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Is This A Fluke Or Are We Really Seeing Results Already?

girlfromclare

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girlfromclare Apprentice
girlfromclare
Posted

Well technically its been two weeks but I dont think the first week can count as we made so many mistakes and unwittingly gave our son food with gluten - and I expect we will make lots more mistakes too... but since going gluten free (strictly) about five days ago, things have changed in our house and I dont know whether its a fluke or not! I really only started noticing the changes in his behaviour during the last two days more so... he's waking up happy... he's playing happily... everything isnt a problem... which is rare! He didnt have gastro issues but then he hasnt had dairy in his system for almost two years now and while he was having dairy, he had a lot of gastro issues. However, his mood swings have almost compleletly settled down! Is it possible to see results so quickly??? He tested negative for celiac and the doctor seemed pretty sure that meant he didnt have it.... but I am so sure that this is a positive and fast result... I know that if this is an indication of what life will be like in the future then I will be perfectly content to spend my days baking bread and rummaging through health food shops.. .and spending a goddamn fortune!!... I posted a few days ago about how I had spent hours crying recently... I had such a bout of the 'are we doing the right thing?' blues... and now I really believe that 'yes we are!!! I'll keep you all posted on his progress but if this is not a coincidence, then I am seriously impressed (and a lot more relaxed!)

Thanks for everything everyone... thanks for the advice...

Liz in Ireland.

x x

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kbtoyssni Contributor
kbtoyssni
Posted

You're definitely seeing results! Congrats! I also had positive results within a few days. I had a few setbacks and it was probably 6-9 months before I was 100% again, but the immediate results made it so much easier to continue with the diet. From your positive dietary response, I'd say your son definitely has celiac disease.

FeedIndy Contributor
FeedIndy
Posted

I noticed a difference in DD's disposition and energy levels within 2 days! I thought I was just seeing things until we weighed her at day 5 and found she had already gained 5 ounces after losing 2 ounces the month before. She's a completely different and very happy baby now! When I get sad about what she may be missing out on as she's older (like pizza night the other day!) I just remember when she was teeny and lethargic, look at her now and know we are doing the right thing!

celiacgirls Apprentice
celiacgirls
Posted

I saw results in myself and my daughter in a few days. We didn't have any stomach issues to begin with but our moods and her behaviour improved dramatically. Our house is a different place now than it was 6 months ago as far as our family life. Some days I feel sorry for my kids but mostly I am just glad we know what was causing their problems. After more than 6 months, it still seems hard to believe that the answer was so "simple". Like you, I am glad to spend time cooking and baking to keep it up.

vampella Contributor
vampella
Posted

I also saw these changes with in a few day's with my DD and about a week, we had NORMAl bowel movements and still are 1 1/2 months into. My dd also had a neg blood test, 2 actually but her doctor know's she's a celiac kid!!

Congrats, I am glad you are seeing improvment!!!

Guest nini
Guest nini
Posted

yep we saw results in my daughter that fast and she was having behavioral issues prior to going gluten-free... I'm telling ya, the tantrums were uncontrollable and frightening and would come on about an hour after eating and would last about an hour with her kicking, screaming, biting, thrashing around on the floor, not wanting to be held at all and on and on... it would pass just as quickly as it would come on and she would lay in a heap on the floor sweaty and sobbing and saying "sorry mommy, I couldn't help it"... I'm SO GLAD we found out that gluten was the problem. One of the first indications to me that she's been accidentally glutened is when her attitude takes a major downturn and then the tummy starts hurting and she begs for some pepto bismol...

Lymetoo Contributor
Lymetoo
Posted

I felt better in one week!

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Ursa Major Collaborator
Ursa Major
Posted

I noticed amazing changes within a day! It is definitely not a fluke, that is fantastic, you must be so happy!

Nic Collaborator
Nic
Posted

My father saw results that quickly too. Within the first week his D had stopped. My son's symptom was constipation so I took longer to see any change. I think that is a harder problem to turn around. We still have issues but my father swears he felt much better within that first week.

Nicole

taweavmo3 Enthusiast
taweavmo3
Posted

Yep, we saw results that fast too......it is truly one of the best feelings in the world, to see your child become happy again. You don't realize how much you lost until they start to become the children they should have been all along. I will never forget how thrilled we were those first few weeks!

Congratulations to you....and I hope things just continue to improve!

girlfromclare Apprentice
girlfromclare
Posted
  • Author

Thank you everyone. Wow... i definitely feel we are on the right track... I am so glad that you all so improvements so quickly too... so I know this isnt a fluke. Nini, our experience with the tantrums is exactly the same... exactly!!! And then afterwards the pain in the tummy... oh boy we've had it for so long now that they were a daily occurence for the past four years and that alone would drain every ounce of energy from you... I can truly empathise... and now they have stopped we are so relieved and happy. My husband is quite genuinely surprised to see the results.. i dont think he expected any... and we are both thrilled to have finally discovered the problem that has been holding our little boy back for so long. thanks everyone... i really mean it... you guys are all so wonderful

a million hugs x x liz

wolfie Enthusiast
wolfie
Posted

We also saw results quickly....within the first week or 2, for both me & my son. DS had behavioral issues and he is just genuinely a nicer person all around off of gluten. His grades have improved, too!

Keep up the good work!!!! :)

Confused in Iowa Rookie
Confused in Iowa
Posted
Well technically its been two weeks but I dont think the first week can count as we made so many mistakes and unwittingly gave our son food with gluten - and I expect we will make lots more mistakes too... but since going gluten free (strictly) about five days ago, things have changed in our house and I dont know whether its a fluke or not! I really only started noticing the changes in his behaviour during the last two days more so... he's waking up happy... he's playing happily... everything isnt a problem... which is rare! He didnt have gastro issues but then he hasnt had dairy in his system for almost two years now and while he was having dairy, he had a lot of gastro issues. However, his mood swings have almost compleletly settled down! Is it possible to see results so quickly??? He tested negative for celiac and the doctor seemed pretty sure that meant he didnt have it.... but I am so sure that this is a positive and fast result... I know that if this is an indication of what life will be like in the future then I will be perfectly content to spend my days baking bread and rummaging through health food shops.. .and spending a goddamn fortune!!... I posted a few days ago about how I had spent hours crying recently... I had such a bout of the 'are we doing the right thing?' blues... and now I really believe that 'yes we are!!! I'll keep you all posted on his progress but if this is not a coincidence, then I am seriously impressed (and a lot more relaxed!)

Thanks for everything everyone... thanks for the advice...

Liz in Ireland.

x x

I agree with you - i saw differences in my son as quickly as you did. Not only with his personality, but his school work...last year struggled with a D average and this year in 6th grade he made the honor roll! I was so proud. So I'm like you. As much of a pain it is to figure this diet out, I'm with you that it is so worth it to have a happy son.......i always just blamed his personality on him getting it from his father, but it's so nice now to have him be so angry all the time.

My son never has had any stomach troubles, so when he was diagnosed, I was sooo in the denial thing, and thought the Dr. was just crazy and this was the health fad of the now type thing...but seeing the results that we've gotten so far, it is just amazing.

Now if they'd just find some miracle cure for it, this would be a beautiful thing!

Juliet Newbie
Juliet
Posted

My son (who was two years old and awake for only 3 hours total every day before going gluten free and looked like one of the starving kids with the distended bellies) got his energy back in 9 days - and we were making mistakes that whole time (Rice Krispies, O's cereal made from oat flour, other things w/ malt). He didn't nap at all (he still normally takes naps now, but he was so happy to have energy), and he was practically stumbling at the end of the day trying to still move, but his muscles were so atrophied he could barely do it! The next day he was sore from the exercise but still had energy! It's tough sometimes dealing with it, but to see your extremely sick child turn into a normal, happy kid makes it all worthwhile!

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
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