Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intravenous Healing?

minibabe

Recommended Posts

minibabe Contributor
minibabe
Posted

Hi, just wondering if anyone has ever heard of this. I have heard that they do this for people that do not respond to the gluten-free diet. I have bee on the diet for about 2 years now and I still do not feel good.

Thank you for you help

Amanda NY :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

I've heard of an IV Push that is like a vitamin cocktail....Is this what you are thinking of?

minibabe Contributor
minibabe
Posted
  • Author

I am not sure. Someone had mentioned it to me and I could not find anything on the internet about it. So I figured I would post up and maybe someone else has heard of it.

It is somthing that is supposed to "heal" you, or maybe somthing that is supposed to help you better respond to the diet.

I have been on the diet and it is not working for me. I still feel HORRIBLE :(

I am really at a loss and my family is pushing me to find somthing else that will help me, because they hate seeing me like this.

sillyyak Enthusiast
sillyyak
Posted

I think you are thinking of TPN. I know of cases where they have done it but I think you really need to have a Dx of Refractory Sprue. I thin but I am not sure.

CarlaB Enthusiast
CarlaB
Posted

If it's been two years and you're not feeling better, I'd keep researching what else might be wrong. I know that I'm sensitive to gluten, the elimination diet proved I am, and every time I've been glutened has confirmed it. However, I was not getting better. For me it was Lyme Disease. If you're not getting better gluten-free, there may be more to it for you, too.

minibabe Contributor
minibabe
Posted
  • Author
If it's been two years and you're not feeling better, I'd keep researching what else might be wrong. I know that I'm sensitive to gluten, the elimination diet proved I am, and every time I've been glutened has confirmed it. However, I was not getting better. For me it was Lyme Disease. If you're not getting better gluten-free, there may be more to it for you, too.

Yea, but i have had a run in with really bad doctors. No one has ever been able to help me. I really need to find a good doctor.

Thank you.

Amanda

happygirl Collaborator
happygirl
Posted

If you are not doing better by now, I would recommend having the full Celiac panel run again to see if your numbers are still high. If your numbers are still high, you might need to reassess how your diet is going. Often, members find that there were hidden sources of gluten. Very few (although, they are out there, and we have them on this board!!!) are ever dx'ed with refractory celiac. You would need a repeat biopsy after going over your diet...and then they usually would re-test your blood again.

If your numbers are within normal ranges, chances are, you have something else going on. Its a hard one....sometimes we want to blame it all on Celiac, and sometimes it is all related to Celiac. Sometimes its not Celiac related, and there is something else going on.

You may have other food allergies/intolerances, or something unrelated to food. What are your symptoms?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mia H Explorer
Mia H
Posted

I agree there may be cross contamination somewhere as a possibility. Medications, shampoos, vitamins

Another is another intolerance, dairy? nightshades? soy? corn?

It is drastic but some recommend the specific carbohydrate diet. I tried it and felt better pretty quickly, but then got pregnant and was losing weight on it so have given it up for now. The theory is there are an overgrowth of "bad" bacteria living in the gut. You starve them by eating no grains or starches. If curious check out www.breakingtheviciouscycle.info Others have recommended the paleo diet, I don't know much about it but believe it is even more strict.

Sorry I haven't heard about anything IV.

Good luck,

Mia

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    2. MichaelDG
      - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      celiac.com support

      By MichaelDG · Posted

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.