Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Devastated! Everything's Fine With Me?


sonja69

Recommended Posts

sonja69 Rookie

hi all!

I am back! i was very busy and had not really news on the bloating front. it has been slightly better since glutenfree, but it's always better when i am not eating more than a certain amount of food/day.

stool is not better and my scin is only slightly better, but it's spring now, and the hard winter time is over, which is always hard on my face skin due to fleece shirts and caps.

anyway, my test results are back. i made a big food antibody assessment test (IgG) with approx. 100 foods, it is so disappointing.

tuna is 'low' (+1) --> okay, I get reflux from that so i eat it only occasionally

cane sugar, celery, millet, sole, cantalupe, cherry, mung bean, spinach, carrot, mais gluten, peanut, watermelon, cashew, filbert, rice, and zucchini are 'very low'.

from these foods, i only east cashews, rice, mais gluten, and probably sugar very often, butnot every day. i do not know, if the suagr i use is cane sugar or not and i do not know what to do with the term 'mais gluten'. what is this? i know its in the 'glutenfree' cat food (royal canin dry foods) and will be in some gluten-free-bread, which i do not eat every day.

then i had some IgE reaction against timothy grass and cockroach (??), although i cannot tell that i ever seen a cockroach in my life (except on TV).

the total IgE is very high, but there are no comments about that in the report. what should i do with this information?? another antibody test against food at the doctor?

with the report, there came a rotation diet plan, but all foods who indicated reaction (although very low), i do not eat every day, and celery, carot, cantalupe, filbert, watermeleon, cherry, mungo bean, i eat probably 3-4 times a year.

this test was so expensive and i am not smarter after that. no indications of dairy, gluten, soj or other main trouble foods..... every darned test is negative!!!!

i have been in germany over easter and now i recognize that i am so busy there that i do not eat that amount of food which I eat here. but it's the same food basically, but i am feeling better there at least physically, since i got a lot of problems emotionally since my marriage is falling apart. or better i am separating from my husband right now.

always the same: i eat normal portions/times = i am blotaed, i do not eat that much = it's okay.

and i am so sick of useless tests......

sorry that i did not have any positive to tell.... hope you all are allright!!!!

best wishes and spring greetings (it was very sunny and warm in germany!!)

Sonja


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 127
  • Created
  • Last Reply
Jestgar Rising Star

Sonja,

I'm so sorry that it's so frustrating for you. I hope you are doing okay with the separation - I know how stressful that is.

Hang in there.

Jeanna

sonja69 Rookie

hi Jeanna!!

thanx for your kind words! it's okay, I feel sad, but I made the decision approx. 6 month ago, so it's okay for me. at least it feels better than thsi disappointing and resultless search to get better physically. argh!!

bye, bye,

Sonja

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748

    Naner4
    Newest Member
    Naner4
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.