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What Am I Doing Wrong?


lilmama

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lilmama Apprentice

I have no clue to where I'm gong wrong. My 1st wk off i started feeling better but now I'm still having tummy trouble. This morning I ate grits,micro bacon(gluten-free). Lunch I have gluten-free waffles and left over bacon from breakfast. Hubby daughter and son all had taco bell. The I had so LAYS BBQ chipsfro a snack. Dinner I ate mashed up avacodo, w lemon,garlic powder, onion powder and cayanne pepper and Santitas tortilla chips. Had a slice of choclate cheese cake made from everything gluten-free. :(

On the bright side

I finally got my order of Home style white bread mix in today. Its gluten-free,Wheat free and casein free. Its not that bad. Even dh tried it and said it was ok. But I can tell its not going to be a bread he eats.


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Ursa Major Collaborator

Angela, your intestines may still be too sensitive for the types of food you're eating right now. A diet of very plain meat, vegetables and fruits would be better, and would help you heal faster.

You might also want to take it easy on replacement foods like gluten-free breads. Have you eliminated dairy? That may be another thing that could cause a problem. What about personal care products, have you replaced any that contain gluten? Do you have your own toaster? What about your colander? You may still have cross-contamination issues.

Guest cassidy

I second what Ursula said. In the beginning it really helps to eat a basic diet. I didn't like the idea of it in the beginning but once I listened I really started feeling better. I also noticed that I have intolerances to other foods and when I was eating all sorts of stuff it was hard to figure out what was making me sick. I went back to basics and I could tell what was bothering me and it got easier.

Also, the only Lay's that are produced on dedicated lines are the Stax. I react to other Lay's products and have stopped eating all of them execpt the Stax. If you are eating a bunch of processed foods at this point it will also be hard to tell if you are one of the extemely sensitive ones that can't tolerate products made around wheat.

Lastly, you are very new to the diet so it is hard to draw conclusions at this point. Your body still has a lot of healing to do and you will likely have many ups and downs the first month. I have found that it takes 2-3 weeks for me to totally get over a glutening.

lilmama Apprentice
Angela, your intestines may still be too sensitive for the types of food you're eating right now. A diet of very plain meat, vegetables and fruits would be better, and would help you heal faster.

You might also want to take it easy on replacement foods like gluten-free breads. Have you eliminated dairy? That may be another thing that could cause a problem. What about personal care products, have you replaced any that contain gluten? Do you have your own toaster? What about your colander? You may still have cross-contamination issues.

I have been using chocolate soy milk shampoo and soy milk cond by SEXY HAIR. I use clinque mositure and concealer. But Since most make up irritates my skin I really don't use it. Oh I do have a burts bees beewaxs lip balm

I have no own toaster bought it this week. My own pot for pastaand just drain it from the pot and lid.

I havent cut out diary just yet. I was really enjoying chocolate milk in place of my breads. A girls gotta have her comfort foods especially when she has 5 sick kids.I'll cut that out and give it alot more time. One question is corn bread stuffing off limits if made from stracth?

happygirl Collaborator

until your body fully heals, you can react to lots of things, because your body isn't functioning correctly and you may be malnourished in certain vitamins/minerals. going gluten free doesn't magically make things better overnight, unfortunately :( give it time, hang in there, and keep on the strict gluten free diet. you will have ups and downs for potentially no reason....and that is normal!!!!! I used to think I was glutening myself all the time in the very, very beginning...turns out I was eating safe and plain, it just took TIME!

good luck-we'll be here to help!

Budew Rookie

Everyone is right on target. It takes time to heal and until you do you may find yourself sensitive to more and more things. You also may need help with enzymes and suppliments in order to heal. At least that is where I am. 7 years gluten-free and I got more sick everyday. Things have been improving since Sept. I got digestive enzymes, cut out all grain, meat, eggs, legumes, iodine, low fat dairy, nightshade veggies, and now I'm eating a low salicylate diet I feel that I am on the mend. I hear you on the comfort foods. My hope is that if I eat a very restricted diet for a few months I am hoping I will tolerate some of the foods that are harder to digest. The funny thing is that my meals have been delicious, I feel so much better, that I finally stopped caring about getting back the foods I lost. The other thing that has been helpful is by using the elimination diet I can now identify items that cause problems fairly easily. Just today following my doctors recomendation I began drinking vitamin water again. Today I am flushing, and have a rapid heartbeat. Since everything in my environment and diet have remained a constant I am sure this is the result of the vitamin water. I'm guessing it is the flavoring in it. Because I cannot have iodine I have really stuggled finding a vitamin supplement. This time I'm hoping he will make a suggestion.

If anyone else has a suggestion I'd appreciate it because I am tapped out on this one!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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