Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Likely Is It?

Guhlia

Recommended Posts

Guhlia Rising Star
Guhlia
Posted

I was diagnosed with Celiac three years ago. My husband reluctantly went gluten free after glutening me with his bread crumbs about a year ago. He has since remained gluten free in the house, but occasionally he has glutenous goodies when he goes out. He works from home so he spends the majority of his time here at home. Lately I've been getting more and more sensitive to miniscule amounts of gluten, so I've been really paranoid about it. I always ask my husband if he's eaten any gluten when he comes home so I know whether or not I can kiss him or whatever. Anyway, since I've been asking him about gluten I've noticed a pattern with his eating/mood. He gets REALLY irritable a day or two after he's had gluten. He, of course, sees no such pattern and gets angry when I try to bring it up. I really think he should be tested for Celiac Disease, but has he been eating enough gluten to produce positive test results even on Enterolab? He's really against getting tested, but I'm about ready to just order the kit and make him do it. I don't know how many more heated fights I can handle all because he's "gluten grumpy". He understands all of the perils of eating gluten with Celiac, but still refuses to even be tested.

His symptoms, if you want to call them that, include excessive exhaustion, irritability, he appears to get sick a lot more than he used to, smelly gas (but not overly frequent), ADD symptoms, horrible mood swings, NO patience whatsoever anymore with anyone, unexplainable weight mostly in belly (he doesn't overeat), NO butt anymore, horrible memory both short term and long term (maybe brain fog?)... I'm sure there are others, but I can't think of any. He's also very short, 5'5", and of European decent.

What should I do? He gets really angry when I bring it up. Maybe because he knows he has a problem. I don't know. I don't want to start a fight, but I really want him to stay healthy. Any suggestions? Oh, he also says that I think that everyone has Celiac. It's going to be a tough battle if I decide to pursue testing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lonewolf Collaborator
lonewolf
Posted

Your hubby sounds very similar to mine. He can't/won't see that he might have a problem too. He KNOWS the kids got their "bad genes" from me and he also says that I think everyone either has Celiac or gluten intolerance. Funny thing is, he's always telling me about people at work that he's sure must have problems with gluten because of different symptoms, but he's blind to his own.

Sorry I have no advice for you. He's an adult and has to make those decisions. I WILL be watching this thread to see if anyone else has helpful advice though - I'd love to get my hubby (and his whole family, actually) tested at least through Enterolab.

Kaycee Collaborator
Kaycee
Posted
His symptoms, if you want to call them that, include excessive exhaustion, irritability, he appears to get sick a lot more than he used to, smelly gas (but not overly frequent), ADD symptoms, horrible mood swings, NO patience whatsoever anymore with anyone, unexplainable weight mostly in belly (he doesn't overeat), NO butt anymore, horrible memory both short term and long term (maybe brain fog?)... I'm sure there are others, but I can't think of any. He's also very short, 5'5", and of European decent.

Guhlia, you could be describing my husband! I like you do wonder as well, but have decided to leave it at that for the sake of peace.

I am a worry wart at best and I seem to take a big interest in his health, at times I think I overdo it, and maybe it is me with the problem, not him.

There is a chance that your husband could have problems with gluten, but it might not be coeliac, but then it could be. What I would be interested in would be whether people who have gone gluten free for support for their partner or for any reason whether when they do eat gluten do they have a problem with it? It could be your husband's body is not used to digesting gluten and that is where he has problems. I'm not sure this is the thing, but maybe someone else can enlighten you on this.

Cathy

mamaw Community Regular
mamaw
Posted

Hi Angie

I tend to agree with you about your soulmate....But I think men don't want to hear they have a problem with anything. I don't think they have very good coping skills to deal with medical stuff...And then there's the man thing-- to macho to have this or that....I wonder what the ratio men to women having celiacs?????

Another thought, do you think that he is more sensitive to wheat since he doesn't have it all the time? I know I have a problem with certain nuts when I don't have them on a reg basis but if I eat them everyday my symptoms goes away.

Hope you can get him tested & he comes around. My hubby always says this wheat & gluten thing is from my side of the family--- like his is perfect!!!!!Oh well, gotta love them as they are.....

good luck

mamaw

prinsessa Contributor
prinsessa
Posted

I also have a feeling that my DH has some kind of gluten intolerance. He denys that he has any stomach problems. After being married to someone for a while you start to notice things. Like he will go to the bathroom 3-4 times some days. And he has light colored loose stools. And he also has really dark circles under his eyes. He thinks it is normal to spend long periods of time in the bathroom several times a day. I was also spending much more time in the bathroom before going gluten free. I just wish he would consider getting tested. Diabetes runs in both sides of his family (type 1 and 2). I'm just worried about his health.

CMCM Rising Star
CMCM
Posted

Since I got a celiac gene from my mom and a gluten sensitive gene from my dad, I knew my son would be given one of these. I had him tested and guess what.....he got my celiac gene, and from my husband he got a gluten sensitive gene (a different type than the one I have). So now we don't know what my husband's 2nd gene is....but at the very least, he has the one gene.

As I said in another thread, I just read the new 2007 book "The Gluten Connection" by Shari Lieberman, and on p. 6 she notes that about 81% of Americans are thought to have a genetic disposition towards gluten sensitivity.

All the reading I've done on this and the effect of eating gluten grains, I really believe a HUGE percent of our modern health woes can be traced to eating gluten. This stuff is poison and not suited for the human digestive system. :(

tarnalberry Community Regular
tarnalberry
Posted

It sounds like he should be tested. I'd flat out ask him, "Why the heck are you SOOO adimantly opposed to being tested? There's no need to get b%$@#y about me talking about the subject, so let's have a productive situation on something that I see as a serious problem."

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 weeks later...
Guhlia Rising Star
Guhlia
Posted
  • Author

We can't go to our family doctor due to private insurance. Our rates are already outrageous because of x-rays and my being pregnant. They just keep raising them over and over again. Anyway, what do you guys think the chance of him testing positive on Enterolab would be? He eats very little gluten, sometimes he'll go weeks without it. When he does eat it, it's usually a very small amount like a handful of pretzels or a candy bar with gluten in it. It's not like he eats sandwiches or breaded food. He's been mostly gluten free for quite some time now, probably over a year, but I can't say for sure.

We currently have the whole kit from Enterolab for my daughter, though we haven't done it yet. Will I know from her gene test whether or not he carries a gene? I don't know how all that works.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    2. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    3. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    4. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
    5. KathyR37
      - KathyR37 posted a topic in Coping with Celiac Disease
      3

      New here

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,812
    • Most Online (within 30 mins)
      7,748
    Papa Emeritus 79
    Newest Member
    Papa Emeritus 79
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.