Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi!

Melanie77

Recommended Posts

Melanie77 Newbie
Melanie77
Posted

hi. ;)

my name is melanie, and this is my first post.

my mother in law actually handed me a magazine article about celiac, and said it could be what is wrong with me. so i have been reading, and she just may be right.

it's so weird to read all of the symptoms and say "wow - this is starting to make sense..."

i am calling tomorrow for an appt with my husband's uncle, he's a gastroenterologist. i should have seen him years ago, but my dr diagnosed me with ibs a few years back.

lately i have been having horrific abdominal pain, but also some gyn issues, so i have been through laparoscopic surgery with my ob-gyn and found out i have adenomyosis, which is like endometriosis, but inside the uterus.

so i thought that was where all my pain was coming from.

but that didn't explain the bouts of upset stomach and terrible terrible gas pain.

i think it's weird what we can get used to when we suffer with it for years ...

so after i read the article, in woman's day, i think, i had another one of my go 'rounds. the cramps woke me up ay 3:15, and i was in the bathroom until 4:45AM. i could hardly breathe, was dizzy and nauseous, pretty much thought i was dying.

not cool.

so i don't want to hope that i have this disease, but gee, it's about time i found out what is wrong with me, and i really have gotten lots of useful information from this board already.

so, thank y'all, and i'll be here reading .... and hopefully will see the dr tomorrow, i mean today, as i can't sleep ...

:rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debmidge Rising Star
debmidge
Posted

Melanie

Hi & welcome to board. When gastro symptoms are present, IBS is a common misdiagnosis. There's nothing like an antigen specific blood test so that's probably what Dr. Uncle will do first (or at least should do - my husband has been to many gastros who didn't know their you know what from their elbows).

The antigen specific blood panel is known as a celiac panel. Quest Diagnostics, a blood test center, even talks about it on their website! They at least know what it is.

This is what the blood test looks for:

Anti-gliaden antibody (IgA and IgG)

Anti-reticulin antibody (ARA)

Anti-tissue transglutaminase (tTG)

Anti-endomysial antibody (EmA)

I got this from the Celiac Sprue Association publication "Living A Full Life" and the pamphlet mentions that these tests measure the immune system's response to gluten. And never start gluten free before these tests or before a small intestine biopsy.

Sometimes a person is just wheat intolerant or has a wheat alergy and the same symptoms as celiac are present. But let's at least rule in or out celiac disease. Even if you Dr. Uncle has no conclusive findings you may at least get symptom relief on a gluten free diet. That can happen too.

One of our board members, Nini, has a "newbie" packet and I'd recommend searching her out to access it over her site.

Best wishes, Deb

Corkdarrr Enthusiast
Corkdarrr
Posted

Welcome to the board!

And let us know how your doctor's appointment goes.

mtdawber Apprentice
mtdawber
Posted

WELCOME!

I'm pretty new as well. This is a great place to learn lots!

I was diagnosed IBS years ago... turns out that wasn't it.....LOL

Jestgar Rising Star
Jestgar
Posted

Hi Melanie! Welcome and good luck with your foray into the world of Celiac. Lots of people here have a wide variety of information and pretty much everyone is friendly. If you have ANY questions, just ask.

Melanie77 Newbie
Melanie77
Posted
  • Author

well, i called my husband's aunt that works in the office, and she said i may need to be referred. so, i called my gp and i have an appt there tomorrow at 3:15.

i will let y'all know what goes down.

:)

Viola 1 Rookie
Viola 1
Posted

Welcome to the forum, we'll certainly be interested to hear how it goes. Good luck with everything.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Melanie77 Newbie
Melanie77
Posted
  • Author

just wanted to let y'all know i have an appt with the gastro on thursday.

:)

Viola 1 Rookie
Viola 1
Posted
just wanted to let y'all know i have an appt with the gastro on thursday.

:)

That's great! I hope you get all the answers you need. Not knowing is the hardest part, once you know you can get on with life and deal with it.

dlp252 Apprentice
dlp252
Posted

Melanie - I some how missed your post when you first posted, so just wanted to say welcome! Hope your appointment goes well and that you get some long awaited answers!

Guhlia Rising Star
Guhlia
Posted

Welcome to the board! I'm glad you were able to get in with your GI so quickly.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    2. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    3. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    5. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748
    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.