Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oats


ErraticBinxie

Recommended Posts

ErraticBinxie Explorer

I have always been against eating oats. Just recently, my mom and I found Gluten-free oats and she ate them and she felt fine. I am scared try them though.

I am just wondering how everyone else feels about eating oats.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

This is taken from another post of mine/tarnalberry's on another thread, about the same subject.

Here's what I know, and it seems like there are two issues at hand (this is all simplified, maybe someone else can add more!)

1. Most commercially grown oats (including Quaker) are grow in fields that are rotated with wheat/gluten. So they believe in the processing, wheat can get mixed in, which would explain why some people react to oats. There are some oats (McCann's is one brand) that is purposely grown in non-wheat rotated fields and has been said to be safe, by experts...but others disagree.

go to www.celiac.com and on the right, do a search for "oats" you will see the following articles, plus about 30 more

https://www.celiac.com/st_prod.html?p_prodi...-06106158051.62

https://www.celiac.com/st_prod.html?p_prodi...-06106158051.62

https://www.celiac.com/st_prod.html?p_prodi...-06106158051.62

https://www.celiac.com/st_prod.html?p_prodi...-06106158051.62

2. another thought is along the lines of the fact that the oat protein is structurally similar to the gluten protein, so that is why some react. Other experts say it causes damage in all.

Some people on the board eat uncontaminated oats, and others do not.

and tarnalberry wrote:

"There's a two-fold issue with oats:

1) no mainstream available-in-the-US brand of oats are free of contamination, or have contamination at levels regularly below the 200ppm CODEX standard. there are two companies in the US and one in Canada that grow, mill, and transport gluten-free oats that are not contaminated, but are much more expensive.

2) regardless of contamination, approximately 10% of celiacs react to the oat protein, avenin, with a classic celiac reaction themselves. there is no test to determine if you react to pure oats themselves."

from: Open Original Shared Link

mamaw Community Regular

There are several posts about gluten-free oats. I would not tell newbies to start off eating oats.But I have been as well as a few others eating gluten-free oats for over a year now. I eat only a half cup at one setting. I started out very slowly -- twice a week at first. I would not eat reg. oats. I've been gluten-free for about four years now.

I guess this is an individuals choice to try or not.

I really missed oats so I was glad to have them in my diet again.

mamaw

Rusla Enthusiast

I have the Cream Hill Estates (Lara's rolled oats) and Mcanns Irish oats are okay, no ill effects and I am highly sensitive. I do not recommend eating a whole wad at first or you and the bathroom will becom engaged to each other, because of the high fibre in the oats. They are definitely not cheap but I can have my oats again and all is good.

elisabet Contributor

My son is very sensitve,he eats oats with no reaction,we test him after 3 months of eating oats and every thing is fine.Start with a small amount .

good luck

angel-jd1 Community Regular
I have the Cream Hill Estates (Lara's rolled oats) and Mcanns Irish oats are okay, no ill effects and I am highly sensitive. I do not recommend eating a whole wad at first or you and the bathroom will becom engaged to each other, because of the high fibre in the oats. They are definitely not cheap but I can have my oats again and all is good.

The whole oats debate aside, McCann's oats were found to be contaminated some time ago (with a study done by Gluten Free Living Magazine)

Even on their website they say that they do not guarantee them to be free of contamination:

Are McCann's Oat products gluten free?

All McCann

  • 3 weeks later...
Liz92 Rookie

Oats have something in them very similar to gluten and for some celiacs its not good, like my dad got syptoms from eating oats before wheat and all that other stuff. SO it just depends on the person.

~LIZZIE****


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



larry mac Enthusiast
The whole oats debate aside, McCann's oats were found to be contaminated some time ago (with a study done by Gluten Free Living Magazine) Even on their website they say that they do not guarantee them to be free of contamination:

Hope that helps.,-Jessica :rolleyes:

They would be risking litigation if they did make such a claim. Most companies are not going to leave themselves open to that lind of liability.

best regards, lm

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.