Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed

Mike44

By Mike44
in Coping with Celiac Disease

Recommended Posts

Mike44 Apprentice
Mike44
Posted

Hi everybody,

I'm 44 yrs old. Yesterday I was diagnosed as having Coeliac Disease. I live in Essex in the UK.

It's all a bit daunting.

Hope to be able to participate fully in this forum.

Mike.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi Mike, and welcome to the group!

It is daunting at first, but it does get easier! I hope you've had a chance to read over some of the posts--there's a lot of good information on the gluten-free diet, shopping, avoiding cross contamination at home and when eating out, and a host of other topics.

Feel free to ask any questions that you have--lots of great folks here who have been where you are right now :)

Mike44 Apprentice
Mike44
Posted
  • Author
Hi Mike, and welcome to the group!

It is daunting at first, but it does get easier! I hope you've had a chance to read over some of the posts--there's a lot of good information on the gluten-free diet, shopping, avoiding cross contamination at home and when eating out, and a host of other topics.

Feel free to ask any questions that you have--lots of great folks here who have been where you are right now :)

Hi there and thank you for the welcome,

My first question is a little bit selfish!!!

Is A1 sauce gluten-free?

I'm trying to pick through my favourite food and see what I can or cannot eat. And, a steak just ain't a steak without A1!!!!!! The labelling on the bottle is not clear.

Mike.

Pink-Bunny Apprentice
Pink-Bunny
Posted

I don't know which A1 sauce you have so I got the list of all A1 sauces.

Open Original Shared Link

also for a reference Kraft is really good with listing ingredients. so if there is a possibility of wheat, barley, rye, or oats in one of their products it will say it

Also welcome to the board. I've been gluten-free since Thursday (yeah I know, not that long) this board is sooo wonderful with everything from recipes to moral support and everything in between.

oops didn't realize you were in the uk.

Nantzie Collaborator
Nantzie
Posted

Also, keep in mind that the same exact product can have different ingredients in different countries. For example, Lea and Perrins Worchestershire Sauce is gluten-free in the US, but not in Canada. :rolleyes:

If you can list the ingredients, we can let you know if it looks gluten-free, or if there's anything you need to verify with the company. Like Pink Bunny said though, Kraft is really wonderful about being clear about what's in their products. They'll state modified wheat starch if it's wheat rather than the more vague modified food starch. I assume that they have the same policy in the UK as they have in the US.

Welcome to the board!

:D

Nancy

Looking for answers Contributor
Looking for answers
Posted

Welcome! My advice is to take one step at a time and get as many books on the subject as possible. I'm currently reading "Dangerous Grains" and I just finished "Living Gluten Free for Dummies" (or something to that effect). I find the more informed you are, the more driven you are to adhere to a strict diet.

Best to you!

nikki-uk Enthusiast
nikki-uk
Posted
Hi everybody,

I'm 44 yrs old. Yesterday I was diagnosed as having Coeliac Disease. I live in Essex in the UK.

It's all a bit daunting.

Hope to be able to participate fully in this forum.

Mike.

Hi Mike - It's a small world - I live in Essex (UK) too !!!!

Welcome to the forum , lots of good advice to be had here ! : :)

My hubby was diagnosed 2 yrs ago and my son 2 months ago.

It does seem daunting at first but believe me when I say it does get easier.

Reading labels becomes a way of life!!

Fire away with any questions you might have - we are all here to help :):)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mike44 Apprentice
Mike44
Posted
  • Author
Also, keep in mind that the same exact product can have different ingredients in different countries. For example, Lea and Perrins Worchestershire Sauce is gluten-free in the US, but not in Canada. :rolleyes:

If you can list the ingredients, we can let you know if it looks gluten-free, or if there's anything you need to verify with the company. Like Pink Bunny said though, Kraft is really wonderful about being clear about what's in their products. They'll state modified wheat starch if it's wheat rather than the more vague modified food starch. I assume that they have the same policy in the UK as they have in the US.

Welcome to the board!

:D

Nancy

Hi Nancy,

The ingredient that concerns me on A1 is corn syrup???

Mike.

jerseyangel Proficient
jerseyangel
Posted
Hi Nancy,

The ingredient that concerns me on A1 is corn syrup???

Mike.

Corn syrup is gluten-free :)

Mike44 Apprentice
Mike44
Posted
  • Author
Hi Mike - It's a small world - I live in Essex (UK) too !!!!

Welcome to the forum , lots of good advice to be had here ! : :)

My hubby was diagnosed 2 yrs ago and my son 2 months ago.

It does seem daunting at first but believe me when I say it does get easier.

Reading labels becomes a way of life!!

Fire away with any questions you might have - we are all here to help :):)

Hi Nikki.....

and everybody else who's welcomed me on here.

It's a little bit daunting, as I said earlier, being told you have a chronic disease. But, its also like the beginning of a new life, in which I hope to feel better than I have in a long, long time.

Mike.

nikki-uk Enthusiast
nikki-uk
Posted
Hi everybody,

I'm 44 yrs old. Yesterday I was diagnosed as having Coeliac Disease. I live in Essex in the UK.

It's all a bit daunting.

Hope to be able to participate fully in this forum.

Mike.

Hi again Mike,

I meant to ask have you joined Coeliac UK yet??

Mike44 Apprentice
Mike44
Posted
  • Author
Hi again Mike,

I meant to ask have you joined Coeliac UK yet??

Hi Nikki,

Yes I have. Joined yesterday.

Mike.

nikki-uk Enthusiast
nikki-uk
Posted
Hi Nikki,

Yes I have. Joined yesterday.

Mike.

Oh good!!

Once you receive the Gluten-Free food & drink directory it definitely helps enormously with those first few shopping trips.

I know after my hubby was diagnosed we absolutely relied on that little book (or bible as we refer to it!)

Also Open Original Shared Link is a UK based forum which can be very helpful with particular brand queries. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

      What exactly are you taking from doterra?
    2. Xravith
      - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Challenges eating gluten before biopsy

      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac specialist...
    4. Dakota01
      - Dakota01 commented on Scott Adams's article in Winter 2026 Issue
      1

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

      This video is extremely informative and explains why I still get sick when I eat these so called gluten-free processed foods. I make every effort to stay away from all processed foods.
    5. Scott Adams
      0

      Why Celiac Diagnosis Still Takes Years—and How to Change That

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,459
    • Most Online (within 30 mins)
      7,748
    Jackir
    Newest Member
    Jackir
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      What exactly are you taking from doterra? 
    • Xravith
      Challenges eating gluten before biopsy

      By Xravith · Posted

      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease. However, he said, because of my family history and my symptoms were strongly related to gluten, it was very possible that my Celiac Disease is developing and my antibodies may become positive in the future.  I tried to continue the gluten challenge for the biopsy, around 2-3 g of gluten per day, but it was enough to make me feel worse each passing day. I started developing anemia and other mild nutritional deficiencies, and it was really affecting my daily life. I'm a student and exams are coming up, so my doctor suggests me to strictly remove gluten until I feel better so I could study without problems until I could do the gluten challenge when I come back home for holidays. Since going gluten free, I feel like a completely different person. My mind is clearer, I have no stomach pain during the day, and even my nails improved within just two weeks. It could also be Non-Celiac Gluten Sensitivity, but of course I’ll need the biopsy to know for sure. I was wondering, has anyone else had negative blood tests at first and later tested positive? And has anyone struggled with the gluten challenge because of symptoms?
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac  specialist " Dr Fernandez-Becker who down played my ailments and stated im not and then yes I am I even had one her " care team" ask my why do you want that diagnosis. UNMMMMM. I don't want it, its been my life confirmed in 1994.Menopause intensified extra sensitivity and medical has down played my sibo, ibs, CELIAC, now im having skin and eye issues. I thought help was available but its been a complete medical disaster. 
    • JoJo0611
      Awaiting Biopsy results

      By JoJo0611 · Posted

      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Stomach hurts with movement

      By cristiana · Posted

      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.