Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Urinary Tract Infection

Terrilyn

Recommended Posts

Terrilyn Rookie
Terrilyn
Posted

Hi

Haven't been here in a while. Did anyone have problems with UTI when they were diagnosed with Celiac? I was dx'd in April 2006 and started in June with UTI's. All the high dose antibotics didn't work. I have gone to a urologist and he is trying a low dose over a longer period (2 months). Any info would be greatly appreciated. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

I used to get lots of UTI's... (Dr. said it was tied in with chronic diarrhea esp. if you find it impossible to get completely clean more common in the morbidly obese as I was :blink: ) I found that drinking water with cranberry juice in it helped tremendously then I found a tea by Traditional Medicinals that supports urinary health... it's great too...

sunshinen Apprentice
sunshinen
Posted

Get some cranberry juice from a health store. You need the real stuff, not the stuff that is mostly sugar. Drink lots of it. This alone has gotten me out of some UTI's. I had them all the time before diagnosis. You might also want to take some probiotics (at least two hours apart from the antibiotics) and some immune boosting supplements. Good luck. These things are no fun!

Guest cassidy
Guest cassidy
Posted

I used to get these all the time before I went gluten-free. I found some great stuff at the health food store called d-mannose. I hope I spelled that correctly. I would take it frequently when I had an infection and then every once in a while as maintenance. It cleared everything up and I didn't have to take antibiotics as often.

loraleena Contributor
loraleena
Posted

are you actually testing positive for bacteria every time? If not you could have Intersticial cystitis. It feels like and infection, but is actually chronic inflamation in your bladder. I had it bad, till I cut out all citrus. Cranberry juice would make this condition worse as well. It is autoimmune, and others with celiac on this site have it as well.

danikali Enthusiast
danikali
Posted

I have IC..........struggling with the diet for that and for Celiac is extra hard. But for some reason, citrus doesn't really bother me. It's more just things like smoking (kills my bladder), alcohol, coffee, SUGAR (VERY BAD), and gluten, even a tiny amount WILL KILLLLLLLLLLLLLLLLLLLLLLLL ME!!! Does anyone else with bladder problems notice this? That when they get glutened, or eat it, it doesn't only give them the 'runs' but it kills your kidneys and bladder, and the whole system?

But def. get tested for IC. And stop taking antibiotics.....they only bring them back. Take some allergen free acidopholis.....get your diet completely clean, and then find out which foods might make it worse. And if it is UTI's, it just means your immune system is not working as it should and antibiotics will seriously only make it worse.

prinsessa Contributor
prinsessa
Posted

Have you tried Uva Ursi? It is an herbal supplement. My mom suggested it when I had a really bad bladder infection and no insurance. That plus lots of cranberry juice cleared it up. You could google it to see more information about it. I hope you are feeling better soon!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


daffadilly Apprentice
daffadilly
Posted

Two Words - Food Allergies

I suffered with UTIs for MANY years. Now that I am gluten-free I do not have them anymore, I also still do not eat or drink, Tea, Coffee, Sodas, Grapefruit, Potatoes

I was allergic to coffee, but I never drank it !!! Severely allergic to tea & it would give me an instant bladder infection.

Used to be any and ALL citrus but now I can have oranges & pineapple with no problems but grapefruit used to make me soooo sick with a UTI that I just cannot bring myself to eat one.

I forgot to check to see how long you have been gluten-free, but if you have been gluten-free for awhile and not getting cross contamination etc, then look for a food or drink that is triggering them. My doctor always said that was not possible but he was wrong B)

okay, slow brain - I read that they started in June when you went gluten-free check the potato flour that is in the gluten-free baked things, or something else that you started eating about that time.

Robina Contributor
Robina
Posted
I used to get these all the time before I went gluten-free. I found some great stuff at the health food store called d-mannose. I hope I spelled that correctly. I would take it frequently when I had an infection and then every once in a while as maintenance. It cleared everything up and I didn't have to take antibiotics as often.

Yes I agree with using D-Mannose... it is WONDERFUL for UTI's... and it's the ONLY PROVEN alternative supplement recognized for being able to effectively treat an existing UTI... I know it helped me...

  • 1 month later...
Guest CarBear
Guest CarBear
Posted
Hi

Haven't been here in a while. Did anyone have problems with UTI when they were diagnosed with Celiac? I was dx'd in April 2006 and started in June with UTI's. All the high dose antibotics didn't work. I have gone to a urologist and he is trying a low dose over a longer period (2 months). Any info would be greatly appreciated. :(

I have DEFINATELY been having reoccurring UTIs that I never got until this summer. I was diagnosed about 5 years ago and never had a problem before. I have taken antibiotics, many of which I have had to look up and verify if they were gluten-free, because many doctors don't know enough about Celiac. The antibiotics I was then put on DESTROYED me. I just started taking D-Mannose, supplement from healthfood store, that seems to be helping so far.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,788
    • Most Online (within 30 mins)
      7,748
    SClark
    Newest Member
    SClark
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Waterdance
      Diagnosed gluten allergy but not Celiac

      By Waterdance · Posted

      Thank you for saying that. That doctor diagnosed me with IBS with no follow-up so the relationship is already concluded. If I pursue diagnosis further I'll request someone else. 
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Hey everyone. Thanks again for your suggestions. I wanted to give an update and ask for some follow-up suggestions from you all.  So I did go through all of my food items and stopped eating things that were “gluten free” and switched over to the “certified gluten free” ones (the ones with the g symbol). I also stayed away from restaurants except once and there I ordered something raw vegan and gluten free hoping for the best. I also stayed away from oats and soy and dairy. I've also been increasing my vitamin B complex. I've been doing this for about 12 days and while I know that's not that long, I'm still getting sick. Sometimes having diarrhea. Sometimes getting headaches and having necklaces. Sometimes waking up feeling horrible brain fog. I did go to my GI doc and they did a blood test and found my TtG-IgA was in the negative range (and a lower number than I'd had before). I also had normal levels of CRP. My stool showed no elevation of calprotectin and no pathogens. My GI doc said the symptoms could be related to a gluten exposure or to IBS. I'm keeping a food diary to see if I can narrow down whats going on. I know I have good days and bad days and Im trying to isolate what makes a good day versus a bad day. Generally so far it looks like if it eat something super cautious like raw vegetables that I chopped myself into a salad and almonds, im fine but if I eat something more complex including, say, chicken and rice (even if packaged and certified gluten free or made by me with gluten free ingredients), it may not go so well. I may end up with either a headache, neck tension, brain fog, and/or diarrhea that day or the morning after. Any other thoughts or suggestions? I am planning to start tracking my foods again but I wanted to do it in more detail this time (maybe down to the ingredient level) so are there any common ingredients that celiacs have issues with that you all know of that I should track? I've got dairy, oats, soy, eggs, corn, peas, lentils on my “watch list”. Other things I should add? I'm hoping if I track for another two weeks I can maybe pin down some sensitivities. Appreciate the help and tips. Thank you so much!!
    • trents
      Diagnosed gluten allergy but not Celiac

      By trents · Posted

      "My GI doctor ruled out gluten celiac entirely because I didn't have skin rash." Are you serious? The overwhelming majority of people with confirmed celiac disease do not have the rash. It's called dermatitis herpetiformis. It is found in only about 10-15% of those with celiac disease: https://www.celiac.ca/gluten-related-disorders/dermatitis-herpetiformis/ If your GI doc is operating on that piece of misinformation, I would start looking for a new GI doc because I wouldn't trust him/her in general. 
    • Waterdance
      Diagnosed gluten allergy but not Celiac

      By Waterdance · Posted

      Thank you so much for your informative reply. My GI doctor ruled out gluten celiac entirely because I didn't have skin rash. I had a histamine response to wheat and milk by scratch test by an allergist. I'm not always symptomatic but the older I get the worse it gets. I've found through trial and error that I can react to all grains. Buckwheat and corn included. I tolerate some rice but I wouldn't want to eat it every day. Potato is pretty good for me but I can't eat it every day either. I compromise with squash. I tolerate it well. The Best I feel is while fasting. When I'm in pain and discomfort it's easy to fast even long term, it helps. The problem I'm having is I'm great with my diet for 3-6 months then I start to cheat again. When I don't get immediate symptoms I get this foolish false security. I react then go back to my diet. Rinse and repeat. I suppose discipline is my real issue. I'm very tired of perusing a diagnosis. The constant gaslighting and dismissal is exhausting. Thanks for your suggestion of the autoimmune protocol. I will give it a try. Perhaps the guidelines will help me to navigate better.   Thanks again.
    • Scott Adams
      Kan-101

      By Scott Adams · Posted

      This isn't the first potential celiac disease treatment in the pipeline that failed. There have been others...
×
×
  • Create New...