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Support Buddy In Albany Ny Area?


DawnE8199

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DawnE8199 Newbie

Hello everyone. I am very new to this as I just found out yesterday that I have celiac disease. I'm interested in finding someone in the area or maybe not in the area to talk to. It's a very scary thing to have and I am very confused. Any help would be wonderful! Hope to talk to someone soon!

~DawnE8199


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GEF Explorer

Hello Dawn and welcome to the forum! Sorry, I'm way down here in VA, but here are some support groups in NY that might be of some (local) help to you. We're pretty fun here and can perhaps offer you much help, so feel free to share and ask any questions you might have.

Good luck to you!

Gretchen

New York

Central NY Celiac Support Group (Syracuse)

R. Wyman, President

315.463.4616

Mailing Address: 263 Roxbury Rd, Syracuse, NY 13206

Jwyman1@twcny.rr.com

Gluten Free in WNY (Buffalo)

M. Lodico, Manager

716.695.4302

Mailing Address: PO Box 24, North Tonawanda, NY 14120

glutenfree@adelphia.net

Suffolk County Celiacs (Long Island)

L. Doti, Manager

631.724.6651

Mailing Address: 18 Sesame St, Kings Park, NY 11754

ldoti@optonline.net

New York

Westchester Celiac Sprue Support Group (Montrose)

M & C Spreitzer, Contacts

914.737.5291

info@westchesterceliacs.org

celiac3270 Collaborator

I live in NY, also............but a few hours away from you; in NYC.........I find that the board is enough support for me........I also talk to a few people here off the boards via e-mail or instant message. It doesn't really matter where they live, as long as they're someone else to talk to

Alexolua Explorer

Also in NY here. But I'm to your west over near Syracuse.

Ditto to what Coutler said. I don't know anyone in real life, actually really haven't talked to anyone by IM or email either.. but found this board to be very very helpful with the confusion and such. Just look around, use the search function to find things. And if you can't find something, start a new post asking about it. =)

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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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