Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Day 5


JerryK

Recommended Posts

JerryK Community Regular

Well I'm on to day five avoiding gluten to the best of my ability. Today I actually ate an apple, that should shock the old system:)

I've noticed already that I don't feel as bloated.

Also, very interestingly, I feel like I've walked out from under a very thick fog. I didn't know I was in the fog, because I'd gotten used to it. Placebo effect...perhaps....I dunno...we'll see.

jerry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mtdawber Apprentice

I have only been gluten free for a couple of weeks. That fog is one of the first things I noticed to leave me - thank god! It's like having the flu and then you start to feel better. You didn't realize how crappy you felt for how long until you start to feel better again. :ph34r:

It's good that you are giving the gluten free diet a go. I know you are skeptical but a lifestyle change is way easier than some other things that could happen if you keep eating gluten.

Having said that I know how hard it is. I am still "mourning" the food I can no longer have.

:wacko:

Jestgar Rising Star

Hang there Jerry. Feeling well feels pretty good. That whole coming back to life thing may help you not want to cheat.

CarlaB Enthusiast

Jerry, there will be lots of symptoms that change like the fog ... things you never noticed. It's pretty pathetic that we get to the point that we don't even know what "normal" feels like.

JerryK Community Regular

I guess it doesn't take a rocket scientist to figure out why I used to feel so bad after a few beers.

I haven't drank beer in a while...it always affected me badly....

CarlaB Enthusiast
I guess it doesn't take a rocket scientist to figure out why I used to feel so bad after a few beers.

I haven't drank beer in a while...it always affected me badly....

Yeah, me too. I figured out beer made me sick over 20 years before I figured out gluten made me sick. I was one of the few college students who didn't drink the stuff!

VegasCeliacBuckeye Collaborator

"Brain Fog" is common for celiacs who ingest gluten.

Life is pretty amazing when one comes out of the "fog"...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luvkin Newbie

What you are feeling is not a placebo effect. The fog is very real. When I came out of it I became very angry with people who seemed to depend on me being in a fog all the time.

Nancym Enthusiast
What can you expect if you sharply reduce or eliminate wheat? The majority of people:

--Feel like a cloud has been lifted from their thinking.

--Don't experience the afternoon blah or tired feeling after lunch.

--Lose weight, sometimes substantial quantities.

--Raise HDL.

--Reduce small LDL.

--Reduce triglycerides, particularly if they start >100 mg/dl.

--Reduce blood sugar.

Open Original Shared Link

Nancym Enthusiast
Also, very interestingly, I feel like I've walked out from under a very thick fog. I didn't know I was in the fog, because I'd gotten used to it. Placebo effect...perhaps....I dunno...we'll see.
Placebo? Well, one that many of us have succumbed to then, even this cardiologist:

What can you expect if you sharply reduce or eliminate wheat? The majority of people:

--Feel like a cloud has been lifted from their thinking.

--Don't experience the afternoon blah or tired feeling after lunch.

--Lose weight, sometimes substantial quantities.

--Raise HDL.

--Reduce small LDL.

--Reduce triglycerides, particularly if they start >100 mg/dl.

--Reduce blood sugar.

Open Original Shared Link

I can understand your skepticism though, I was pretty skeptical too.

Katie618 Apprentice
I guess it doesn't take a rocket scientist to figure out why I used to feel so bad after a few beers.

I haven't drank beer in a while...it always affected me badly....

beer made me feel awful too!! before i was diagnosed, i would wake up after a party and think to myself "what the heck happened?!?!?!" my skin was sooo itchy, so inflammed, and red!!! (i have DH), but i have found some pretty good alternatives!! New Grist, Bard's Tale-Dragon Gold, Redbridge.

I feel that bard's tale- dragon gold tasted the most like a regular beer, new grist is a little lighter- like an ale almost, and i haven't had redbridge yet.

Open Original Shared Link i'm from CT, and there aren't any places in ct that seel Bard's tale... the site will tell you which states do and where

Open Original Shared Link i've found new grist in wild oats

JerryK Community Regular
Open Original Shared Link

Thanks for posting this, interesting stuff. j

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      High TTG-IgG and Normal TTG-IgA

    2. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    4. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    yooperjb
    Newest Member
    yooperjb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.