Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Devastated! Everything's Fine With Me?


sonja69

Recommended Posts

sonja69 Rookie

hi all!

I am back! i was very busy and had not really news on the bloating front. it has been slightly better since glutenfree, but it's always better when i am not eating more than a certain amount of food/day.

stool is not better and my scin is only slightly better, but it's spring now, and the hard winter time is over, which is always hard on my face skin due to fleece shirts and caps.

anyway, my test results are back. i made a big food antibody assessment test (IgG) with approx. 100 foods, it is so disappointing.

tuna is 'low' (+1) --> okay, I get reflux from that so i eat it only occasionally

cane sugar, celery, millet, sole, cantalupe, cherry, mung bean, spinach, carrot, mais gluten, peanut, watermelon, cashew, filbert, rice, and zucchini are 'very low'.

from these foods, i only east cashews, rice, mais gluten, and probably sugar very often, butnot every day. i do not know, if the suagr i use is cane sugar or not and i do not know what to do with the term 'mais gluten'. what is this? i know its in the 'glutenfree' cat food (royal canin dry foods) and will be in some gluten-free-bread, which i do not eat every day.

then i had some IgE reaction against timothy grass and cockroach (??), although i cannot tell that i ever seen a cockroach in my life (except on TV).

the total IgE is very high, but there are no comments about that in the report. what should i do with this information?? another antibody test against food at the doctor?

with the report, there came a rotation diet plan, but all foods who indicated reaction (although very low), i do not eat every day, and celery, carot, cantalupe, filbert, watermeleon, cherry, mungo bean, i eat probably 3-4 times a year.

this test was so expensive and i am not smarter after that. no indications of dairy, gluten, soj or other main trouble foods..... every darned test is negative!!!!

i have been in germany over easter and now i recognize that i am so busy there that i do not eat that amount of food which I eat here. but it's the same food basically, but i am feeling better there at least physically, since i got a lot of problems emotionally since my marriage is falling apart. or better i am separating from my husband right now.

always the same: i eat normal portions/times = i am blotaed, i do not eat that much = it's okay.

and i am so sick of useless tests......

sorry that i did not have any positive to tell.... hope you all are allright!!!!

best wishes and spring greetings (it was very sunny and warm in germany!!)

Sonja


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 127
  • Created
  • Last Reply
Jestgar Rising Star

Sonja,

I'm so sorry that it's so frustrating for you. I hope you are doing okay with the separation - I know how stressful that is.

Hang in there.

Jeanna

sonja69 Rookie

hi Jeanna!!

thanx for your kind words! it's okay, I feel sad, but I made the decision approx. 6 month ago, so it's okay for me. at least it feels better than thsi disappointing and resultless search to get better physically. argh!!

bye, bye,

Sonja

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.