Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have Trouble With Sugar?


Guest NitaB

Recommended Posts

Guest NitaB

Hi, it has been quite some time since I've needed to read more about Celiac, foods, etc. I have been gluten-free for 2 1/2 years. I went on a cruise in Oct. and have had some digestive trouble ever since. I am pretty sure I am gluten-free again now, but I still keep having bloating, cramping, gas, and either constipation or slight diarrhea. I even began to wonder if it was sugar. I know it isn't good for me, but do like to have candy or ice cream sometimes. I seldom make gluten-free desserts, but even the last two I made bothered me.

My S.O. is very sensitive to my changing moods, and can now tell when I've eaten something, as I get droopy or grumpy. He can sometimes tell, even before I do! He is a great cook, and very happy to make gluten-free meals for us both to eat. So, we are both stumped as to what is bothering me now.

Anyone have trouble with sugar? I got alarmed by a news report saying Cancer feeds on sugar! I don't want my old lesions to someday turn to Cancer. My oldest brother died of colon cancer, and my GI Dr. said he may well have had Celiac. No one else in my family wants to even be tested for Celiac. They all think they'll be fine, until they get sick and have to consider being tested.

Thanks for any help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

Hi Nita:

I always thought (and was misdiagnosed) I had hypoglycemia or at least 'reactive hypoglycemia' when I ate sugary foods. After I learned I have celiac, milk and soy allergies and abstained from those foods, I thought I would stop craving sweets and stop having panicky or irritable reactions after eating sugar containing foods. I hoped that eating a gluten free diet would prevent the blood sugar lows, when I didn't eat enough fats and protein with a sugar containing meal. However, my sugar sensitivity symptoms as well as bloating, cramping and gas continued, despite strictly abstaining from gluten, dairy and soy.

Then I saw a naturopath in my area who gave me the ELISA test which indicated I have egg and CANE SUGAR allergies, in addition to gluten, dairy and soy allergies. I also had Klebsiella bacteria and bacterial dysbiosis (very little good bacteria). After I abstained from cane sugar those panicky, rapid heart beat symptoms totally disappeared. I could still eat honey, beet sugar, aguave, fruit sweetner and even corn syrup, without my 'sugar' sensitivity reactions. I can also eat fruit between meals without 'balancing' that with fats and proteins. What I had believed was 'hypoglycemia' was REALLY a cane sugar allergy. After I eliminated cane sugar, I had no cravings for that. I can eat the other sweetners in moderate amounts and feel satisfied, but not experience any 'hypoglycemic' symptoms.

I suggest you get the ELISA allergy blood test panel for 100 different foods (including cane sugar and honey) to determine whether you have an IgG mediated cane sugar allergy. My naturopath explained that cane sugar is in the same grass family as wheat. So people who have long undiagnosed gluten intolerance (or celiac disease) can also develop antibodies which fit the cane sugar protein or a IgG antibody mediated cane sugar allergy.

BURDEE

super-sally888 Contributor

Hi Nita,

As this has just developed after a cruise is it possible you picked up a bug, a parasite, or something? That can throw your system out.

Sugar also tends to throw me out and worsen symptoms (and I crash energy wise) - unless I am having it and exercising at the same time (I am a try-athlete. :))

Sally

wolfie Enthusiast

It is possible that it is sugar. Do you have dairy or soy sensitivites? I know that lactose & soy both produce the same symtpoms in me as you describe. I would try keeping a food diary to see if you can figure out exactly what it is that is bothering you. It took me a while to figure out my soy intolerance. Soy is in so much b/c when it says "vegetable oil" more times than not, it is soy. Plus, most chocolate has soy lectihen in it and that bothers me too.

Good luck and I hope you figure it out soon.

Creative-Soul Newbie

I definitely have problems with (refined) sugar, so I stay away from it!!! I never used white sugar (or the usual sugar substitutes like Splenda) but loved brown cane sugar. For the past year or so I've used Stevia, but am going to slowly start experimenting with things like honey, maple syrup and the like again. My big issue is that everything tastes WAY too sweet to me now!

Guest NitaB

Thanks burdee, Sally, Kim, and Soul! One thing I do need to do is keep a food diary. I haven't tried that yet, so will be my first step. I guess the puzzling thing is, what I think bothers me one time, doesn't seem to another time. I understand that stuff I used to eat, may now bother me, due to even small amounts of gluten also bothering me. Beings I am now pretty gluten-free, things that may be related, now also bother me. The food diary may just help!

Kim, I have always drank lots of milk, and it never bothers me. So, not lactose intolerant. Not sure about soy.

Sally, really don't think I picked up a bug on the cruise. I don't feel like that particular serving staff was as helpful as most I've had the last 2 1/2 years. My cruise next month is on a line that will be more helpful, or has in the past, anyway.

burdee, how expensive is the ELISA test? I have ex-DH's retirement insurance, which doesn't cover tests or preventative medicine.

Thanks to all of you for your advice, it is much appreciated! :)

jknnej Collaborator

You may have picked up a bug. A friend of mine got the Norwalk virus on a cruise ship and she was sick for about a month.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,922
    • Most Online (within 30 mins)
      7,748

    Amber Gumm
    Newest Member
    Amber Gumm
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.