Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety/joint Pain

sunshinen

By sunshinen
in Coping with Celiac Disease

Recommended Posts

sunshinen Apprentice
sunshinen
Posted

One of the unexpected benefits of going gluten free has been a huge reduction in anxiety and joint pain, but every now and then I have flare ups. My glutening experiences are not usually associated with severe gastric distress, so it is sometimes hard to know if I have been glutened. For me, the give away is a migraine, but I think there are times where I didn't get enough to trigger a migraine, but still suffer in more subtle ways.

Does anyone else associate anxiety, joint pain, and other non-GI symptoms with being glutened? How long does it take for these symptoms to show up and go away? When you start to feel symptoms, how far back do you question your diet?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

I get all of those symptoms when glutened. And I sometimes don't get obvious symptoms for up to a week after being glutened.

My symptoms don't usually start showing up until the next day, and can last up to two weeks.

jerseyangel Proficient
jerseyangel
Posted

Yep--I get those reactions, too, when glutened. My joint pain is mostly in my hips and I get anxiety and extreme moodiness.

These begin within a few hours. They last from a few days to about a week.

kabowman Explorer
kabowman
Posted

My knees hurt when I start having food problems. When they start to hurt, I really start checking my diet.

sunshinen Apprentice
sunshinen
Posted
  • Author

thanks!! everyone sounds so similar to my experiences. the dumb thing is that i went to bed with a migraine, but still wanted confirmation that i'm not crazy and arthritic. i think that's what all those years of misdiagnosis do to you: hard to trust yourself and that there really is an answer.

BamBam Community Regular
BamBam
Posted

Very seldom do I get diarrhea when I am glutened. I usually get extreme anxiety and fears and my joints usually hurt to but not all the time. I am just now going through some kind of gluteneing, and I don't know from what, I think it was my turkey, but anyway, I have severe anxiety/fears and they usually start a day or so after and last about a week.

BamBam

bluejeangirl Contributor
bluejeangirl
Posted

yep I'll have digestive problems like gas along with the pains but I don't get D I just feel like it. I got glutened this thanksgiving and my worse symptoms are joint pain especially in my neck because I sit at a lap top which kills my shoulders being that the key board is too high. I also get very depressed which will turn to anxiety if I have to go into public places. So I have to lay low until it goes away and this time its taking about a week. I've been having tummy upsets not because of the gluten but since my appetite is low I've been eating planters peanuts which worsened instead of help getting my system in the right tract.

So I figured that out about 4 days ago and on day 4 of prilosec feeling better in that regard but I then figured out this morning waking up with the neck and shoulder pain that I was in a hypoglycemic response. I could tell because I get so cranky and there's this overwhelming tiredness that won't go away until I eat then the pain and tiredness will slowly go away.

So I'm going to be more aware of eating something before I go to bed that will last me through the night. I don't know why one thing leads to another like that but I think its a matter of learning how your body response to gluten and then being careful if you have other allergies or blood sugar problems.

Gail

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CatandCanary Rookie
CatandCanary
Posted
One of the unexpected benefits of going gluten free has been a huge reduction in anxiety and joint pain, but every now and then I have flare ups. My glutening experiences are not usually associated with severe gastric distress, so it is sometimes hard to know if I have been glutened. For me, the give away is a migraine, but I think there are times where I didn't get enough to trigger a migraine, but still suffer in more subtle ways.

Does anyone else associate anxiety, joint pain, and other non-GI symptoms with being glutened? How long does it take for these symptoms to show up and go away? When you start to feel symptoms, how far back do you question your diet?

One of the unexpected benefits of going gluten free has been a huge reduction in anxiety and joint pain, but every now and then I have flare ups. My glutening experiences are not usually associated with severe gastric distress, so it is sometimes hard to know if I have been glutened. For me, the give away is a migraine, but I think there are times where I didn't get enough to trigger a migraine, but still suffer in more subtle ways.

Does anyone else associate anxiety, joint pain, and other non-GI symptoms with being glutened? How long does it take for these symptoms to show up and go away? When you start to feel symptoms, how far back do you question your diet?

I was glad that someone brought this up because before I went Gluten free, I was suffering with memory and mood problems. I had no idea how bad they had been until I didn’t have them anymore. Now, I noticed if I do get some Gluten the memory and mood problems come right back and it takes about 2 days for them to go away.

I also suffer with the body pain, at times it is so bad, combine that with the mood and memory and everyone around me suffers. I just hide and hope for the symptoms to subside. I have a lot of gilt about the way my friends and family have also suffered with this awful problem. I am, most of the time, a very mild mannered person but can really loose my self-control when feeling that bad, snapping at and avoiding people. Thank God I have a forgiving and understanding family and friends.

I also feel that the many doctors I have had over the past 45 years have made me feel like I was stupid, crazy, a drug addict and even a hypochondriac. Finding out that I can’t eat Gluten helped me understand why I had so many problems, now the only problem is that the doctors don’t know enough about it to help much.

I understand how you feel. Thanks for bringing the subject up for discussion.

hineini Enthusiast
hineini
Posted

Yes! I don't see an increase in my joint pain from eating gluten, but I get immediate anxiety. Very intensely.

MrBob Newbie
MrBob
Posted
One of the unexpected benefits of going gluten free has been a huge reduction in anxiety and joint pain, but every now and then I have flare ups. My glutening experiences are not usually associated with severe gastric distress, so it is sometimes hard to know if I have been glutened. For me, the give away is a migraine, but I think there are times where I didn't get enough to trigger a migraine, but still suffer in more subtle ways.

Does anyone else associate anxiety, joint pain, and other non-GI symptoms with being glutened? How long does it take for these symptoms to show up and go away? When you start to feel symptoms, how far back do you question your diet?

My symptoms appear 5-6 hours after a glutening. My first non-GI symptom is a stiffening or seizing up of my wrists & I get flushed. The joint pain will expand to include fingers & toes, elbows & knees, as well as an increase in my back pain. The pain will last through the next day, and I won't feel like myself for 4-7 days. My right eye usually wakes me up a day or two later, feeling as if someone put a match out in it & rubbed it with sand. It gets very light sensitive, tears excessively, & has even swollen shut.

simmadownnow Newbie
simmadownnow
Posted

I had never connected my occasional joint pain in the ankles and knees when I walked but it was quite obvious after Thanksgiving when I went crazy (glutened) and I went walkies the next a.m. I realized that it was connected and by the next day of being gluten free, there was no pain when I walked. I'm slow to learn, I guess but by jove, I think I've got it now!

Y'all have taught me more (reading the boards) than I could ever have learned from the doctors, most of whom just threw antacids at me and patted me on the arm and said, 'you have developed a nervous tic'.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.