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Celiac3270's Endo

ryebaby0

By ryebaby0
in Coping with Celiac Disease

Recommended Posts

ryebaby0 Enthusiast
ryebaby0
Posted

Since celiac3270's "firmly gluten-free" thread is getting longgggggg I wanted to bump it to a new page and give everyone a chance to leave our favorite celiac a good thought for a better diagnosis and "going forwad" days after the 'scope coming up. (I knew he would not presume to do this himself :) Knowledge is power, let's hope you get some on the 13th...

joanna

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brehm48 Newbie
brehm48
Posted

Good Luck with the Endo celiac3270!!! :ph34r:

celiac3270 Collaborator
celiac3270
Posted

Thank you! :) .....I've been kinda depressed today with the whole symptoms thing, but it brought a smile to my face to see that post :) .....it's nice to know that you have so many people supporting you. Thanks; I appreciate it.

ponita Newbie
ponita
Posted

Good luck, I'll be thinking of you!

Melissa

rgeelan Apprentice
rgeelan
Posted

Good luck!!!

Canadian Karen Community Regular
Canadian Karen
Posted

celiac3270,

I will definitely be thinking of you the day of your endo..... and sending positive health vibes your way...... I will also say a prayer that this will give you the answers you need to get on the road to recovery......

Hugs,

Karen

Guest jhmom
Guest jhmom
Posted

celiac3270,

Good luck! You are in my thoughts and prayers! Please let us know how things are going. :D

I too am having an Endoscopy, mine is on the 14th and I am also having some gall bladder studies ran this week (hopefully). ;)

Take care

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Sherquilts Newbie
Sherquilts
Posted

Even though I am new here I wanted to send by best wishes and good luck. I will remember you in my prayers.

Sheryl

tarnalberry Community Regular
tarnalberry
Posted

I forgot it was coming up so soon. Good luck! (I admit to being confused at first, because I'm used to 'endo' being used to mean endometriosis, a gyn condition, and ... well, was just very confused. ;-) )

celiac3270 Collaborator
celiac3270
Posted

Thank you so much for all your thoughts and prayers........I'll think of you on the 14th, Stacie......and I'll think of all of you thinking of me on the thirteenth :D

j9n Contributor
j9n
Posted

Good luck celiac3270 and Stacie!

Pegster Apprentice
Pegster
Posted

celiac3270 is my favorite Celiac. I can't believe how much I (a teacher) am learning from this guy! Best wishes and good luck!

Alexolua Explorer
Alexolua
Posted

Yeah Pegster, I agree. celiac3270 is a smart kid! Hard working too when it comes to helping others on here. =)

Good luck with everything celiac3270. =D

Guest ~wAvE WeT sAnD~
Guest ~wAvE WeT sAnD~
Posted

Good luck, celiac3270!!! :D

Thomas Apprentice
Thomas
Posted

Good luck celiac3270!!

debmidge Rising Star
debmidge
Posted

Good luck celiac3270! Let us know how you made out, etc.

Deb

Carriefaith Enthusiast
Carriefaith
Posted

I hope everything goes well with you on the 13th. Good luck and I hope for good news!

-Carrie

gf4life Enthusiast
gf4life
Posted

celiac3270,

You are in my prayers. Monday just can't come soon enough! Looking forward to hearing what comes from your endoscopy. I know that you need answers and I hope that you get them. But most of all I hope that you are able to feel better soon. You are a great inspiration to so many of us here and I'm sure we all agree that it will be great for you to be pain free and symptom free. Look at all that you have accomplished while suffering. Imagine what you will be able to do when you are completely healthy! :D

Let us know how it goes. You too Stacie! Good luck to you on the 14th!

God bless,

Mariann

terri Contributor
terri
Posted

Good luck with the Endoscopy celiac3270!

celiac3270 Collaborator
celiac3270
Posted

Thanks again, everyone :) .....I am even more happy that I'm going to get this done Monday, now. Like Mariann said, "Monday just can't come soon enough". In the past I got abdominal pains and vomiting...once every 3-7 days......now, for the past seven days, I have had abdominal pains -- not much vomiting -- a little last night, but I'm not used to seven days in a row feeling sick....since it's getting worse, I'm really glad that I'll get this checked out. This is a big year for me--there's a mandatory shakespeare play thing, which requires a lot of time and is a really big and stressful process..........even more, I have to apply for highschool (tedious forms to fill out, many essays to write, SSATs, other exams that different schools want, and most importantly, interviews and tours that I can't be sick for :( .......etc.).........so I really want to get this straightened out....at least if I find out what's wrong with me, I can maybe get some sort of medication to ease the symptoms or something..........but thank you all sincerely for your thoughts and well-wishes for not only the endoscopy, but answers and elimination of symptoms :D . School starts tomorrow for me and will drastically slow down my postings, but I will make sure I tell you what happens with the scope and results...

-celiac3270

CarolynM Newbie
CarolynM
Posted

Know we are with you in spirit. I will keep your health and education in my prayers. Try not to stress, easier said than done, about school issues - I wonder if the stress is flaring things up. I hope you get some answers.

celiac3270 Collaborator
celiac3270
Posted

The first day of school was great -- and the second, today...........I'm getting back in my study-nerd-workaholic mode without any trouble..lol :D ...anyway, in my school of about 320, there were three celiacs. One kid who is three years younger than I am (gluten-free over a year), a kid who was in the eighth grade last year and is now at some secondary school, and then, obviously, there's myself. The teacher that that celiac had last year is now my teacher, so he slightly understands the limitations of celiac disease.........

Oh, the reason I posted. I found out that the biopsy is at 11:30. I need to be at the hospital by 9:30 and no food after midnight before the endo....then clear liquids including water and apple juice are allowed until 7:30. So, that's the time slot now. I got assignments from my teachers for Monday cause I don't want to have to make up a lot of work or call people and do work after the endo. I want to get all my stuff done this weekend so that Monday I can just lie around and relax and post..... :D when I finish. I'll post when I get home. Thanks again for your support.

-celiac3270

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

"study-nerd-workaholic mode"

I noticed.

Hahahaha.

I wish I knew if there were other Celiacs on my campus.

tarnalberry Community Regular
tarnalberry
Posted

Wow, celiac3270, that's great that they know what you're dealing with! (Well, I hope - we've heard stories of celiacs who... aren't well enough informed for their own good on this board. ;-) )

Canadian Karen Community Regular
Canadian Karen
Posted

Hi celiac3270!

It's good to read about you getting back into "the swing of things". I have a feeling that you thrive on learning!!!

Thinking of you and wishing you luck on Monday......

Karen

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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