Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Think?


janelyb

Recommended Posts

janelyb Enthusiast

My friend's baby seems not to tollerate most foods. When she was a newborn and my friend was breaskfeeding the baby reacted negatively to protien food like meats, wheat,dairy,corn,egg..etc....

And baby decided to wean herself off mamma milk so my friend gave her formula, then she switched to the hypo- allergenic one for a few months. Now she is on carnation good start.

The baby is 6-7 months old and seems to be reacting negatively to rice,oatmeal,some fruits.

She is a very fussy baby, gassy, gets a diaper/allergy rash ring on her bum when eats an offending food. She also has GERD/Refulx.

My friend took her to an alternative doc and did some muscle response testing and she came back allergic to just about everything.

My friend wants some testing done but doesn't want to expose her to the food before the test.

She wants to know what grain can she have???

Oatmeal is out and with Rice cereal she gets extremely constipated, even with just 1 tsp mixed with a jar of fruit in a day.

She also seems to be allergic to peas & bananas..And other fruits she has tried go through her fast.

Anyone have some advice I can send her, please email me.

Janel


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

at six months, it may just be too early for most foods. her digestive system may need more time to develop.

janelyb Enthusiast
at six months, it may just be too early for most foods. her digestive system may need more time to develop.

I tired to tell her that but she says her baby screams and gets really mad if she isn't also eatting baby foods...she eats 3 meals a day along with her formula...she's 7 months old now. She says the baby wants to eat from a spoon more than a bottle, she often refuses her bottles.

I personally think my friend introduced solids too early knowing her baby has possible food allergies.

wowzer Community Regular

If a six month old baby is reacting that badly to foods, I would just give the baby formula. There is enough nutrition in formula to keep them healthy and growing until they are 4 years old. I wouldn't rush solids. The baby's reactions are saying I'm not ready for this. I didn't start feeding my son solids until he was 9 months old and then took it very slow. He was and still is allergic to lactose. I'm sure that I have so many allergies because I was fed solids too soon. My baby book said I had orange juice at 6 weeks old! I can't drink too much of it to this day. I wish your friend luck. I definitely would tell her not to push solids at this time.

janelyb Enthusiast
If a six month old baby is reacting that badly to foods, I would just give the baby formula. There is enough nutrition in formula to keep them healthy and growing until they are 4 years old. I wouldn't rush solids. The baby's reactions are saying I'm not ready for this. I didn't start feeding my son solids until he was 9 months old and then took it very slow. He was and still is allergic to lactose. I'm sure that I have so many allergies because I was fed solids too soon. My baby book said I had orange juice at 6 weeks old! I can't drink too much of it to this day. I wish your friend luck. I definitely would tell her not to push solids at this time.

That's the advise I give her but she isn't taking it. However she keeps asking me for advise on the topic. She says she can't not give her baby food, the baby is wanting it so badly...I give up don't know what else to say to her.

lovegrov Collaborator

Just my opinion, but I don't think I'd put much stock in the muscle response testing, especially not on a 6-month-old.

richard

chrissy Collaborator

janel, two possibilities that come to mind are either an eosinophilic problem, or a condition called FPIES---food protein induced enterocolitis syndrome.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wowzer Community Regular

Just a thought, maybe you should show your friends these posts. It couldn't hurt. I feel sorry for that little baby.

janelyb Enthusiast
janel, two possibilities that come to mind are either an eosinophilic problem, or a condition called FPIES---food protein induced enterocolitis syndrome.

Can you reffer me to some sites that will better explain what this is?

janelyb Enthusiast
Just a thought, maybe you should show your friends these posts. It couldn't hurt. I feel sorry for that little baby.

I have been verbally telling her everyone's responses because with 2 kids and 1 on the way she has little to no internet time anymore. I'm sad to say she is not gonna take the advise that everyone is offering thus far. I totally agree with many of you she should stop solids. I'm just very fustrated because she calls me often and asks for advise on this topic but doesn't take the advise given.

kirbymom Newbie

Is your friend a celiac as well? This sounds very much like my friend's daugher (friend is celiac, her hubby is IBS). The child has no IgA, multiple food sensitivities (wheat, soy, egg) and allergies (milk, peanuts, tree nuts, sesame) and a genetic fructose-sucrose sensitivity causing lack of a certain enzyme (therefore no sugar, fruit, high sugar veggies, or sorbitol).

janelyb Enthusiast
Is your friend a celiac as well? This sounds very much like my friend's daugher (friend is celiac, her hubby is IBS). The child has no IgA, multiple food sensitivities (wheat, soy, egg) and allergies (milk, peanuts, tree nuts, sesame) and a genetic fructose-sucrose sensitivity causing lack of a certain enzyme (therefore no sugar, fruit, high sugar veggies, or sorbitol).

Not that I know of. But my friend does have IBS and some food allergies like she's allergic to melon.

Is IBS related to celiac or wheat intollerantcy?

tarnalberry Community Regular
I have been verbally telling her everyone's responses because with 2 kids and 1 on the way she has little to no internet time anymore. I'm sad to say she is not gonna take the advise that everyone is offering thus far. I totally agree with many of you she should stop solids. I'm just very fustrated because she calls me often and asks for advise on this topic but doesn't take the advise given.

Perhaps it's time to say "I've given all the advice I can give. I understand that you are looking for a different answer, but I don't have a different answer to give, so please stop asking." (or time to just stop giving advise even when asked...) There's only so much you can do.

tarnalberry Community Regular
Not that I know of. But my friend does have IBS and some food allergies like she's allergic to melon.

Is IBS related to celiac or wheat intollerantcy?

IBS is one of the most common mis-diagnoses of celiac.

janelyb Enthusiast
IBS is one of the most common mis-diagnoses of celiac.

I will be sure to let her know along with my mother in law who has IBS as well.

And I hate to sound harsh to her but I agree next time she asks for advise I will be blunt and tell her I have given you my advise and it's still the same.

chrissy Collaborator

janel----i don't know a whole lot about the conditions i mentioned, but one of my friends has a child with FPIES and i know she would be happy to talk to either you or your friend. i will have her give me some sites and pm her e-mail addy to you tomorrow----if i happen to forget, send me a pm. (i have memory problems sometimes)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,963
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.