Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten For Bloodwork

Clearbelle

Recommended Posts

Clearbelle Newbie
Clearbelle
Posted

Hi All,

I am new here. I was just given a prescription for bloodwork to test for celiac disease by my doctor - only for the first time did I see on this board that you should be eating gluten for accurate results - how important is this? I have been gluten free for almost 1 month. I don't want to cause any undue symptoms etc either - but would like a confirmation of my condition for all types of reasons. I also have autoimmune thyroid disease and many of my symptoms don't make sense for GD - but they do for celiac disease -so I would like to know for sure so that I can ensure that I am taking care of myself all around. I don't plan on starting to eat gluten again regardless - but would just like to know. What do you all recommend. Is there a chance that i could still test positive even though I have been gluten free.

Also, how long does it usually take for symptoms to dissapate -while I have had a degree of relief since giving up gluten I do still have many symptoms - does this usually take a while?

Lasty, a rather bizarre question - but I have been having issues with an itchy nipple for over a year now - had a biopsy which showed some form of inflammation - dermitis? Could this be associated with celiac disease?

Thanks, C

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Willow5 Rookie
Willow5
Posted
Hi All,

I am new here. I was just given a prescription for bloodwork to test for celiac disease by my doctor - only for the first time did I see on this board that you should be eating gluten for accurate results - how important is this? I have been gluten free for almost 1 month. I don't want to cause any undue symptoms etc either - but would like a confirmation of my condition for all types of reasons. I also have autoimmune thyroid disease and many of my symptoms don't make sense for GD - but they do for celiac disease -so I would like to know for sure so that I can ensure that I am taking care of myself all around. I don't plan on starting to eat gluten again regardless - but would just like to know. What do you all recommend. Is there a chance that i could still test positive even though I have been gluten free.

Also, how long does it usually take for symptoms to dissapate -while I have had a degree of relief since giving up gluten I do still have many symptoms - does this usually take a while?

Lasty, a rather bizarre question - but I have been having issues with an itchy nipple for over a year now - had a biopsy which showed some form of inflammation - dermitis? Could this be associated with celiac disease?

Thanks, C

I am sure you will read all about how it is inportant to be eating Gluten for the blood work! If you haven't been real strict then you might be ok, I went back on for about a week after a low gluten diet for a couple of weeks, and tests showed inconclusive. (I think) Still there are antibodies which will hang around for months after gluten-free. Anyhow, in regards to your nipples, I have had horible nipple troubles over the years but it has been related to breastfeeding. As long as I am BF I have sore nipples and when I quit they clear up. I have wondered too if there was a connection!

tarnalberry Community Regular
tarnalberry
Posted

A month on a gluten-free diet is pretty likely to skew your results. You should be eating a gluten-free diet (of about 3 slices of bread a day) for about 3 months prior to testing to have reasonable confidence of not getting a false negative, though it's no guarnatee. Recovery of symptoms can take a number of months, once you get every last ounce of gluten out of your life.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. McKinleyWY
      - McKinleyWY replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Accuracy of testing concerns

      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those...
    2. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in ...
    3. Scott Adams
      - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also ...
    4. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Healthy Gluten Free Foods low sugar that you found?

      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those...
    5. Scott Adams
      - Scott Adams replied to lizzie42's topic in Traveling with Celiac Disease
      1

      Trip to Anaheim/Disney

      This article is a few of years old, but my still be helpful.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,245
    • Most Online (within 30 mins)
      7,748
    Christine Ranalli
    Newest Member
    Christine Ranalli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those who are just beginning the journey like me. Marilyn 
    • Scott Adams
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Scott Adams · Posted

      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      Low iron and vitamin d

      By Scott Adams · Posted

      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      Healthy Gluten Free Foods low sugar that you found?

      By Scott Adams · Posted

      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
    • Scott Adams
      Trip to Anaheim/Disney

      By Scott Adams · Posted

      This article is a few of years old, but my still be helpful.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.