Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonscopy Prep Questions Need Help Asap

kara7

Recommended Posts

kara7 Rookie
kara7
Posted

I AM SCHEDULED FOR A COLONSCOPY/UPPER ENDOSCOPY ON THURSDAY. I AM REFUSING TO DO THE GOLITELY PREP AS I GET BLOATED FROM INGESTING EVEN SMALL AMOUNTS OF LIQUID.

I HAVE OPTED TO DO THE FLEET PHOSOPHODA GINGER LEMON FLAVORED AS IT IS A LOT LESS LIQUID(WITHOUT THE CONSENT OF MY DOCTOR). HAS ANYONE EVER HEARD OF ANY ADVERSE REACTIONS TO IT? I FIGURE IT WOULDN'T BE SOLD IN THE PHARMACY IF IT WAS TOO DANGEROUS TO USE.

ALSO, AT WHAT TIME DID YOU START IT AND HOW MUCH WITH EACH DOSE?

THANKS IN ADVANCE FOR YOUR HELP. I SO DESPERATLY WANT TO FIND OUT WHAT'S WRONG WITH ME BUT I AM SO SCARED.

KARA

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Kara:

I am not sure why you don't want to consume liquids to flush out your system. I suppose it does not matter what you flush with as long as it is clear and clean.

I am not up on the procedure that you have chosen, but I would recommend that you choose a time that will flush you clean by the time of your proceedure.

If the GI doc can't have a full view, it will hinder your exam.

Good luck and I hope you have some answers.

Mary Contrary Rookie
Mary Contrary
Posted
I AM SCHEDULED FOR A COLONSCOPY/UPPER ENDOSCOPY ON THURSDAY. I AM REFUSING TO DO THE GOLITELY PREP AS I GET BLOATED FROM INGESTING EVEN SMALL AMOUNTS OF LIQUID.

I HAVE OPTED TO DO THE FLEET PHOSOPHODA GINGER LEMON FLAVORED AS IT IS A LOT LESS LIQUID(WITHOUT THE CONSENT OF MY DOCTOR). HAS ANYONE EVER HEARD OF ANY ADVERSE REACTIONS TO IT? I FIGURE IT WOULDN'T BE SOLD IN THE PHARMACY IF IT WAS TOO DANGEROUS TO USE.

ALSO, AT WHAT TIME DID YOU START IT AND HOW MUCH WITH EACH DOSE?

THANKS IN ADVANCE FOR YOUR HELP. I SO DESPERATLY WANT TO FIND OUT WHAT'S WRONG WITH ME BUT I AM SO SCARED.

KARA

Don't be scared I did it last night and this morning, had the COLONSCOPY/UPPER ENDOSCOPY done at 10 am this morning...and it was a piece of cake..didn't feel or know a thing, they had me totally out...and the stuff you have to drink is not bad at all...I drank the big bottle of stuff at 6 pm last night and then at 7 pm drank one of the little bottles...then at 6 am had another of the little bottles of stuff...you need to be really cleaned out or they might just not even do it.....you need that big bottle of Golightly first or it won't be enough...you have to do what they tell you to do. I had to drink a 10 oz bottle of Magnesium Citrate Oral Solution..I assume it is the same as the Golighty..I thought it tasted pretty good even....the little bottle of stuff are alot worse !!!!
Michi8 Contributor
Michi8
Posted

I have heard some people have better luck using Picosalax (it's much less fluid...and is supposed to taste better.) Talk to your dr to see if she will accept you using it instead of the colyte/golytely prep. I'd hate to see you turned down for the procedure at the last minute if the dr feels you did not prep properly.

Michelle

breann6 Contributor
breann6
Posted

you need to flush clean, and without the liquid you might not get it all out. I did the osmo prep- which allowed me to drink every 15 minutes whatever liquid i wanted with four tabs of osmoprep. it was hard but i just did it. your gonna feel like crap- no matter what prep you do in my opinion. i have done three bowel preps. the osmo prep was the easiest as far as consumption but they all had the same effect....

~breann

BFreeman Explorer
BFreeman
Posted
I AM SCHEDULED FOR A COLONSCOPY/UPPER ENDOSCOPY ON THURSDAY. I AM REFUSING TO DO THE GOLITELY PREP AS I GET BLOATED FROM INGESTING EVEN SMALL AMOUNTS OF LIQUID.

I HAVE OPTED TO DO THE FLEET PHOSOPHODA GINGER LEMON FLAVORED AS IT IS A LOT LESS LIQUID(WITHOUT THE CONSENT OF MY DOCTOR). HAS ANYONE EVER HEARD OF ANY ADVERSE REACTIONS TO IT? I FIGURE IT WOULDN'T BE SOLD IN THE PHARMACY IF IT WAS TOO DANGEROUS TO USE.

ALSO, AT WHAT TIME DID YOU START IT AND HOW MUCH WITH EACH DOSE?

THANKS IN ADVANCE FOR YOUR HELP. I SO DESPERATLY WANT TO FIND OUT WHAT'S WRONG WITH ME BUT I AM SO SCARED.

KARA

Kara, a co-worker and I both had this procedure last week (not for celiac reasons) and both did the Fleet thing. It is like drinking liquid salt. It is supposed to start working in 30 minutes to two hours, and then six hours after the first one you take a second one. In my friend's case, it worked in 30 minutes; in mine, it took twelve hours from the first bottle (so I was up all night). I really think you need to follow what the dr. told you or get his/her blessing on a change. The prep is a hard thing to go through to then have the procedure cancelled.

jerseyangel Proficient
jerseyangel
Posted

Hi Kara,

My husband did the Phospho-soda. I mixed it for him with gingerale, and I believe (if I remember correctly) he took some every 20 minutes. He also had to take Dulcolax before bed that night,

As for the exact directions, didn't your doctor give you a printed sheet with exactly what they want you to do? If you're not completely cleaned out, they may not be able to complete the procedure. This happened to the man who was there right before my husband. The doctor and nurses were not happy with him at all....

I did the "Golightly" (which is a misnomer :o ). That seemed a lot more difficult and time consuming than the Phospho.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JoeB Apprentice
JoeB
Posted

Kara -

I've had a couple of colonoscopies. I used the gallon jug the first time and that wasn't a lot of fun. The second time, I used prescription pills. I don't recall what they were called, but I remember I had to take about 3 dozen pills over 2 to 3 hours. The pills are bigger than vitamins, so they may be difficult for you to swallow. I also remember that I had to drink about 8 ounces of water with each dose, so you would still need to drink a lot of fluid. Overall, though, I would highly recommend the pills over the jug.

Don't worry about the test. I had to get my teeth cleaned today and that was much more uncomfortable that the colonscopy!

breann6 Contributor
breann6
Posted

how did it go? hope all went well...

~breann :)

kara7 Rookie
kara7
Posted
  • Author
how did it go? hope all went well...

~breann :)

Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

breann6 Contributor
breann6
Posted
Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

i know- i felt the same way. its awful feeling terrble with no answer and no end in sight. its not that you want this disease, its that you want an answer so that you can feel better NOW. My first endoscopy I didn't fall out either. It was awful. I didn't gag that much though- they sprayed the back of my throat twice so i wouldn't keep gagging...that helped then pushed something in my iv that helped. i fell a sleep right after they said all done. I woke up at home. don't remember a thing in between. I hope your throat feels better, drink something warm.

Even if the biopsy comes back negative- i would try the diet just to see how you feel if you haven't already. Give it a few months and see....Did you have positive blood test?

~breann

happygirl Collaborator
happygirl
Posted

it sounds like they did not give you enough medication---you should not have been that 'awake' at all. I have had four and have never been that awake. they are supposed to sedate you which 'puts you to sleep'.

i'm sorry that you had such a bad experience!!!!!!! :(

Michi8 Contributor
Michi8
Posted
Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

I'm sorry you had that experience. It sounds like they didn't give you much (if any) sedative. I had mine done two weeks ago, and was pretty much knocked out from the sedative (fell asleep quickly and don't remember a thing...like I was in a time warp!) Take care of yourself...I hope your throat feels better quickly, and that you get some concrete answers from your test.

Michelle

kara7 Rookie
kara7
Posted
  • Author
Well..... I gave up on the colonscopy prep. Couldn't do it. I did have the upper endoscopy done. It was a freaking nightmare. I can remember the whole thing. I gagged and dry heaved and I even think puked the whole time. I have a horrible sore throat still and I had it done at 8am this morning. My doctor said that everything looked normal. He did do some biopsies. It's sad that I wish something was wrong just so that I had an answer. Thanks for asking me how it went.

Kara

All of my blood tests have been negative. My B12 and vitamin A are both low. I just feel deep down that wheat is my problem. I have so many of the symptoms, it's almost frightening. I have decided that no matter what the biopsies say, I am going to try my hardest to go gluten free. Convincing my husband is another thing. He just thinks that I am full of crap. (not literally :P ) Last night I seperated everything in the cupboard, putting all things containing wheat at the bottom. Eventually I don't want any gluten in the house, as I have a little problem with will power.

Thanks for all of the kind words.

Kara

  • 1 year later...
RN2009 Newbie
RN2009
Posted
All of my blood tests have been negative. My B12 and vitamin A are both low. I just feel deep down that wheat is my problem. I have so many of the symptoms, it's almost frightening. I have decided that no matter what the biopsies say, I am going to try my hardest to go gluten free. Convincing my husband is another thing. He just thinks that I am full of crap. (not literally :P ) Last night I seperated everything in the cupboard, putting all things containing wheat at the bottom. Eventually I don't want any gluten in the house, as I have a little problem with will power.

Thanks for all of the kind words.

Kara

Hi. Kara. I was wondering if you were ever checked for pernicious anemia? With pernicious anemia you have a B12 deficiency caused by the gastric mucosa(in the stomach) not secreting intrinsic factor. So vitamin B12 cannot be absorbed. Pernicious anemia is diagnosed with:

~low serum B12 levels

~Symptoms: sore tongue, anorexia, abdominal pain, nausea, vomiting, and neuro changes

~Positive Shilling Test

If your doctor did not perform the Schilling Test then he did not rule this out.

If you hadn't been diagnosed with anything I hope this helps!

Lori

nursing student at UK

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lil-oly
      - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye.
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    5. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748
    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.