Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Devastated! Everything's Fine With Me?


sonja69

Recommended Posts

sonja69 Rookie

hi all!

I am back! i was very busy and had not really news on the bloating front. it has been slightly better since glutenfree, but it's always better when i am not eating more than a certain amount of food/day.

stool is not better and my scin is only slightly better, but it's spring now, and the hard winter time is over, which is always hard on my face skin due to fleece shirts and caps.

anyway, my test results are back. i made a big food antibody assessment test (IgG) with approx. 100 foods, it is so disappointing.

tuna is 'low' (+1) --> okay, I get reflux from that so i eat it only occasionally

cane sugar, celery, millet, sole, cantalupe, cherry, mung bean, spinach, carrot, mais gluten, peanut, watermelon, cashew, filbert, rice, and zucchini are 'very low'.

from these foods, i only east cashews, rice, mais gluten, and probably sugar very often, butnot every day. i do not know, if the suagr i use is cane sugar or not and i do not know what to do with the term 'mais gluten'. what is this? i know its in the 'glutenfree' cat food (royal canin dry foods) and will be in some gluten-free-bread, which i do not eat every day.

then i had some IgE reaction against timothy grass and cockroach (??), although i cannot tell that i ever seen a cockroach in my life (except on TV).

the total IgE is very high, but there are no comments about that in the report. what should i do with this information?? another antibody test against food at the doctor?

with the report, there came a rotation diet plan, but all foods who indicated reaction (although very low), i do not eat every day, and celery, carot, cantalupe, filbert, watermeleon, cherry, mungo bean, i eat probably 3-4 times a year.

this test was so expensive and i am not smarter after that. no indications of dairy, gluten, soj or other main trouble foods..... every darned test is negative!!!!

i have been in germany over easter and now i recognize that i am so busy there that i do not eat that amount of food which I eat here. but it's the same food basically, but i am feeling better there at least physically, since i got a lot of problems emotionally since my marriage is falling apart. or better i am separating from my husband right now.

always the same: i eat normal portions/times = i am blotaed, i do not eat that much = it's okay.

and i am so sick of useless tests......

sorry that i did not have any positive to tell.... hope you all are allright!!!!

best wishes and spring greetings (it was very sunny and warm in germany!!)

Sonja


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 127
  • Created
  • Last Reply
Jestgar Rising Star

Sonja,

I'm so sorry that it's so frustrating for you. I hope you are doing okay with the separation - I know how stressful that is.

Hang in there.

Jeanna

sonja69 Rookie

hi Jeanna!!

thanx for your kind words! it's okay, I feel sad, but I made the decision approx. 6 month ago, so it's okay for me. at least it feels better than thsi disappointing and resultless search to get better physically. argh!!

bye, bye,

Sonja

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.