gluten; numbers go down- makes sense to me. I am so annoyed that my GI doesn't want to validate a "weak" postive but yet keep looking at other options -per his words- which i interpret as keep funneling the money i don't have. :angry:

i've had it with him.

I am doing Enterolab, hopefully this week. Any one here with BCBS (im in GA) Do they/Will they reimburse for Enterolab testing?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I don't know about the insurance. That stinks about him only taking one biopsy! With a weak positive, you could just try the diet and see how it goes. Dietary response is a valid diagnostic tool.

As you can see, I used Enterolab, but my doc only tested IgA and I was gluten-free ... I wanted more validation since I didn't have positive blood work.

oceangirl Collaborator
I don't know about the insurance. That stinks about him only taking one biopsy! With a weak positive, you could just try the diet and see how it goes. Dietary response is a valid diagnostic tool.

As you can see, I used Enterolab, but my doc only tested IgA and I was gluten-free ... I wanted more validation since I didn't have positive blood work.

Hi!

I, too, had a "weak" positive after 2 and 1 half MONTHS gluten-free. (tTg= 28, normal is 0 to 19) Endoscopy inconclusive so Gastro dismissed me and I was on my way. Eeeekkkk!!! Went through Enterolab and was positive for gluten-reactivity (after 4 months supposedly gluten-free-missed some) and 2 genes for gluten intolerance. Positive dietary response. I'm sorry you have had this frustrating experience and I do not know about your insurance. Anthem Blue Cross covered Enterolab on my Maine group policy. (through High school) Maybe you could call and ask? I am going to see my regular doc re: other possiblities that may cause elevated tTg, but I KNOW I can't have gluten! Good luck to you.

lisa

dionnek Enthusiast

I have BCBS PPO in GA and when I called they said they would cover the enterolab testing, however, after I got the :angry: test and sent in the claim (with the Enterolab codes), they denied it all. I didn't push it b/c I only did the genetic tests (for my daughter - I already had positive biopsy and blood tests on myself). So, even if they tell you it will be covered, I think you'll have to do a lot of pushing to actually get paid.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,487
    • Most Online (within 30 mins)
      7,748

    Karen Murphy
    Newest Member
    Karen Murphy
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.