Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi!

Melanie77

Recommended Posts

Melanie77 Newbie
Melanie77
Posted

hi. ;)

my name is melanie, and this is my first post.

my mother in law actually handed me a magazine article about celiac, and said it could be what is wrong with me. so i have been reading, and she just may be right.

it's so weird to read all of the symptoms and say "wow - this is starting to make sense..."

i am calling tomorrow for an appt with my husband's uncle, he's a gastroenterologist. i should have seen him years ago, but my dr diagnosed me with ibs a few years back.

lately i have been having horrific abdominal pain, but also some gyn issues, so i have been through laparoscopic surgery with my ob-gyn and found out i have adenomyosis, which is like endometriosis, but inside the uterus.

so i thought that was where all my pain was coming from.

but that didn't explain the bouts of upset stomach and terrible terrible gas pain.

i think it's weird what we can get used to when we suffer with it for years ...

so after i read the article, in woman's day, i think, i had another one of my go 'rounds. the cramps woke me up ay 3:15, and i was in the bathroom until 4:45AM. i could hardly breathe, was dizzy and nauseous, pretty much thought i was dying.

not cool.

so i don't want to hope that i have this disease, but gee, it's about time i found out what is wrong with me, and i really have gotten lots of useful information from this board already.

so, thank y'all, and i'll be here reading .... and hopefully will see the dr tomorrow, i mean today, as i can't sleep ...

:rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debmidge Rising Star
debmidge
Posted

Melanie

Hi & welcome to board. When gastro symptoms are present, IBS is a common misdiagnosis. There's nothing like an antigen specific blood test so that's probably what Dr. Uncle will do first (or at least should do - my husband has been to many gastros who didn't know their you know what from their elbows).

The antigen specific blood panel is known as a celiac panel. Quest Diagnostics, a blood test center, even talks about it on their website! They at least know what it is.

This is what the blood test looks for:

Anti-gliaden antibody (IgA and IgG)

Anti-reticulin antibody (ARA)

Anti-tissue transglutaminase (tTG)

Anti-endomysial antibody (EmA)

I got this from the Celiac Sprue Association publication "Living A Full Life" and the pamphlet mentions that these tests measure the immune system's response to gluten. And never start gluten free before these tests or before a small intestine biopsy.

Sometimes a person is just wheat intolerant or has a wheat alergy and the same symptoms as celiac are present. But let's at least rule in or out celiac disease. Even if you Dr. Uncle has no conclusive findings you may at least get symptom relief on a gluten free diet. That can happen too.

One of our board members, Nini, has a "newbie" packet and I'd recommend searching her out to access it over her site.

Best wishes, Deb

Corkdarrr Enthusiast
Corkdarrr
Posted

Welcome to the board!

And let us know how your doctor's appointment goes.

mtdawber Apprentice
mtdawber
Posted

WELCOME!

I'm pretty new as well. This is a great place to learn lots!

I was diagnosed IBS years ago... turns out that wasn't it.....LOL

Jestgar Rising Star
Jestgar
Posted

Hi Melanie! Welcome and good luck with your foray into the world of Celiac. Lots of people here have a wide variety of information and pretty much everyone is friendly. If you have ANY questions, just ask.

Melanie77 Newbie
Melanie77
Posted
  • Author

well, i called my husband's aunt that works in the office, and she said i may need to be referred. so, i called my gp and i have an appt there tomorrow at 3:15.

i will let y'all know what goes down.

:)

Viola 1 Rookie
Viola 1
Posted

Welcome to the forum, we'll certainly be interested to hear how it goes. Good luck with everything.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Melanie77 Newbie
Melanie77
Posted
  • Author

just wanted to let y'all know i have an appt with the gastro on thursday.

:)

Viola 1 Rookie
Viola 1
Posted
just wanted to let y'all know i have an appt with the gastro on thursday.

:)

That's great! I hope you get all the answers you need. Not knowing is the hardest part, once you know you can get on with life and deal with it.

dlp252 Apprentice
dlp252
Posted

Melanie - I some how missed your post when you first posted, so just wanted to say welcome! Hope your appointment goes well and that you get some long awaited answers!

Guhlia Rising Star
Guhlia
Posted

Welcome to the board! I'm glad you were able to get in with your GI so quickly.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,639
    • Most Online (within 30 mins)
      7,748
    AnnMM
    Newest Member
    AnnMM
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      What foods can trigger a response in people with gluten sensitivity?

      By trents · Posted

      Welcome to the forum, @yellowstone! The most common ones seem to be dairy (casein), oats, eggs, soy and corn. "Formed" meat products (because of the "meat glue" used to hold their shape) is a problem for some. But it can be almost anything on an individual basis as your sensitivity to rice proves, since rice is uncommonly a "cross reactor" for celiacs. Some celiacs seem to not do well with any cereal grains.
    • yellowstone
      What foods can trigger a response in people with gluten sensitivity?

      By yellowstone · Posted

      What foods can trigger a response in people with gluten sensitivity? I've read that there are foods that, although they don't contain gluten, can cause problems for people with gluten sensitivity because they contain proteins similar to gluten that trigger a response in the body. I've seen that other cereals are included: corn, rice... also chicken, casein. I would like to know what other foods can cause this reaction, and if you have more information on the subject, I would like to know about it. Right now, I react very badly to rice and corn. Thank you.
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.