Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thirst

Niteyx13

By Niteyx13
in Related Issues & Disorders

Recommended Posts

tom Contributor
tom
Posted
BTW: I rip on doctors alot because so many of them misdiganosed or mistreated me. But when I finally found a good one, he spent 6 months testing me and wouldn't give up til he diagnosed me. I had a check-up recently and he told me that, now that he knows what to look for, he's diagnosed 3 other celiacs in the past year. That's after 30 years of never diagnosing anyone with celiac! There are some doctors who actually try to do a good job.

Omg TestyTommy I got chills reading this!!

What a fantastic Dr!!

To everyone else -

If you've been gluten-free a while and are still too thirsty, having some GI symptoms, bloating, exhaustion, hdaches, etc (many possibilities where I'm going), you may do yourself a GREAT favor by looking into Candida overgrowth.

I saw more than a couple of posts reminding me of me in this regard.

I'm nearly positive that far more long-term celiacs develop Candida overgrowth than what seems to be accepted thought on this topic.

To make sure I'm clear - I'm talking about celiacs who've been gluten-free a while, but several symptoms, incl thirst remain, tho often the symptoms have diminished some since going gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TestyTommy Rookie
TestyTommy
Posted

I was tested multiple time by multiple doctors for both types of diabetes. But, of course, since I didn't have it, the tests were always negative. Then the doctors would give up. "Well, the tests were negative, so there must not be anything wrong with you. It must be in your imagination."

My sister was also diagnosed with celiac a couple months ago. I hadn't seen her in awhile, and she showed up on a beautiful spring day wearing long sleeves. I teased her about it, and she showed me her 'rash' that she'd had for the past year or so. It was the biggest, nastiest giant red blotches I'd ever seen. I'd never had DH as a symptom, but I pulled out some of my celiac books and it sure looked like what they described. She had been to a number of doctors, and they all said things like, "Huh! I've never seen anything like that before!" No one tested her for celiac, despite her having a brother with the disease. She went back to her doctor, and he still didn't want to test her! DOCTORS ARE IDIOTS!

Tom:

I've always been suspicious of candida as one of those made-up internet diseases. Can you point me towards some info? Have you had any success? What kind of treatment have you had?

confusedks Enthusiast
confusedks
Posted

I have been researching extreme thirst! I am SO THIRSTY!!! I have been gluten-free for about 2 1/2 months. This is a new thing that is going on. I have NEVER had this before. I am so thirsty I am waking up numerous times in the middle of the night to get water. I also don't want ANYTHING but water which is new because I usually never want any water; only soda, juice, etc. Should I get tested for diabetes? I am worried...also I have been severely anemic in the past and it is fine now. Also the way I know is because water used to make me want to puke when I was anemic.

Kassandra ;)

TestyTommy Rookie
TestyTommy
Posted

Hi Kassandra,

Thirst can certainly be a sign of diabetes, so you should get tested. My problem (and the problem of some others on this thread) is that we were negative for diabetes, and then no one bothered to test us for anything else -- like celiac!

Another thing: watch your electrolytes. If you're drinking a lot of water, it may not be getting inside your cells if you're not getting enough electrolytes, especially salt. (This happened to me). Some things to try:

add about 1/4 tsp of salt to each glass of water you drink, especially in the morning.

sometime drink beverages like Gatorade that have electrolytes in them, instead of water.

I used a product called 'Endurolytes' that have electrolytes in capsule form.

Good luck!

lfij Newbie
lfij
Posted
A lot of you know I have gone back on gluten for a time to be tested. I have noticed since going back on it; aside of feeling just horrible, that I am constantly thristy all the time. Now this is a symptom I had before going gluten-free, and it went away when I was gluten-free, but I didn't even notice it was gone until going back on gluten and finding that it is back. And, wow is it back with a vengence! Anyone else noticed this? Is it a symptom of celiac disease, or is it maybe that gluten foods just have more dehydrating ingredients (I know that sounds weird but I am sure it is possible)? Thanks!

Deanna

maybe your body is just working overtime and needs more fluids! (when you have the flu or are sick otherwise, you usually need more, celiac is no different if you're back on gluten for testing)

  • 2 weeks later...
lilpup Newbie
lilpup
Posted

I've also had terrible thirst for the past several days--never had it before going gluten-free 11 days ago. (No, I don't have diabetes.) I'm eating a balanced diet and have been cooking for myself no eating out, no premade foods. But each day the thirst seems to be getting more intense. Can anyone help?

boysmommy Newbie
boysmommy
Posted

OMG!! This is my first time on this. I was just recently diagnosed and I am looking for information. As I sit at my computer here with a bottle of ice cold water and a cup of ice! I crave ice or flavored ices ALL the time!! I actually feel sooooo sick (tired, nausea, headache) if I don;t drink a ridiculous amount of water. I am always up several time a night to pee. I also was checked for diabetes and do not have it. I was diagnosed with celiac (without a biopsy) as a baby and was told be 3 that I had outgrown it. I have suffered for years including bloating, cramps, nausea, migraines, foggy head, severely severely itchy skin without rashes....and others. I finally, on the recommendation of my children's pediatrician had blood work (positive) and then a biopsy to finally conclude, I really had always had celiac. I am really just learning about all of this but never knew my weird thirst was part of it!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


melrobsings Contributor
melrobsings
Posted

You might want to look into sjogrens.

Open Original Shared Link

It's also a hereditairy auto-immune and my mom has it.

If you have the book "Celiac Disease A Hidden Epidemic" there is a chapter in the book about it.

  • 4 years later...
drjlgphd Newbie
drjlgphd
Posted

A lot of you know I have gone back on gluten for a time to be tested. I have noticed since going back on it; aside of feeling just horrible, that I am constantly thristy all the time. Now this is a symptom I had before going gluten-free, and it went away when I was gluten-free, but I didn't even notice it was gone until going back on gluten and finding that it is back. And, wow is it back with a vengence! Anyone else noticed this? Is it a symptom of celiac disease, or is it maybe that gluten foods just have more dehydrating ingredients (I know that sounds weird but I am sure it is possible)? Thanks!

Deanna

I would guess that it is due to loose stools. I used to be so thirsty all the time that I was checked more than once for diabetes. Off-gluten for 4 years and I don't need to drink about 120oz of water a day anymore. I'm on a gluten challenge as of yesterday for one month to set up for an endoscopy and I woke up in the middle of the night so thirsty I could hardly get to the kitchen fast enough. I drank 16oz of water and had to stop myself from continuing. This morning, loose stools as I used to have before I went off of gluten. I'm pretty sure they're connected.

kareng Grand Master
kareng
Posted

Please note, the last post on this thread is from 2007. The OP you are responding to is from 2004.

  • 2 years later...
UK2004 Rookie
UK2004
Posted

I also had this extreme thirst, mine started 16 years ago and was my first majorly noticeable symptom.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    2. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    4. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    5. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.