Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Thursday

jo14

Recommended Posts

jo14 Newbie
jo14
Posted

Hi

Im new here, and my 4 year old son has to have a biopsy on Thursday, (im from the UK so I dont know if its done different in the US) but he has to have a general anasthetic, he has had a lot of blood tests and they showed very low imunoglobulin A and he is very anemic. he has had problems since being a few months old, but no one ever took us seriouly, he has a lot of tummy pain, loose stools and when he was younger vomiting (although he does not vomit much now) he is very small in the 5th% but was 9lbs 5oz when he was born!! Plus lots of other symptoms such as mouth ulcers and burning tongue, itchy skin rashes on the backs of his legs and tirdeness

I know I have to have the test to confirm or rule this out, but I am dreading taking him for it, he will go home the same day, and as long as he does not catch a cold or cough before thursday we have to be at the childrens hospital for 8am. I know some of you here will have children that have had this done, I just feel so bad :( :(

JoanneXX

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nikki-uk Enthusiast
nikki-uk
Posted

Hi Joanne and welcome!!

I'm in the UK too and my son was diagnosed with celiac disease by biopsy a couple of weeks ago (my hubby is also a coeliac)

I really was very anxious about the whole process (especially as my son has a heart condition)

In fact,- I found the hospital to be excellent at allaying my fears. They were very professional and took great care of him.

In fact they are only under the anaesthetic for about 20 mins (the rest of the time is recovery)

My son came back bright and breezy and starving hungry, none the worse for the experience!! :D (I think it was harder on me than him!)

As a Mum I'm not going to tell you not to worry ('cos you'll do that anyway!) but it really wasn't as bad as I thought it would be. :)

Fingers crossed for you and your little guy - let us know how it goes.

(BTW, what hospital is he under?)

All the best :)

emja73 Newbie
emja73
Posted

My dd is having her biopsy tomorrow... I"m also a nervous wreck :( she's 3 and basically asymptomatic, other than constipation... ugh... can we just fast forward to friday?

nikki-uk Enthusiast
nikki-uk
Posted
My dd is having her biopsy tomorrow... I"m also a nervous wreck :( she's 3 and basically asymptomatic, other than constipation... ugh... can we just fast forward to friday?

...I know what you mean!!. I just wanted the whole thing to be over with!

I'm sure it'll be fine though

Good luck!! :)

jo14 Newbie
jo14
Posted
  • Author

Hi

we will be going to booth hall childrens hospital in Manchester, I am a nervous wreck and have been sat at my desk most of the afternoon (since I got the phone call) trying my hardest not to cry LOL LOL in front of everyone

nikki-uk Enthusiast
nikki-uk
Posted
Hi

we will be going to booth hall childrens hospital in Manchester, I am a nervous wreck and have been sat at my desk most of the afternoon (since I got the phone call) trying my hardest not to cry LOL LOL in front of everyone

Awww - sweetheart!! I have PM'd you (personal message,click on New Messages in top right hand corner)

jo14 Newbie
jo14
Posted
  • Author

Hi Nikki

It says Ihave no new messages at the minute, i will keep checking back incase it takes a few minutes to come through

thanks

JoanneX

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

    2. Anne G
      - Anne G posted a topic in Related Issues & Disorders
      0

      celiac disease and braces

      Hello, My 17 yr old daughter was diagnosed with celiac disease 2 yrs ago. She does not have gum disease and no history of cavities. Her dentist is recommending braces for her lower teeth but I read it may worsen gum recession or possibly increase cavity risk which I know are already issues for patients with celiac. Has anyone here had braces and...
    3. trents
      - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    4. HAUS
      - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free...
    5. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,434
    • Most Online (within 30 mins)
      7,748
    Malia Ana
    Newest Member
    Malia Ana
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Anne G
      celiac disease and braces

      By Anne G · Posted

      Hello, My 17 yr old daughter was diagnosed with celiac disease 2 yrs ago. She does not have gum disease and no history of cavities. Her dentist is recommending braces for her lower teeth but I read it may worsen gum recession or possibly increase cavity risk which I know are already issues for patients with celiac. Has anyone here had braces and did it cause any problems or issues with gum recession?  Her dentist seemed oblivious that celiac patients are at higher risk of gum disease /cavities. Her bottom teeth are crooked but are pretty hidden even when she smiles. Thank you!!
    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.