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Fibromyalgia

Adelle

By Adelle
in Related Issues & Disorders

Recommended Posts

Adelle Enthusiast
Adelle
Posted

This probably isn't the right spot for this, but someone will move it I assume....

A few of my previous docs brought up fibromyalgia (sp??) as a possibility for my severe achieness and joint pain. I have good and bad days. Anyway just out of curiousity I googled it today. It sounds eerily familiar. I was just wondering if anyone else has it, is it related to celiac, and what can I do about it?

Just wondering since ya'll kinda know everything about health stuff.

Well thanx

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ravenwoodglass Mentor
ravenwoodglass
Posted

For me fibro was directly related to my celiac as was my arthritis. It took a long time, at least 6 months for both to go into remission but they only rear their ugly heads now when I am glutened. I suffered greatly from both 15 years and have a bit of permanent joint damage in my hands but I am now pain free.

mmaccartney Explorer
mmaccartney
Posted

My Rheumotlogist has brought up Fibro several times to explain the pain and discomfort that isn't centered around my joints. For example, my forearms, thighs, shins, etc. The joint pain, for me, is arthritis which is related to the celiac disease.

everyones different though!

Arthritis and Fibro are always present for me, however theey get MUCH worse when I get gluten.

barbara3675 Rookie
barbara3675
Posted

To support what the previous people have said....there is a definite connection between fibro and gluten intolerance for me. I was dx with fibro first and then with a gluten intolerance and I am faring much better now with the fibro since going gluten-free. There will always be good and bad times, for me in times of real stress, the fibro can flare up, but it seems to be hard work stress rather than mental stress. It all fits together so perfectly, I don't see why some doctors don't get it. They will eventually, we just have to wait for them to catch up!!! Barbara

Adelle Enthusiast
Adelle
Posted
  • Author

Well that IS interesting. :) at least I'm not alone! Ha ha! I try to avoid stress, I avoid gluten like the plague! I'm starting to volunteer for the willamette humane society (I get to play with dogs for my excercise, yay!), and my husband rubs my sorest muscles/joints daily. Other than that, anything else helpful??

Thank you tons and tons!!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Swimming! Especially somewhere that has a hot tub/whirlpool, where you can heat up and stretch your sore joints BEFORE you exercise them!

georgie Enthusiast
georgie
Posted
Well that IS interesting. smile.gif at least I'm not alone! Ha ha! I try to avoid stress, I avoid gluten like the plague! I'm starting to volunteer for the willamette humane society (I get to play with dogs for my excercise, yay!), and my husband rubs my sorest muscles/joints daily. Other than that, anything else helpful??

For me sorting out my HypoThyroid and Adrenal Fatigue sorted out my Fibro pain properly ! My blood tests for Thyroid were always wrong but it took a good Dr to work out why :D

Before I found this good Dr and learnt from STTM - I used to have acupuncture to relieve the pain. It used to work great for a few days. It was Chinese acupuncture which meant that I had needles put everywhere !

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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