Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms...


Shebah

Recommended Posts

Shebah Newbie

Hi,

I have tested negative for celiac disease (normal blood test) and since I have other allergies I know that the blood tests dont hold up. I have been allergic to dogs and cats for 20 years and not once has my allergy test come back positive.

I do have IBD, so some of these symptoms could be from that, but I am listing them anyhow.

So.. I am going to list my symptoms here:

Fatiuge

Depression (don't wanna go outside, dont want to go to birthday parties, family gatherings etc.)

Mood swings

Anger

Hungry all the time (worse in the afternoon/night)

Weight gain

Sugar cravings

Dry palms

Dry hair

Burning sensation in stomach

White tounge

Bad taste in mouth

Sore throat that comes and goes

Sinus issues (not infected, but alot of pressure and pain)

IBD symtoms:

Migrating joint pain

Diarreah

Abdominal pain

Burning sensation in my lower back

I would appriciate any replies.. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Hi Shebah, and welcome to this board. Your symptoms certainly could point to celiac disease. The blood tests are not that reliable and produce many false negatives. Why don't you just try the gluten-free diet and see if it helps? That's what I did, and many other here as well, with amazing results. Nobody can stop you from changing your diet, it's your body.

angst2amity Rookie

I have most of these same symptoms. Gluten-free seems to help but not completely. How do you know if your symptoms are from Systemic Candida or from Celiac Sprue?

What does a high ANA (anti-nuclear antibodies...means my cells eating my cells) mean for either? Mine is 1:640

Anyone know? Help!

CarlaB Enthusiast

You could have both. A white tongue would indicate candida, but usually there is a reason for having candida.

Have you given up dairy, too? It can also cause a reaction. Are you sure you're 100% gluten-free?

If your diet does not resolve your symptoms, I'd keep looking. Food sensitivities and candida could be a symptom of something else going on.

Jestgar Rising Star
What does a high ANA (anti-nuclear antibodies...means my cells eating my cells) mean for either? Mine is 1:640

I'm not entirely sure it means that. I think it means that when your cells die (as all cells do, eventually) they aren't cleaned up as quickly, so the DNA has time to stick around and have antibodies made against it.

I think a high ANA titer can indicate an autoimmune disease, but it's not causing it. Like a fever can indicate an infection, but it's not the cause.

angst2amity Rookie
I'm not entirely sure it means that. I think it means that when your cells die (as all cells do, eventually) they aren't cleaned up as quickly, so the DNA has time to stick around and have antibodies made against it.

I think a high ANA titer can indicate an autoimmune disease, but it's not causing it. Like a fever can indicate an infection, but it's not the cause.

You are correct the ANA's come to eat dead cells - and I have a lot of cell-death from recent surgery. However, if your ANA is high - it generally means they are eating live cells, hence the joint pain associated with RA or Lupus.

My ANA's are going crazy. Celiac Sprue, from what I understand is also an autoimmune disorder, means you aren't just tring to kill the gluten, you kill yourself because your immune system is confused.

I may be off base, only learning by researching. Not a doctor, but a mental health professional.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,742
    • Most Online (within 30 mins)
      7,748

    MistyMoon
    Newest Member
    MistyMoon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.