Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Awful ; Thinking About Going Back

betterbelly

Recommended Posts

betterbelly Rookie
betterbelly
Posted

OK

This friday; I'll be gluten free for 2 months. What did happen was that all gas/distended belly and overall uncomfortablness left immediately :) but; starting w/ christmas eve; everything went downhill... Ate bread crumbs by accident - Diarrhea; bad stomach pretty much until 2 days ago; but not until I had a total break down; throwing up; nausea and now my stomach is so sensitive its killing me. My heart feels racey= like i have a fever; but I don't and no it's not panic attacks. I cut out lactose and I don't know what to do; but I just feel like my body is now not tolerating this diet; im losing a lot of weight too... (I'm 5'7 and started at 140- now 130) ANY help is greatly appreciated. And if anyone knows how to reintroduce gluten back ie... what incriments; please post. I am still waiting on blood test about Celiac; but I know the likelyhood of that coming back inconclusively. Thanks in advance and sorry for long post!!! :o

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

Putting gluten back isn't going to help you. It sounds like you have an infection of some sort, you need to see a doctor.

tarnalberry Community Regular
tarnalberry
Posted

You ate gluten and got sick - adding in more gluten isn't going to make you feel better. Nancy noted, you may also have caught a bug. But up until you 'poisoned' yourself (gluten is essentially a poision to us) you seem to imply that you were doing better. Don't waste that knowledge! Stick to plain, natural foods for the moment (and it can be tough figuring out what your stomach will handle), until you're feeling better. Make sure that *all* gluten is out of your diet, as well.

celiacgirls Apprentice
celiacgirls
Posted

It is true that when you go gluten-free, your body sometimes loses its tolerance for even tiny amounts of gluten, making you feel worse than before. But that must mean you really do have an intolerance.

The effects can last a long time, too. For me, my last one lasted 2 1/2 weeks.

You must have felt pretty bad in the beginning to make such a big change in your diet so once you get the hang of it, you will be better off.

From my own experience, I'm not sure I could add gluten back in any increments. I've gotten sick from cc and it was intolerable.

Electra Enthusiast
Electra
Posted

I don't understand why you would want to introduce gluten back into your diet. If you only ate breadcrumbs and had that kind of a reaction and are still feeling the effects then you should definitely NOT eat gluten again!! I've only been gluten free for about 3 weeks, but when I am glutened I can tell within a few hours and it lasts me almost a week. The symptoms very from day to day, but my entire household can tell a difference and I feel like complete CRAP!!

If you felt better off from gluten then I would see no reason to try and put it back into your diet.

betterbelly Rookie
betterbelly
Posted
  • Author

I did go to a doc and they took blood and poop samples... thanks for the replies!

Electra Enthusiast
Electra
Posted

I hope you feel better soon and let us know how it all goes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lonewolf Collaborator
lonewolf
Posted

I'm not sure I understand either. You've been sick enough to try a gluten free diet, you started feeling better ("all gas/distended belly and overall uncomfortablness left immediately"), you ate a little bit of gluten accidentally over Christmas and got sick again and now you think you should go back on gluten? Why? You've had a positive dietary response, which means that eating gluten-free is helping you. Why do you want to go back to eating something that you know makes you sick?

betterbelly Rookie
betterbelly
Posted
  • Author
I'm not sure I understand either. You've been sick enough to try a gluten free diet, you started feeling better ("all gas/distended belly and overall uncomfortablness left immediately"), you ate a little bit of gluten accidentally over Christmas and got sick again and now you think you should go back on gluten? Why? You've had a positive dietary response, which means that eating gluten-free is helping you. Why do you want to go back to eating something that you know makes you sick?

My stomach never felt this bad though... is it possible to have problems from Not eating wheat?

Nancym Enthusiast
Nancym
Posted
My stomach never felt this bad though... is it possible to have problems from Not eating wheat?

In a word, no. Humans have been around for many hundreds of thousands of years and we've only been eating wheat for about 7,000. So it would seem quite possible to survive without it.

ravenwoodglass Mentor
ravenwoodglass
Posted
OK

This friday; I'll be gluten free for 2 months. What did happen was that all gas/distended belly and overall uncomfortablness left immediately :) but; starting w/ christmas eve; everything went downhill... Ate bread crumbs by accident - Diarrhea; bad stomach pretty much until 2 days ago; but not until I had a total break down; throwing up; nausea and now my stomach is so sensitive its killing me. My heart feels racey= like i have a fever; but I don't and no it's not panic attacks. I cut out lactose and I don't know what to do; but I just feel like my body is now not tolerating this diet; im losing a lot of weight too... (I'm 5'7 and started at 140- now 130) ANY help is greatly appreciated. And if anyone knows how to reintroduce gluten back ie... what incriments; please post. I am still waiting on blood test about Celiac; but I know the likelyhood of that coming back inconclusively. Thanks in advance and sorry for long post!!! :o

You body is clearly telling you that it does not want gluten, please do not go back on it. Figure out what it is that is getting you. Are trying to eat mainstream foods, if so you may want to go to eating foods that are less processed. Are you still consuming alcohol, many of us do not tolerate grain alcohols even though many do. Have you deglutened your home? After getting gluten out of your system you may be reacting to CC. Have you eliminated it from shampoos, toiletries and such? If not now that you are not eating it that may be enough to cause a reaction. Please don't give up, it takes a while to learn the ins and outs of this lifestyle.

betterbelly Rookie
betterbelly
Posted
  • Author
You body is clearly telling you that it does not want gluten, please do not go back on it. Figure out what it is that is getting you. Are trying to eat mainstream foods, if so you may want to go to eating foods that are less processed. Are you still consuming alcohol, many of us do not tolerate grain alcohols even though many do. Have you deglutened your home? After getting gluten out of your system you may be reacting to CC. Have you eliminated it from shampoos, toiletries and such? If not now that you are not eating it that may be enough to cause a reaction. Please don't give up, it takes a while to learn the ins and outs of this lifestyle.

Raven

thanks for the words of encouragement. I have been mainly eating at home; and am vigilent about checking labels. I will let you know and thank you for your help!!!

Jprock Newbie
Jprock
Posted
OK

This friday; I'll be gluten free for 2 months. What did happen was that all gas/distended belly and overall uncomfortablness left immediately :) but; starting w/ christmas eve; everything went downhill... Ate bread crumbs by accident - Diarrhea; bad stomach pretty much until 2 days ago; but not until I had a total break down; throwing up; nausea and now my stomach is so sensitive its killing me. My heart feels racey= like i have a fever; but I don't and no it's not panic attacks. I cut out lactose and I don't know what to do; but I just feel like my body is now not tolerating this diet; im losing a lot of weight too... (I'm 5'7 and started at 140- now 130) ANY help is greatly appreciated. And if anyone knows how to reintroduce gluten back ie... what incriments; please post. I am still waiting on blood test about Celiac; but I know the likelyhood of that coming back inconclusively. Thanks in advance and sorry for long post!!! :o

I don't know if you smoke, but just this past weekend I figured out that it was smoking that was making me sick after three months gluten-free and feeling pretty good. I was off work over the holidays, and I smoke more when I'm home. At first, I couldn't figure out what was making me sick until I did some research. Sure enough, there is, or can be, gluten in cigarettes. So, after giving up gluten, casein and soy, I'm now going to give up cigarettes. I've never had this much motivation.

Aerin328 Apprentice
Aerin328
Posted

Celiac disease is a long-term illness that requires long-term healing. If you just went off gluten 2 months ago your body is probably still in quite a tizzy, and even more sensitive to gluten than before. I've read in a couple places it takes 1-2 years for the antibodies to leave the blood and for the immune system to break its self-traumatizing cycle... and as much as this figure seems disheartening, please be assured that it DEFINITELY gets WAY BETTER as time passes. Don't give up hope! Be patient! Going gluten-free is an incredibly difficult challenge - but a necessary one. One that you'll be ecstatic you did in the long run. Right now, I can understand your unsurity. Just hang on! And whenever you waver, we will all be here to support.

God bless,

Christian

ravenwoodglass Mentor
ravenwoodglass
Posted
Sure enough, there is, or can be, gluten in cigarettes.

Unfortunately this is true for some brands. We switched to American Spirit which is an additive free, just tobacco cig. The first one seemed different but the change was effortless and both me and my DH smoke much, much less without even trying. Some brands I always just about chain smoked, it makes me wonder if the addictive nature of the gluten additives had something to do with it.

eleep Enthusiast
eleep
Posted

I think it's important not to rule out the possibility that these can be withdrawal-type symptoms -- gluten is an opiate and the racing heart and stomach stuff can be part of withdrawal as well. I went through something much like this for a few months when I went gluten-free.

I also quit smoking recently myself and the one time I've been glutened since then is when I've had cigarette cravings like never before.

ravenwoodglass Mentor
ravenwoodglass
Posted
Raven

thanks for the words of encouragement. I have been mainly eating at home; and am vigilent about checking labels. I will let you know and thank you for your help!!!

I am glad your checking labels but please be aware that not all companies will tell you about crosscontamination issues and non wheat gluten can be hidden in flavors and seasonings. Especially at first it is a good idea to call and ask about any new item.

Also when you make a purchase of an item that is labeled gluten free be sure to look and see if they make gluten containing items also. A dedicated facility would be nice, complete labels would be nice but unfortunately that is still a ways off. I hope your feeling better and really hope you don't give up. It takes time to heal and sometimes even more time to ferret out sources of gluten CC but it is so worth it in the end. And as another poster mentioned the withdrawl can be hard both emotionally and physically but you will get through it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    2. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    4. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    5. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748
    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.