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gluten-free Since May, Chronic Fatigue Better, Now Fibromyalgia

Mia H

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Mia H Explorer
Mia H
Posted

I have been gluten free since may. And my chronic fatigue is better, I no longer feel my afternoon "leadsuits" that I used to have daily. Now I get them when I get glutened.

I also gave up dairy and that seemed to help me with the morning achy, puffy, stiffness part.

Chronic fatigue was the #1 symptom that lead me here. Now that the fog is lifting a little I am recognizing symptoms that where there all along but hidden by the fatigue.

I have joint pain without swelling, stiffness, 12 of the 18 tender points, poor sleep, tired upon rising.

Any advice?? I thought these symptoms had improved when I went dairy free also. A month or two ago my girls got ear infections and we got poor sleep. Could that have just brought on a flare up? and if so, any way to calm it down?

I'm also 16 week pregnant. I had heard these conditions improve with pregnancy. But can they get worse?

Thanks for any advice,

Mia

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marciab Enthusiast
marciab
Posted

I was diagnosed with CFS/FM back in 1990 and I have gotten rid of several of my symptoms too. Pretty cool, isn't it ?? :)

I'm still working on the fatigue, but I was glutened (CC) from eating out from Sept till the first of Nov..

But, about the FM, I find that losing sleep will cause my fibro to hurt every time. And your husband is not going to like this idea :lol: , but I have to stay warm while I am sleeping too. Socks, thermals, and gloves if it is reallly cold... :P Two pairs of each if I am still cold. :P

Also, I am convinced that omegas have helped my fibro. I can't digest supplements, so I pour flax seed oil, EVOO, grapeseed oil, etc over my foods like stir frys.

There are a lot of OTC sleep remedies, but I don't know what pregnant women can use... Congrats ...

Hope this helps ... marcia

loraleena Contributor
loraleena
Posted

Cut out nightshades - tomato, potatoe, eggplant,peppers. Also get your thyoid checked for hyothyroidism and get your adrenal levels checked. Make sure they check your thyroid peroxidase antibodies. Levels should be under 20. If not this indicateds hashimotos hypo which is common in us celiacs.

mandyann Newbie
mandyann
Posted

Hi Mia-

I don't know if I can offer alot of help but my symptoms are similiar, the joint pain w/o swelling and the stiffness. I did feel much better with my pregnancy but it wasn't until I was in my fourth month or so, and I felt wonderful, much better than I do when I'm not pregnant. My energy came back and the pain was gone. You would think that your pregnancy could bring on a flare up, it is a major stress on the body. I know that everyone is different but hopefully this helps.

Mia H Explorer
Mia H
Posted
  • Author
Cut out nightshades - tomato, potatoe, eggplant,peppers. Also get your thyoid checked for hyothyroidism and get your adrenal levels checked. Make sure they check your thyroid peroxidase antibodies. Levels should be under 20. If not this indicateds hashimotos hypo which is common in us celiacs.

I did have my thyroid tested up and down many times but it appeared normal. I did have (most likely still recovering from) adrenal fatigue. I had that tested at a naturopath.

I can try to cut out nightshades but the potatoes will be tough. It's hard to get full without gluten and dairy.

I feel like there is barely anything to eat the way it is :( But thanks for the ideas. It helps to have something to try.

Mia

daffadilly Apprentice
daffadilly
Posted

Congrats Mia on your pregnancy, I was also going to say cut out nightshades, especially black pepper - It gives me little pains (they hurt) in the finger tips. I also cannot eat potatoes they give me chest pains.

check this out for yourself, but i find that if you cannot eat potatoes a lot of time you can eat corn.

Lundberg rice chips are good & have no cross contamination issues

eat a lot of fruits and veggies with protein foods, good luck

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Pregnancy does something to the ligaments--stretches them temporarily or something like that. That might very well have something to do with your joint pain. Ask your doctor if you can go to physical therapy to learn some safe, gentle stretching exercises to help warm up and strengthen your muscles to help support your poor aching joints. One-on-one instruction is important here to avoid hurting anything.

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loraleena Contributor
loraleena
Posted

Try sweet potatoes. I slice them,coat them in olive oil, and bake. Yum. Pregnancy can bring on fibro flare or make it better.

Mia H Explorer
Mia H
Posted
  • Author

Since I was feeling lousy anyway I thought, why suffer and not be able to eat anything, so we went out to eat last night and I had mashed potatoes with butter and sour cream.

Bad move, you never feel so bad that you can't feel worse!

I know I will never try gluten again but once and awhile I have to double check the dairy.

I woke up puffy, bags under eyes, tired like a hang over.

I really don't mind the achy joints and all as much as the lack of sleep.

I have the book "From Fatigued to Fantastic" by Jacob Teitelbaum and I'm going to try to get a sleep aid that's safe in pregnancy. If I could just sleep a couple of good night I really think I would feel a lot better.

Thanks for all the help and support! It helps so much to know I'm not alone!

Mia

CarlaB Enthusiast
CarlaB
Posted

Hi Mia. Doesn't your family go camping? Have you been tested for Lyme Disease (by IGeneX, one of the two reliable labs in the country)? It can be a common cause of joint pain and fatigue -- even food/chemical intolerances.

The potatoes last night may have contributed to the joint pain. Seems a lot of people around here can't eat nightshades because of their joints.

Rachel--24 Collaborator
Rachel--24
Posted

I agree with Carla. Lyme disease is very often misdiagnosed as chronic fatigue syndrome or Fibro. Unfortunately Lyme testing is unreliable. Like Carla said...Igenix is well known to be the best and most reliable lab.

Mia H Explorer
Mia H
Posted
  • Author

I was tested for lymes by my regular doctor and it was negative.

I'm not a huge camper, I go maybe twice a year and usually in the fall when all the ticks are gone. I hate bugs and I'm paranoid about ticks so I am pretty certain that I'm ok.

How much is it to get Igenix to test? How do I send in a sample?

It makes me feel like I can't trust anything :angry:

Thanks for the tip though, it's always nice to keep thinking of a new possibility.

Mia

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