Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back From Endoscopy-colonoscopy


breann6

Recommended Posts

breann6 Contributor

they took one sample of the small intestine and three in the colon. I am irritated because we discussed taking more for accuracy. ARGH! :angry: i am p/o'd because i went through all that last night and today for what feels like a shot in the dark. Meanwhile- my supposedly negative blood tests from last week were actually "weak" positives. I had been off gluten for nearly a week when doing the repeat at the GI's. they were lower than the two weeks previously which furthers me to believe it IS celiac. -remove gluten; numbers go down- makes sense to me. I am so annoyed that my GI doesn't want to validate a "weak" postive but yet keep looking at other options -per his words- which i interpret as keep funneling the money i don't have. :angry:

i've had it with him.

I am doing Enterolab, hopefully this week. Any one here with BCBS (im in GA) Do they/Will they reimburse for Enterolab testing?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

I don't know about the insurance. That stinks about him only taking one biopsy! With a weak positive, you could just try the diet and see how it goes. Dietary response is a valid diagnostic tool.

As you can see, I used Enterolab, but my doc only tested IgA and I was gluten-free ... I wanted more validation since I didn't have positive blood work.

oceangirl Collaborator
I don't know about the insurance. That stinks about him only taking one biopsy! With a weak positive, you could just try the diet and see how it goes. Dietary response is a valid diagnostic tool.

As you can see, I used Enterolab, but my doc only tested IgA and I was gluten-free ... I wanted more validation since I didn't have positive blood work.

Hi!

I, too, had a "weak" positive after 2 and 1 half MONTHS gluten-free. (tTg= 28, normal is 0 to 19) Endoscopy inconclusive so Gastro dismissed me and I was on my way. Eeeekkkk!!! Went through Enterolab and was positive for gluten-reactivity (after 4 months supposedly gluten-free-missed some) and 2 genes for gluten intolerance. Positive dietary response. I'm sorry you have had this frustrating experience and I do not know about your insurance. Anthem Blue Cross covered Enterolab on my Maine group policy. (through High school) Maybe you could call and ask? I am going to see my regular doc re: other possiblities that may cause elevated tTg, but I KNOW I can't have gluten! Good luck to you.

lisa

dionnek Enthusiast

I have BCBS PPO in GA and when I called they said they would cover the enterolab testing, however, after I got the :angry: test and sent in the claim (with the Enterolab codes), they denied it all. I didn't push it b/c I only did the genetic tests (for my daughter - I already had positive biopsy and blood tests on myself). So, even if they tell you it will be covered, I think you'll have to do a lot of pushing to actually get paid.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    4. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,428
    • Most Online (within 30 mins)
      7,748

    thilbert
    Newest Member
    thilbert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.