Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi!

Melanie77

Recommended Posts

Melanie77 Newbie
Melanie77
Posted

hi. ;)

my name is melanie, and this is my first post.

my mother in law actually handed me a magazine article about celiac, and said it could be what is wrong with me. so i have been reading, and she just may be right.

it's so weird to read all of the symptoms and say "wow - this is starting to make sense..."

i am calling tomorrow for an appt with my husband's uncle, he's a gastroenterologist. i should have seen him years ago, but my dr diagnosed me with ibs a few years back.

lately i have been having horrific abdominal pain, but also some gyn issues, so i have been through laparoscopic surgery with my ob-gyn and found out i have adenomyosis, which is like endometriosis, but inside the uterus.

so i thought that was where all my pain was coming from.

but that didn't explain the bouts of upset stomach and terrible terrible gas pain.

i think it's weird what we can get used to when we suffer with it for years ...

so after i read the article, in woman's day, i think, i had another one of my go 'rounds. the cramps woke me up ay 3:15, and i was in the bathroom until 4:45AM. i could hardly breathe, was dizzy and nauseous, pretty much thought i was dying.

not cool.

so i don't want to hope that i have this disease, but gee, it's about time i found out what is wrong with me, and i really have gotten lots of useful information from this board already.

so, thank y'all, and i'll be here reading .... and hopefully will see the dr tomorrow, i mean today, as i can't sleep ...

:rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debmidge Rising Star
debmidge
Posted

Melanie

Hi & welcome to board. When gastro symptoms are present, IBS is a common misdiagnosis. There's nothing like an antigen specific blood test so that's probably what Dr. Uncle will do first (or at least should do - my husband has been to many gastros who didn't know their you know what from their elbows).

The antigen specific blood panel is known as a celiac panel. Quest Diagnostics, a blood test center, even talks about it on their website! They at least know what it is.

This is what the blood test looks for:

Anti-gliaden antibody (IgA and IgG)

Anti-reticulin antibody (ARA)

Anti-tissue transglutaminase (tTG)

Anti-endomysial antibody (EmA)

I got this from the Celiac Sprue Association publication "Living A Full Life" and the pamphlet mentions that these tests measure the immune system's response to gluten. And never start gluten free before these tests or before a small intestine biopsy.

Sometimes a person is just wheat intolerant or has a wheat alergy and the same symptoms as celiac are present. But let's at least rule in or out celiac disease. Even if you Dr. Uncle has no conclusive findings you may at least get symptom relief on a gluten free diet. That can happen too.

One of our board members, Nini, has a "newbie" packet and I'd recommend searching her out to access it over her site.

Best wishes, Deb

Corkdarrr Enthusiast
Corkdarrr
Posted

Welcome to the board!

And let us know how your doctor's appointment goes.

mtdawber Apprentice
mtdawber
Posted

WELCOME!

I'm pretty new as well. This is a great place to learn lots!

I was diagnosed IBS years ago... turns out that wasn't it.....LOL

Jestgar Rising Star
Jestgar
Posted

Hi Melanie! Welcome and good luck with your foray into the world of Celiac. Lots of people here have a wide variety of information and pretty much everyone is friendly. If you have ANY questions, just ask.

Melanie77 Newbie
Melanie77
Posted
  • Author

well, i called my husband's aunt that works in the office, and she said i may need to be referred. so, i called my gp and i have an appt there tomorrow at 3:15.

i will let y'all know what goes down.

:)

Viola 1 Rookie
Viola 1
Posted

Welcome to the forum, we'll certainly be interested to hear how it goes. Good luck with everything.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Melanie77 Newbie
Melanie77
Posted
  • Author

just wanted to let y'all know i have an appt with the gastro on thursday.

:)

Viola 1 Rookie
Viola 1
Posted
just wanted to let y'all know i have an appt with the gastro on thursday.

:)

That's great! I hope you get all the answers you need. Not knowing is the hardest part, once you know you can get on with life and deal with it.

dlp252 Apprentice
dlp252
Posted

Melanie - I some how missed your post when you first posted, so just wanted to say welcome! Hope your appointment goes well and that you get some long awaited answers!

Guhlia Rising Star
Guhlia
Posted

Welcome to the board! I'm glad you were able to get in with your GI so quickly.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748
    PatBurnham
    Newest Member
    PatBurnham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.