Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Baffled


Marlene

Recommended Posts

Marlene Contributor

This has happened to me a few times and there seems to be a pattern but I can't figure out for the life of me what triggers it.

Sometimes I get pain across my abdomen, under my ribcage. The pain can be anything from feeling like someone is pulling an elastic tight inside my abdomen to a searing feeling. This is often followed by frequent bathroom visits (not necessarily D but not "normal" either). Then for the next few days, I have a burning sensation on my tongue. I am also extemely chilled. This all makes me think that something is inflamed -- probably my small intestine. I have been gluten free for almost 5 months now and am extremely diligent about it. If I have doubts about any food whatsoever, I don't eat it. I don't really think this is from gluten and it does get worse if I am under stress.

Any ideas or similar problems/solutions? Thanks!

Marlene


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

Pain under the ribcage can be caused by a number of different systems - from liver and/or gallbladder issues, large intestine spasms in the tranverse colon, or epigastric pain (stomach/low esophagus), and then pain can sometimes be "referred" - you feel pain in one spot but its originating from somewhere else.

Mention the symptoms to your doctor and have an exam if needed.

Things to do - Keep a diary of the pain - time of day it occurs, what you ate/drank in the previous 12 hours to onset of symptoms, amount of water you are drinking (might not be enough). How long symptoms last and symptoms that follow (the chills etc). Chills can be systemic repsonse to cold, inflammation fever or pain or a combination of any of those.

Sorry you're sick !

Sandy

nikki8 Explorer

Yes, I know what you are talking about. It feels like a tennis ball is lodged under your rib cage.

I was recently diagnosed with Sphincter of Oddi dysfunction. It is a horrible pain under the rib cage that travels to my back. I would then vomit sometimes. They figured out what was wrong by doing blood work and finding elevated liver and pancreatic enzymes-but the blood test had to be done the same day as the attack. I ended up having an ERCP to solve this problem and while they were doing the endoscopy, they noticed my poor damaged villi and did a biopsy. This is how I found out I have celiac disease. So here I am. Anyway, if you want more information, let me know. You have to be diligent with your doctor because this is a condition that many doctors are not familiar with. Many people suffered for a long time and their doctors treated them like they were crazy. But the pain is so real. I don't know about the pain under your tongue. Good luck and let me know if I can give you any more info.

Nikki

Ursa Major Collaborator

Another possibility is a hiatus hernia, and possibly an ulcer in the esophagus due to stomach acid because the hernia lets stomach acid into the esophagus. I had/have that problem. I thought recently my ulcer came back (after I was fine for several years), as I was having those awful pains again, that would make even my back and shoulders hurt, as well as that awful pain in that exact spot you describe.

So, it apparently could have quite a few different causes, and you should really have it checked out.

Marlene Contributor

Thanks for the responses. I called my Naturopathic doctor the other day and she thinks it could have something to do with the fact that I had my gall bladder removed this past spring. My body is still trying to compensate. I had these pains before I had my gall bladder removed and the Gastro specialist was positive that removing my gall bladder would take away the pain. Boy, was he wrong. I want my gall bladder back since I am worse off without it. Sometimes I personally think it could either be sphincter of oddi problems or an ulcer. This is because I get that pain if I am really stressed out and both of the above are aggravated by stress. I really dread going back to either my family doctor or the specialist again. They were completely clueless when it came to gluten intolerance. My family doctor told me I had a nervous tummy and should just take a day off work and relax. The gastro specialist told me I had IBS, I needed therapy to deal with "issues" in my life, and finally blamed it on my gall bladder (after 4 years of continuously going back to see him). I wish I had a doctor that I could totally believe and trust. I am hoping that as my body heals, these pains will become less. Meanwhile, I have the achy body, fevers and stuffed up head kind of flu today. Sigh. Heaven is looking better all the time.

Marlene

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,924
    • Most Online (within 30 mins)
      7,748

    Mckshane
    Newest Member
    Mckshane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      I have a lot to learn!  Thank you
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.