Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonscopy Prep Questions Need Help Asap


kara7

Recommended Posts

kara7 Rookie

I AM SCHEDULED FOR A COLONSCOPY/UPPER ENDOSCOPY ON THURSDAY. I AM REFUSING TO DO THE GOLITELY PREP AS I GET BLOATED FROM INGESTING EVEN SMALL AMOUNTS OF LIQUID.

I HAVE OPTED TO DO THE FLEET PHOSOPHODA GINGER LEMON FLAVORED AS IT IS A LOT LESS LIQUID(WITHOUT THE CONSENT OF MY DOCTOR). HAS ANYONE EVER HEARD OF ANY ADVERSE REACTIONS TO IT? I FIGURE IT WOULDN'T BE SOLD IN THE PHARMACY IF IT WAS TOO DANGEROUS TO USE.

ALSO, AT WHAT TIME DID YOU START IT AND HOW MUCH WITH EACH DOSE?

THANKS IN ADVANCE FOR YOUR HELP. I SO DESPERATLY WANT TO FIND OUT WHAT'S WRONG WITH ME BUT I AM SO SCARED.

KARA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Kara:

I am not sure why you don't want to consume liquids to flush out your system. I suppose it does not matter what you flush with as long as it is clear and clean.

I am not up on the procedure that you have chosen, but I would recommend that you choose a time that will flush you clean by the time of your proceedure.

If the GI doc can't have a full view, it will hinder your exam.

Good luck and I hope you have some answers.

Mary Contrary Rookie
I AM SCHEDULED FOR A COLONSCOPY/UPPER ENDOSCOPY ON THURSDAY. I AM REFUSING TO DO THE GOLITELY PREP AS I GET BLOATED FROM INGESTING EVEN SMALL AMOUNTS OF LIQUID.

I HAVE OPTED TO DO THE FLEET PHOSOPHODA GINGER LEMON FLAVORED AS IT IS A LOT LESS LIQUID(WITHOUT THE CONSENT OF MY DOCTOR). HAS ANYONE EVER HEARD OF ANY ADVERSE REACTIONS TO IT? I FIGURE IT WOULDN'T BE SOLD IN THE PHARMACY IF IT WAS TOO DANGEROUS TO USE.

ALSO, AT WHAT TIME DID YOU START IT AND HOW MUCH WITH EACH DOSE?

THANKS IN ADVANCE FOR YOUR HELP. I SO DESPERATLY WANT TO FIND OUT WHAT'S WRONG WITH ME BUT I AM SO SCARED.

KARA

Don't be scared I did it last night and this morning, had the COLONSCOPY/UPPER ENDOSCOPY done at 10 am this morning...and it was a piece of cake..didn't feel or know a thing, they had me totally out...and the stuff you have to drink is not bad at all...I drank the big bottle of stuff at 6 pm last night and then at 7 pm drank one of the little bottles...then at 6 am had another of the little bottles of stuff...you need to be really cleaned out or they might just not even do it.....you need that big bottle of Golightly first or it won't be enough...you have to do what they tell you to do. I had to drink a 10 oz bottle of Magnesium Citrate Oral Solution..I assume it is the same as the Golighty..I thought it tasted pretty good even....the little bottle of stuff are alot worse !!!!
Michi8 Contributor

I have heard some people have better luck using Picosalax (it's much less fluid...and is supposed to taste better.) Talk to your dr to see if she will accept you using it instead of the colyte/golytely prep. I'd hate to see you turned down for the procedure at the last minute if the dr feels you did not prep properly.

Michelle

breann6 Contributor

you need to flush clean, and without the liquid you might not get it all out. I did the osmo prep- which allowed me to drink every 15 minutes whatever liquid i wanted with four tabs of osmoprep. it was hard but i just did it. your gonna feel like crap- no matter what prep you do in my opinion. i have done three bowel preps. the osmo prep was the easiest as far as consumption but they all had the same effect....

~breann

BFreeman Explorer
I AM SCHEDULED FOR A COLONSCOPY/UPPER ENDOSCOPY ON THURSDAY. I AM REFUSING TO DO THE GOLITELY PREP AS I GET BLOATED FROM INGESTING EVEN SMALL AMOUNTS OF LIQUID.

I HAVE OPTED TO DO THE FLEET PHOSOPHODA GINGER LEMON FLAVORED AS IT IS A LOT LESS LIQUID(WITHOUT THE CONSENT OF MY DOCTOR). HAS ANYONE EVER HEARD OF ANY ADVERSE REACTIONS TO IT? I FIGURE IT WOULDN'T BE SOLD IN THE PHARMACY IF IT WAS TOO DANGEROUS TO USE.

ALSO, AT WHAT TIME DID YOU START IT AND HOW MUCH WITH EACH DOSE?

THANKS IN ADVANCE FOR YOUR HELP. I SO DESPERATLY WANT TO FIND OUT WHAT'S WRONG WITH ME BUT I AM SO SCARED.

KARA

Kara, a co-worker and I both had this procedure last week (not for celiac reasons) and both did the Fleet thing. It is like drinking liquid salt. It is supposed to start working in 30 minutes to two hours, and then six hours after the first one you take a second one. In my friend's case, it worked in 30 minutes; in mine, it took twelve hours from the first bottle (so I was up all night). I really think you need to follow what the dr. told you or get his/her blessing on a change. The prep is a hard thing to go through to then have the procedure cancelled.

jerseyangel Proficient

Hi Kara,

My husband did the Phospho-soda. I mixed it for him with gingerale, and I believe (if I remember correctly) he took some every 20 minutes. He also had to take Dulcolax before bed that night,

As for the exact directions, didn't your doctor give you a printed sheet with exactly what they want you to do? If you're not completely cleaned out, they may not be able to complete the procedure. This happened to the man who was there right before my husband. The doctor and nurses were not happy with him at all....

I did the "Golightly" (which is a misnomer :o ). That seemed a lot more difficult and time consuming than the Phospho.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JoeB Apprentice

Kara -

I've had a couple of colonoscopies. I used the gallon jug the first time and that wasn't a lot of fun. The second time, I used prescription pills. I don't recall what they were called, but I remember I had to take about 3 dozen pills over 2 to 3 hours. The pills are bigger than vitamins, so they may be difficult for you to swallow. I also remember that I had to drink about 8 ounces of water with each dose, so you would still need to drink a lot of fluid. Overall, though, I would highly recommend the pills over the jug.

Don't worry about the test. I had to get my teeth cleaned today and that was much more uncomfortable that the colonscopy!

breann6 Contributor

how did it go? hope all went well...

~breann :)

kara7 Rookie
how did it go? hope all went well...

~breann :)

Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

breann6 Contributor
Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

i know- i felt the same way. its awful feeling terrble with no answer and no end in sight. its not that you want this disease, its that you want an answer so that you can feel better NOW. My first endoscopy I didn't fall out either. It was awful. I didn't gag that much though- they sprayed the back of my throat twice so i wouldn't keep gagging...that helped then pushed something in my iv that helped. i fell a sleep right after they said all done. I woke up at home. don't remember a thing in between. I hope your throat feels better, drink something warm.

Even if the biopsy comes back negative- i would try the diet just to see how you feel if you haven't already. Give it a few months and see....Did you have positive blood test?

~breann

happygirl Collaborator

it sounds like they did not give you enough medication---you should not have been that 'awake' at all. I have had four and have never been that awake. they are supposed to sedate you which 'puts you to sleep'.

i'm sorry that you had such a bad experience!!!!!!! :(

Michi8 Contributor
Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

I'm sorry you had that experience. It sounds like they didn't give you much (if any) sedative. I had mine done two weeks ago, and was pretty much knocked out from the sedative (fell asleep quickly and don't remember a thing...like I was in a time warp!) Take care of yourself...I hope your throat feels better quickly, and that you get some concrete answers from your test.

Michelle

kara7 Rookie
Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

All of my blood tests have been negative. My B12 and vitamin A are both low. I just feel deep down that wheat is my problem. I have so many of the symptoms, it's almost frightening. I have decided that no matter what the biopsies say, I am going to try my hardest to go gluten free. Convincing my husband is another thing. He just thinks that I am full of crap. (not literally :P ) Last night I seperated everything in the cupboard, putting all things containing wheat at the bottom. Eventually I don't want any gluten in the house, as I have a little problem with will power.

Thanks for all of the kind words.

Kara

  • 1 year later...
RN2009 Newbie
All of my blood tests have been negative. My B12 and vitamin A are both low. I just feel deep down that wheat is my problem. I have so many of the symptoms, it's almost frightening. I have decided that no matter what the biopsies say, I am going to try my hardest to go gluten free. Convincing my husband is another thing. He just thinks that I am full of crap. (not literally :P ) Last night I seperated everything in the cupboard, putting all things containing wheat at the bottom. Eventually I don't want any gluten in the house, as I have a little problem with will power.

Thanks for all of the kind words.

Kara

Hi. Kara. I was wondering if you were ever checked for pernicious anemia? With pernicious anemia you have a B12 deficiency caused by the gastric mucosa(in the stomach) not secreting intrinsic factor. So vitamin B12 cannot be absorbed. Pernicious anemia is diagnosed with:

~low serum B12 levels

~Symptoms: sore tongue, anorexia, abdominal pain, nausea, vomiting, and neuro changes

~Positive Shilling Test

If your doctor did not perform the Schilling Test then he did not rule this out.

If you hadn't been diagnosed with anything I hope this helps!

Lori

nursing student at UK

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.