Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonscopy Prep Questions Need Help Asap


kara7

Recommended Posts

kara7 Rookie

I AM SCHEDULED FOR A COLONSCOPY/UPPER ENDOSCOPY ON THURSDAY. I AM REFUSING TO DO THE GOLITELY PREP AS I GET BLOATED FROM INGESTING EVEN SMALL AMOUNTS OF LIQUID.

I HAVE OPTED TO DO THE FLEET PHOSOPHODA GINGER LEMON FLAVORED AS IT IS A LOT LESS LIQUID(WITHOUT THE CONSENT OF MY DOCTOR). HAS ANYONE EVER HEARD OF ANY ADVERSE REACTIONS TO IT? I FIGURE IT WOULDN'T BE SOLD IN THE PHARMACY IF IT WAS TOO DANGEROUS TO USE.

ALSO, AT WHAT TIME DID YOU START IT AND HOW MUCH WITH EACH DOSE?

THANKS IN ADVANCE FOR YOUR HELP. I SO DESPERATLY WANT TO FIND OUT WHAT'S WRONG WITH ME BUT I AM SO SCARED.

KARA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Kara:

I am not sure why you don't want to consume liquids to flush out your system. I suppose it does not matter what you flush with as long as it is clear and clean.

I am not up on the procedure that you have chosen, but I would recommend that you choose a time that will flush you clean by the time of your proceedure.

If the GI doc can't have a full view, it will hinder your exam.

Good luck and I hope you have some answers.

Mary Contrary Rookie
I AM SCHEDULED FOR A COLONSCOPY/UPPER ENDOSCOPY ON THURSDAY. I AM REFUSING TO DO THE GOLITELY PREP AS I GET BLOATED FROM INGESTING EVEN SMALL AMOUNTS OF LIQUID.

I HAVE OPTED TO DO THE FLEET PHOSOPHODA GINGER LEMON FLAVORED AS IT IS A LOT LESS LIQUID(WITHOUT THE CONSENT OF MY DOCTOR). HAS ANYONE EVER HEARD OF ANY ADVERSE REACTIONS TO IT? I FIGURE IT WOULDN'T BE SOLD IN THE PHARMACY IF IT WAS TOO DANGEROUS TO USE.

ALSO, AT WHAT TIME DID YOU START IT AND HOW MUCH WITH EACH DOSE?

THANKS IN ADVANCE FOR YOUR HELP. I SO DESPERATLY WANT TO FIND OUT WHAT'S WRONG WITH ME BUT I AM SO SCARED.

KARA

Don't be scared I did it last night and this morning, had the COLONSCOPY/UPPER ENDOSCOPY done at 10 am this morning...and it was a piece of cake..didn't feel or know a thing, they had me totally out...and the stuff you have to drink is not bad at all...I drank the big bottle of stuff at 6 pm last night and then at 7 pm drank one of the little bottles...then at 6 am had another of the little bottles of stuff...you need to be really cleaned out or they might just not even do it.....you need that big bottle of Golightly first or it won't be enough...you have to do what they tell you to do. I had to drink a 10 oz bottle of Magnesium Citrate Oral Solution..I assume it is the same as the Golighty..I thought it tasted pretty good even....the little bottle of stuff are alot worse !!!!
Michi8 Contributor

I have heard some people have better luck using Picosalax (it's much less fluid...and is supposed to taste better.) Talk to your dr to see if she will accept you using it instead of the colyte/golytely prep. I'd hate to see you turned down for the procedure at the last minute if the dr feels you did not prep properly.

Michelle

breann6 Contributor

you need to flush clean, and without the liquid you might not get it all out. I did the osmo prep- which allowed me to drink every 15 minutes whatever liquid i wanted with four tabs of osmoprep. it was hard but i just did it. your gonna feel like crap- no matter what prep you do in my opinion. i have done three bowel preps. the osmo prep was the easiest as far as consumption but they all had the same effect....

~breann

BFreeman Explorer
I AM SCHEDULED FOR A COLONSCOPY/UPPER ENDOSCOPY ON THURSDAY. I AM REFUSING TO DO THE GOLITELY PREP AS I GET BLOATED FROM INGESTING EVEN SMALL AMOUNTS OF LIQUID.

I HAVE OPTED TO DO THE FLEET PHOSOPHODA GINGER LEMON FLAVORED AS IT IS A LOT LESS LIQUID(WITHOUT THE CONSENT OF MY DOCTOR). HAS ANYONE EVER HEARD OF ANY ADVERSE REACTIONS TO IT? I FIGURE IT WOULDN'T BE SOLD IN THE PHARMACY IF IT WAS TOO DANGEROUS TO USE.

ALSO, AT WHAT TIME DID YOU START IT AND HOW MUCH WITH EACH DOSE?

THANKS IN ADVANCE FOR YOUR HELP. I SO DESPERATLY WANT TO FIND OUT WHAT'S WRONG WITH ME BUT I AM SO SCARED.

KARA

Kara, a co-worker and I both had this procedure last week (not for celiac reasons) and both did the Fleet thing. It is like drinking liquid salt. It is supposed to start working in 30 minutes to two hours, and then six hours after the first one you take a second one. In my friend's case, it worked in 30 minutes; in mine, it took twelve hours from the first bottle (so I was up all night). I really think you need to follow what the dr. told you or get his/her blessing on a change. The prep is a hard thing to go through to then have the procedure cancelled.

jerseyangel Proficient

Hi Kara,

My husband did the Phospho-soda. I mixed it for him with gingerale, and I believe (if I remember correctly) he took some every 20 minutes. He also had to take Dulcolax before bed that night,

As for the exact directions, didn't your doctor give you a printed sheet with exactly what they want you to do? If you're not completely cleaned out, they may not be able to complete the procedure. This happened to the man who was there right before my husband. The doctor and nurses were not happy with him at all....

I did the "Golightly" (which is a misnomer :o ). That seemed a lot more difficult and time consuming than the Phospho.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JoeB Apprentice

Kara -

I've had a couple of colonoscopies. I used the gallon jug the first time and that wasn't a lot of fun. The second time, I used prescription pills. I don't recall what they were called, but I remember I had to take about 3 dozen pills over 2 to 3 hours. The pills are bigger than vitamins, so they may be difficult for you to swallow. I also remember that I had to drink about 8 ounces of water with each dose, so you would still need to drink a lot of fluid. Overall, though, I would highly recommend the pills over the jug.

Don't worry about the test. I had to get my teeth cleaned today and that was much more uncomfortable that the colonscopy!

breann6 Contributor

how did it go? hope all went well...

~breann :)

kara7 Rookie
how did it go? hope all went well...

~breann :)

Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

breann6 Contributor
Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

i know- i felt the same way. its awful feeling terrble with no answer and no end in sight. its not that you want this disease, its that you want an answer so that you can feel better NOW. My first endoscopy I didn't fall out either. It was awful. I didn't gag that much though- they sprayed the back of my throat twice so i wouldn't keep gagging...that helped then pushed something in my iv that helped. i fell a sleep right after they said all done. I woke up at home. don't remember a thing in between. I hope your throat feels better, drink something warm.

Even if the biopsy comes back negative- i would try the diet just to see how you feel if you haven't already. Give it a few months and see....Did you have positive blood test?

~breann

happygirl Collaborator

it sounds like they did not give you enough medication---you should not have been that 'awake' at all. I have had four and have never been that awake. they are supposed to sedate you which 'puts you to sleep'.

i'm sorry that you had such a bad experience!!!!!!! :(

Michi8 Contributor
Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

I'm sorry you had that experience. It sounds like they didn't give you much (if any) sedative. I had mine done two weeks ago, and was pretty much knocked out from the sedative (fell asleep quickly and don't remember a thing...like I was in a time warp!) Take care of yourself...I hope your throat feels better quickly, and that you get some concrete answers from your test.

Michelle

kara7 Rookie
Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

All of my blood tests have been negative. My B12 and vitamin A are both low. I just feel deep down that wheat is my problem. I have so many of the symptoms, it's almost frightening. I have decided that no matter what the biopsies say, I am going to try my hardest to go gluten free. Convincing my husband is another thing. He just thinks that I am full of crap. (not literally :P ) Last night I seperated everything in the cupboard, putting all things containing wheat at the bottom. Eventually I don't want any gluten in the house, as I have a little problem with will power.

Thanks for all of the kind words.

Kara

  • 1 year later...
RN2009 Newbie
All of my blood tests have been negative. My B12 and vitamin A are both low. I just feel deep down that wheat is my problem. I have so many of the symptoms, it's almost frightening. I have decided that no matter what the biopsies say, I am going to try my hardest to go gluten free. Convincing my husband is another thing. He just thinks that I am full of crap. (not literally :P ) Last night I seperated everything in the cupboard, putting all things containing wheat at the bottom. Eventually I don't want any gluten in the house, as I have a little problem with will power.

Thanks for all of the kind words.

Kara

Hi. Kara. I was wondering if you were ever checked for pernicious anemia? With pernicious anemia you have a B12 deficiency caused by the gastric mucosa(in the stomach) not secreting intrinsic factor. So vitamin B12 cannot be absorbed. Pernicious anemia is diagnosed with:

~low serum B12 levels

~Symptoms: sore tongue, anorexia, abdominal pain, nausea, vomiting, and neuro changes

~Positive Shilling Test

If your doctor did not perform the Schilling Test then he did not rule this out.

If you hadn't been diagnosed with anything I hope this helps!

Lori

nursing student at UK

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748

    yfuvhg
    Newest Member
    yfuvhg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.