Help!

[Confused in Iowa]

OK - Just got the results from a retest for my son's Celiac Disease. It's still showing pretty high. Now trying to think of where he is getting some gluten. Does anyone know if Fruit By The Foot (like a fruit roll-up) has gluten in it???? We've been working so hard at elminating gluten...so was a little disappointed to hear his numbers haven't dropped. I'm really not educated on the correct words to use, but they want him at 7 or less and he's still at 25. That's about the only thing I can think of that he would be eating.

Also, whats the thoughts on oatmeal???? I've seen some places where it can be eaten in moderation.

He was just diagnosed in August, so I'm really new to all this. I'm lucky he doesn't get physically sick when he gets gluten.......

Thanks everyone for your help!

[Lisa]

The oatmeal may be causing some problems. There is a high risk in cross contamination is the growing and processing process. (oats and wheat in the same fields)

We are past the roll-up stages around here, so no help from me.

[Nikki2003]

The oatmeal may be causing some problems. There is a high risk in cross contamination is the growing and processing process. (oats and wheat in the same fields)

We are past the roll-up stages around here, so no help from me.

I looked up the ingredients and pretty sure they are gluten free. But I guess their labeling can change.

Celina

what else could it be?

[Guest nini]

fruit by the foot should be fine, although there are probably other areas where the gluten may still be hiding, Oatmeal is a biggie, any cereals with barley malt in them are a no no, do you have a separate toaster for gluten breads and a new one for gluten-free breads? Cutting boards? Wooden spoons? Have you verified vitamins, lotions, bath products?

[Juliet]

From what I understand Fruit By The Foot is OK. I don't know about other brands, though. I normally get the fruit leathers from Trader Joe's (I don't know if you have one where you live). As for oatmeal, you can get some uncontaminated sources of Oats like from glutenfreeoats.com, but it's expensive! Some people have stated that McCann's steel cut oats are OK, but others are saying it isn't. From everything I've read about oatmeal, too, it's only supposed to be eaten in moderation (1 cup cooked per day for an adult). That isn't enough to eat for one meal by my 3-year-old Celiac son, so I just avoid oats altogether. He likes to eat a lot of Cream of Rice (by the same people who do Cream of Wheat). I make it with milk instead of water and add flavorings and a little sugar. It's one of his favorites.

And his numbers didn't go down to the level they were looking for until after he had been gluten free for six months, although we saw an extreme immediate improvement after being on the diet for less than two weeks. I was making a lot of little mistakes, that added up, for the first 3-4 months. It gets easier, I promise!

[lovegrov]

Stay away from oatmeal in the U.S. It's contaminated, and even if it's pure, some celiacs can't tolerate it.

richard

[taweavmo3]

I think it's still a little early in the diet to be retesting already. Just my two cents......but I thought you needed a good six months at least before levels could reach normal. If we had tested Emmie that soon after, I'm sure her numbers would have been elevated too, b/c I made quite a few mistakes in the beginning!

I would definately recheck everything he's eating, but if you can't find a gluten source, maybe all you need is more time.

[rez]

where are you at in IOWA? We live in Iowa! We're from Bettendorf.

[Confused in Iowa]

where are you at in IOWA? We live in Iowa! We're from Bettendorf.

We are in Woodward - a small town about 25 miles northwest of Des Moines.

I bet it is the oats......Plus I'm sure I've made some other mistakes...such as using Nestle butterscotch chips......just realized that one a few weeks ago...so I'm sure where he's getting his gluten is from stupid things that I've done like that in reading labels.

I'm so glad that Fruit By The Foot is ok......He eats that alot...even tho he's diabetic, he uses that for a quick pick up before he does his sporting events.

I guess tho by this test coming back still elevated, it has proven to me that even just a little is as bad as a bunch.......so we'll keep working on it.......it makes it hard when he doesn't get physically sick from gluten, he gets more the mental part of it where he can't concentrate and irritible. But I'm so lucky he doesn't get physically sick.....count my blessings there for him.

Thanks everyone for your help! Appreciate it!

[KaitiUSA]

Fruit by the foot is made by Betty Crocker and they are a part of General Mills and will not hide anything so unless the label says wheat, rye,barley, or oats they are ok. Also, oatmeal made in the US in a no no because they are highly contaminated with wheat...if you do oatmeal( I stay away from it) then you need to go with a bran that is grown, transported, and in a facility without wheat.