Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Urinary Tract Infection


Terrilyn

Recommended Posts

Terrilyn Rookie

Hi

Haven't been here in a while. Did anyone have problems with UTI when they were diagnosed with Celiac? I was dx'd in April 2006 and started in June with UTI's. All the high dose antibotics didn't work. I have gone to a urologist and he is trying a low dose over a longer period (2 months). Any info would be greatly appreciated. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

I used to get lots of UTI's... (Dr. said it was tied in with chronic diarrhea esp. if you find it impossible to get completely clean more common in the morbidly obese as I was :blink: ) I found that drinking water with cranberry juice in it helped tremendously then I found a tea by Traditional Medicinals that supports urinary health... it's great too...

sunshinen Apprentice

Get some cranberry juice from a health store. You need the real stuff, not the stuff that is mostly sugar. Drink lots of it. This alone has gotten me out of some UTI's. I had them all the time before diagnosis. You might also want to take some probiotics (at least two hours apart from the antibiotics) and some immune boosting supplements. Good luck. These things are no fun!

Guest cassidy

I used to get these all the time before I went gluten-free. I found some great stuff at the health food store called d-mannose. I hope I spelled that correctly. I would take it frequently when I had an infection and then every once in a while as maintenance. It cleared everything up and I didn't have to take antibiotics as often.

loraleena Contributor

are you actually testing positive for bacteria every time? If not you could have Intersticial cystitis. It feels like and infection, but is actually chronic inflamation in your bladder. I had it bad, till I cut out all citrus. Cranberry juice would make this condition worse as well. It is autoimmune, and others with celiac on this site have it as well.

danikali Enthusiast

I have IC..........struggling with the diet for that and for Celiac is extra hard. But for some reason, citrus doesn't really bother me. It's more just things like smoking (kills my bladder), alcohol, coffee, SUGAR (VERY BAD), and gluten, even a tiny amount WILL KILLLLLLLLLLLLLLLLLLLLLLLL ME!!! Does anyone else with bladder problems notice this? That when they get glutened, or eat it, it doesn't only give them the 'runs' but it kills your kidneys and bladder, and the whole system?

But def. get tested for IC. And stop taking antibiotics.....they only bring them back. Take some allergen free acidopholis.....get your diet completely clean, and then find out which foods might make it worse. And if it is UTI's, it just means your immune system is not working as it should and antibiotics will seriously only make it worse.

prinsessa Contributor

Have you tried Uva Ursi? It is an herbal supplement. My mom suggested it when I had a really bad bladder infection and no insurance. That plus lots of cranberry juice cleared it up. You could google it to see more information about it. I hope you are feeling better soon!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



daffadilly Apprentice

Two Words - Food Allergies

I suffered with UTIs for MANY years. Now that I am gluten-free I do not have them anymore, I also still do not eat or drink, Tea, Coffee, Sodas, Grapefruit, Potatoes

I was allergic to coffee, but I never drank it !!! Severely allergic to tea & it would give me an instant bladder infection.

Used to be any and ALL citrus but now I can have oranges & pineapple with no problems but grapefruit used to make me soooo sick with a UTI that I just cannot bring myself to eat one.

I forgot to check to see how long you have been gluten-free, but if you have been gluten-free for awhile and not getting cross contamination etc, then look for a food or drink that is triggering them. My doctor always said that was not possible but he was wrong B)

okay, slow brain - I read that they started in June when you went gluten-free check the potato flour that is in the gluten-free baked things, or something else that you started eating about that time.

Robina Contributor
I used to get these all the time before I went gluten-free. I found some great stuff at the health food store called d-mannose. I hope I spelled that correctly. I would take it frequently when I had an infection and then every once in a while as maintenance. It cleared everything up and I didn't have to take antibiotics as often.

Yes I agree with using D-Mannose... it is WONDERFUL for UTI's... and it's the ONLY PROVEN alternative supplement recognized for being able to effectively treat an existing UTI... I know it helped me...

  • 1 month later...
Guest CarBear
Hi

Haven't been here in a while. Did anyone have problems with UTI when they were diagnosed with Celiac? I was dx'd in April 2006 and started in June with UTI's. All the high dose antibotics didn't work. I have gone to a urologist and he is trying a low dose over a longer period (2 months). Any info would be greatly appreciated. :(

I have DEFINATELY been having reoccurring UTIs that I never got until this summer. I was diagnosed about 5 years ago and never had a problem before. I have taken antibiotics, many of which I have had to look up and verify if they were gluten-free, because many doctors don't know enough about Celiac. The antibiotics I was then put on DESTROYED me. I just started taking D-Mannose, supplement from healthfood store, that seems to be helping so far.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,933
    • Most Online (within 30 mins)
      7,748

    Kazwal
    Newest Member
    Kazwal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.