Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ok - Christmas Gluten Gifts Whinge Time


georgie

Recommended Posts

georgie Enthusiast

I am newly dx as Celiac. And this is my first Christmas. How do you cope with Christmas gifts given by family that have Gluten and are totally useless !! All my favourite food is here on the table and I can't eat it !! :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator

That is so sad.

Does your family not know that you can't eat gluten, or just don't want to know. Maybe you have to re-inforce with them what you can and cannot eat. It is all new to them as well and probably quite hard.

I know a table full of food I can't eat brings tears to my eyes, honestly.

This is my first Christmas too, but I am so full and ready for bed!

I managed to cook mostly gluten free and it is not too hard, especially for the meat and veges, and I did manage to make a trifle, but it is those extras that I can't seem to find substitues for, like the fruit tarts and the chocolates that I miss.

Maybe next year you could offer to do some of the cooking, at least that way you will know what to eat.

Cathy

Kaycee Collaborator

My little winge.

None of my presents was anything to eat. Maybe I have managed to educate my friends and workmates and family.

The only one present that was a bit iffy was a lavender soap (I don't get food anymore, so what is next best? Soap) and it said it could possibly contain oats.

Cathy

angel-jd1 Community Regular

There are a couple of ways you could handle this.

#1: Pass the food off to someone who can eat/use it. Say thank you to whoever it came from. Show that you are grateful and move on.

#2 Say thank you, explain to them why you can't eat it but again tell them thank you for thinking of you. Then pass the food on to someone who can use it.

My grandmother gave me some food this year in my christmas sock. It was something I wasn't sure of so I just gave it to my brother. I have tried explaining things to her for the last several years, it isn't sinking in so I gave up. I am just passing the food on and forgetting it lol.

Hope one of those decisions works for you!!

-Jessica :rolleyes:

Sophiekins Rookie

I explain to family and close friends that foods I haven't seen made can make me sick enough to spend Christmas in hospital. . .and while I appreciate the sentiment, I hope they understand that I'd rather spend Christmas somewhere other than in Emergency having my stomach pumped. I then finish by explaining that if they would really like to "cook" for me, I'd love a card from their local soup kitchen telling me all about the time they spent there helping feed those less fortunate. The foods I do get from well-meaning acquaintances, I take with me on my way to work and give to the street-people I pass on the way (failing that, I give it to a local church or soup kitchen) and send the giver a thank-you card letting him or her know what happened to their gift and why (along the lines of "Thanks for thinking of me during your holiday baking! Although I couldn't enjoy it myself, I thought you'd like to know that your thoughtfulness brightened the Christmas of another family as well.").

It's the thought that counts, and the celiac diet is time-consuming to understand. Your family may find it helpful if, in future years, you circulate a list of reasonably priced suggestions for small things you'd like to see instead of food in your Christmas gifts.

CarlaB Enthusiast

Just say thank you, then pass it on. It was a gift, you don't want to make them feel bad for giving it to you. Appreciate the sentiment.

If they spend any time around you, they will eventually realize you haven't been able to use their gifts ... if they say something, just answer back that you were just so happy to get something, you passed it on and didn't say anything. At least with food you can pass it on ... if it's an ugly shirt, no one will want it!

Viola 1 Rookie
Just say thank you, then pass it on. It was a gift, you don't want to make them feel bad for giving it to you. Appreciate the sentiment.

If they spend any time around you, they will eventually realize you haven't been able to use their gifts ... if they say something, just answer back that you were just so happy to get something, you passed it on and didn't say anything. At least with food you can pass it on ... if it's an ugly shirt, no one will want it!

:lol: Carla, you need at least one ugly shirt a year :lol:

But yes, the best thing is to just pass it on and let them know you appreaciate the thought. We have to remember that even though our lives center around what we can and can't eat, most people have busy lives with their own problems and can't always remember what they are looking for on the ingredients list for the ones they care about with Celiac. We all know how iffy some of those labels are.

Hang in there, it does get better :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

First; when I saw whinge, I thought it was a Southern American word, but I have since learned it is an Australian word so, I have learned a new word today.

Now onto the subject at hand. I would say; "thank you but I can't have any of these items because they are just like poison to me. I would spend a lot of time in being sick if I ate them but I will give them to someone who can eat them and would enjoy them. I do appreciate the thought."

Then I would take them to work or better still to a womens or homeless shelter or give them to homeless people on the street.

Actually this year some kind person left a few homeless people gifts by their bodies as they were sleeping in one of our stations.

swittenauer Enthusiast

I thought the same thing....I was thinking what in the world is whinge? Ha!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.