Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Caffeine A Problem? Cramping From Other Foods...


haphenomenon

Recommended Posts

haphenomenon Newbie

I have been Gluten Free for almost 4 years ( but it seems to be a cyclical healing process) I am still VERY sensitive to other foods especially caffeine. I stopped drinking caffeine 10years ago because of bladder issues but still recognize how great it can be sometimes. So whenever I convince myself that its ok to just have it this once or decide I"m healed, I get severe cramping in my lower left abdomen with gas and bloating. Mostly the gas starts with burping and then ends up the other end. The hardest though is the pain from cramping and the only solution I find is eating A LOT to speed things a long... also sticking my belly out so that the gas is pushed along!

I feel like I can feel exactly where my intestines are lesioned, as if there is one spot that is affected. I thought I read somewhere that the lower intestines were especially affected by celiac. Has anyone else experienced symptoms in a localized area of the abdomen?

Do other people have these symptoms from caffeine, sensitive to very acidic foods? I find I have problems with oranges sometimes, green tea, popcorn, almonds, peanuts, the list could go on. I always considered that the tea was just too caustic ( can you use that in this context?) but also that some foods may be very abrasive, such as popcorn. Nuts I know have an enzyme coating which naturally is supposed to prevent them from being digested so that they can get germinated after leaving the body.... I can eat nuts most of the time especially soaked or blanched but when the system gets worn down they're a problem!

I read about an apple cider vinegar home remedy and started to try it. It was great until I started to realize it was causing this cramping and its just too strong for my sensitive intestines.

What is the best way to cure the lining? Is it possible? Will there ever be a comfortable life that includes caffeine? Other than comfort level I would like to know how to have a healthy gut that is strong and protective.

Is there a Leaky Gut thread?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



corinne Apprentice

Caffeine is a stimulant and as such can also stimulate your intestinal muscle cells which can cause food to move through your system faster. So for now you might want to minimize your caffeine intake until you heal. I also react to acidic foods. I don't tolerate tomato juice, organge juice etc. Nuts, popcorn and other foods with significant amounts of insoluble fiber can be hard to digest (I can't eat these either) The best healer is time. For some people, it can take many years for the gut to return to normal. It may be too, that you have other intolerances.

Guest cassidy

I feel for you. Since going gluten-free I have realized there are other foods that I can't have either. Tomatoes, potatoes, pineapple, citrus, strawberries, chocolate, etc. I also can't have MSG or any foods with a bunch of chemicals in them. It is worse when I get run down, then I can't tolerate anything. If I'm doing well I can have a bite of pineapple or a strawberry, but not a whole serving of anything.

I use apple cider vinegar, but only for heartburn.

I would recommend, unfornately, staying away from those things that you can't have. Maybe, like me, you can have a little - like decaf coffee for the taste and the little caffeine it has in it.

Aloe is very good for healing things. I don't recommend the plain but they have cherry and mango flavored. When my system gets really bad I drink aloe and it helps. Also, probiotics may be helpful. I drink kefir (strong, liquid yogurt) everyday, but you can take probiotic pills. They just give you more good bacteria which helps break things down and helps your intestines work better. Digestive enzymes also help me. I definitely take them when I cheat on these foods and they help break things down as well.

num1habsfan Rising Star

since i've gone gluten-free i've been having issues with a lot of other foods, even ones i'm not allergic or intollerant to--my body just doesnt agree with them. caffeine honestly doesnt bother me at all, I drink it daily (i cant function thru my day without having some sort of coffee in my system) and i have no other affects that i wouldn't have normally. What bugs my body is anything with a lot of acid (like orange juices and stuff--and obviously tomatoes, but only becuase I am allergic to them :lol: ). Also veggies. I try to stick with just lettuce, cucumbers, peppers, radishes...i'm sure i'm forgetting some hehe. But all other veggies (even carrots) bother my system! Its so weird.

I guess it must be a common thing with Celiac to be bothered by other foods...maybe our body's are punishing us for eating gluten for many years, so now its saying "ha now you cant eat THESE" :lol:

~ lisa ~

marciab Enthusiast

I've found that I can digest tea if I water it down to about 90% water and 10% tea. But, the caffeine will keep me awake for hours. It's fun while I am awake, but not at 2 am. :blink:

I get severe pains in several areas, but usually only one area at a time. I get it on the left side like you, but also on the right near my appendix and in my chest sometimes.

I am still tracking to see if foods do this to me, but I know over eating, eating too fast, or drinking while eating are definite.

I use raw EVOO, grapeseed oil, and flax oil every day in my foods to coat my esophagus and make my foods go down easier. These are rich in omegas too and help with constipation. I have not seen any research on this, but I know that essential fats are good for you, so it can't hurt.

Marcia

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,043
    • Most Online (within 30 mins)
      7,748

    Churro
    Newest Member
    Churro
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.