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Can My Symtoms Be Celiac Related?


LLfrom Texas

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LLfrom Texas Newbie

I have been having bad acid belly and acid refux for about 4yrs now. So 4 yrs ago, I went to the Doctor who put me on that little purple pill. It helped a lot. But was very expensive when it first came out, so I later changed. I tried almost all the over counter stuff and was living on it daily (after every meal). I have in the last 2 years put on around 60 lbs. (no explanation why). I am 47 yrs old suffering from mild osteoporosis. Have no energy, my feet hurt, I look as if I am 8 months pregnant (No matter what excersises I do), suffer from yeast and bacterial infections all the time and have had what I thought was adult acne caused by stress or growing older (as a teenager I had beautiful skin no acne). At the doctor last week my blood pressure that was always so low has skyrocketed. The Dr suggested taken me off all gluten and extra sugars. I told him I had all ready been watching my gluten intake and noticed a drastic difference in how I feel when I cut them out. But He seemed to be more worried about diabetis.

Do these symptoms sound familure to you all? I feel they are more in line with Celiac disorders then diabetis. I will go back to the doctor but was wondering if you all could suggest a test I should request on top of his diabetis screen.


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Lisa Mentor

LL

Welcome to the board!

Many of the symptoms that you have described can be attributed to Celiac. Many people often grain weight. In my case, I lost weight.

Diabetes is also associated with Celiac. If you scroll down on this sites home page, there are many article about Celiac Disease and related disorders.

If in fact, you do have Celiac, the only true cure (it is never cured, it is managed). is to be totally gluten free. This also included lipsticks, shampoos, toothpaste and many products have hidden gluten in their ingredients.

Should you or your doctors suggest testing, you must remain on gluten to achieve accurate testing.

We all know how overwhelming it can be in the search for good health.

If you have any question, always feel free to ask.

Nancym Enthusiast

Even if you don't have celiac disease, you could have gluten sensitivity. Probably best to get tested for celiac but even if you don't have positive results, give the diet a good solid try. You might be surprised how great you'll feel!

tiffjake Enthusiast

Welcome! Yes, your symptoms look like some I have seen before! :)

I had terrible GERD (acid reflex) until I went gluten free! I was on THREE medications for it! And it is totally gone now that I am gluten free.

And I think your doctors advice is very interesting. Off of all gluten and sugars? That is what I am doing now, the sugar free part that it is new, and I can not believe how fast I am losing weight!!

Anyway, I do think Celiac would be worth looking in to. If you are already gluten-free, then your blood tests would be off, because the test is looking for anti-bodies, so if you aren't eating any gluten, then your body wouldn't be making the anti-bodies anymore (there is a time lapse, but the point is that if you want to have the blood tests, then you should do it before going gluten free).

If you need help, this board is usually pretty good. It may take a while to hear from people b/c of different schedules getting online (like right now, it is the weekend, and a lot of people get on at work during the week). Hope you are feeling better soon!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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