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- knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs6Help understand results
That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies... -
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- knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease10
Insomnia help
@hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR... -
- trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Positive biopsy
Welcome to the celiac.com community @pothosqueen! Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run... -
- pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Positive biopsy
Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
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By knitty kitty · Posted
That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies were being made. Your daughter is not making all different kinds of antibodies, so the test results are moot. Your daughter should have the DGP IgG and TTG IgG tests done. The tests should be performed while she is still consuming gluten. Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing. Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner. Ask for genetic testing. Celiac disease is passed on from parents to children. You and all seven children should be tested for genes for Celiac disease. Your parents, your siblings and their children should be tested as well. Eating gluten is not required for genetic testing because your genes don't change. Genetic testing is not a diagnosis of Celiac disease. Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated. Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it. Hang in there. You're a good mom for pursuing this! -
By knitty kitty · Posted
@hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease. Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible. (Read the ingredients listing.) Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize. B vitamins breakdown when exposed to heat and light, and over time. So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought. (It's also very cheap.) Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized. It takes thiamine already in the body to turn Thiamine Mononitrate into an active form. I take MegaBenfotiamine by Life Extension. Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance. I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition. Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel. Especially when taken with Magnesium Threonate. Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy. I like NeuroMag by Life Extension. It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier. My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily. Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise. But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions. -
Welcome to the celiac.com community @pothosqueen! Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
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By pothosqueen · Posted
Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis? -
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