Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's That Lab That Does Fecal Testing?


vampella

Recommended Posts

vampella Contributor

I want to get Emmah tested through them, I know they ship to canada I talked to them once but I can't remember who they are.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



vampella Contributor

I found the name, but are they for real? am I waisting my money?

happygirl Collaborator

Enterolab is who you are talking about, I believe.

www.enterolab.com

happygirl Collaborator

You will find three camps of people on here:

those who love it, because it has given them a diagnosis, and for many, has improved their life dramatically

those in the middle, who aren't quite sure what to think, and acknowledge that it might be correct, but seem skeptical for various reasons (his studies and methods are not published)

those who think its worthless (most of the medical profession feels this way)

I know---that doesn't help very much, but that is what it boils down to, in my opinion.

Nancym Enthusiast

Well said, Happy!

I'm in Category #1.

tarnalberry Community Regular

ditto what happy said - and I'm in camp 2. I'd add that while some doctors will accept the results, most won't - but it doesn't really matter because you don't need a doctor's prescription to go gluten free!

celiacgirls Apprentice

I'm in Camp #1.

One of my daughters had GI symptoms and tested positive with Enterolab and negative with the regular blood tests.

My other daughter and I didn't have GI symptoms but tested positive with Enterolab and feel much happier gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stef-the-kicking-cuty Enthusiast

I didn't get tested myself with EnteroLab, but I will get my baby tested with them for sure. I mostly heard good stuff and the doctors around here suck. So there are not many other options.

Hugs, Stef

hathor Contributor

Part of the problem is how many doctors define the problem. If they believe that the only problem that can exist is celiac disease and it is defined as damage to the small intestine, any testing prior to that point establishes nothing. The fecal testing, in theory, can catch a reaction prior to observable damage.

How Dr. Fine of Enterolab describes the situation:

Open Original Shared Link

A description by someone else:

Open Original Shared Link

I tried researching this subject and this was what I found. There was some discussion a few years ago where people thought Dr. Fine was about to publish but then he didn't. Perhaps he feels no need to or he is enjoying his monopoly :rolleyes:

I've decided to do the testing. Indeed, I have the lovely little package in my freezer waiting to be shipped tomorrow.

I figure that if I feel better going gluten-free and something does indeed show up in the testing, then I'm not fooling myself. I don't need an official diagnosis to avoid foods I find troublesome.

Enterolab also does testing for milk, egg, soy, and yeast sensitivities and the presence of genes associated with celiac disease.

Rachel--24 Collaborator

Hi,

I was tested through Enterolab about 17 months ago.

I used to be in Camp #1.....GO ENTEROLAB!! :D

I've since switched to Camp # 2.....for all of the reasons previously mentioned.

I'm just not so sure anymore and have been waiting for him to publish...and still waiting. <_<

e&j0304 Enthusiast

Since you already have your ped. on your side I would NOT waste money on Enterolab. You have positive dietary response and since you already tried the blood tests that's all you can do. I tested both of my kids through Enterolab and wish that I wouldn't have. My daughter's came back positive and my son's came back negative. They BOTH have issues with gluten and I honestly think that my son's symptoms are more severe than my daughter's. He has total blowouts of watery diarrhea while eating gluten and it clears up on the diet. He also suffers terribly from reflux.

I am not trying to tell you what to do, but I REALLY think it's a waste of money. Unless he publishes anytime soon you will keep questioning if he's really valid, if you're anything like me anyway! I'm all for trying to get a proper medical diagnosis, but if you can't get one then just do the diet. I have yet to really find any drs. who fully believe in Enterolab....

Good luck with whatever you decide.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.