Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Think?


janelyb

Recommended Posts

janelyb Enthusiast

My friend's baby seems not to tollerate most foods. When she was a newborn and my friend was breaskfeeding the baby reacted negatively to protien food like meats, wheat,dairy,corn,egg..etc....

And baby decided to wean herself off mamma milk so my friend gave her formula, then she switched to the hypo- allergenic one for a few months. Now she is on carnation good start.

The baby is 6-7 months old and seems to be reacting negatively to rice,oatmeal,some fruits.

She is a very fussy baby, gassy, gets a diaper/allergy rash ring on her bum when eats an offending food. She also has GERD/Refulx.

My friend took her to an alternative doc and did some muscle response testing and she came back allergic to just about everything.

My friend wants some testing done but doesn't want to expose her to the food before the test.

She wants to know what grain can she have???

Oatmeal is out and with Rice cereal she gets extremely constipated, even with just 1 tsp mixed with a jar of fruit in a day.

She also seems to be allergic to peas & bananas..And other fruits she has tried go through her fast.

Anyone have some advice I can send her, please email me.

Janel


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

at six months, it may just be too early for most foods. her digestive system may need more time to develop.

janelyb Enthusiast
at six months, it may just be too early for most foods. her digestive system may need more time to develop.

I tired to tell her that but she says her baby screams and gets really mad if she isn't also eatting baby foods...she eats 3 meals a day along with her formula...she's 7 months old now. She says the baby wants to eat from a spoon more than a bottle, she often refuses her bottles.

I personally think my friend introduced solids too early knowing her baby has possible food allergies.

wowzer Community Regular

If a six month old baby is reacting that badly to foods, I would just give the baby formula. There is enough nutrition in formula to keep them healthy and growing until they are 4 years old. I wouldn't rush solids. The baby's reactions are saying I'm not ready for this. I didn't start feeding my son solids until he was 9 months old and then took it very slow. He was and still is allergic to lactose. I'm sure that I have so many allergies because I was fed solids too soon. My baby book said I had orange juice at 6 weeks old! I can't drink too much of it to this day. I wish your friend luck. I definitely would tell her not to push solids at this time.

janelyb Enthusiast
If a six month old baby is reacting that badly to foods, I would just give the baby formula. There is enough nutrition in formula to keep them healthy and growing until they are 4 years old. I wouldn't rush solids. The baby's reactions are saying I'm not ready for this. I didn't start feeding my son solids until he was 9 months old and then took it very slow. He was and still is allergic to lactose. I'm sure that I have so many allergies because I was fed solids too soon. My baby book said I had orange juice at 6 weeks old! I can't drink too much of it to this day. I wish your friend luck. I definitely would tell her not to push solids at this time.

That's the advise I give her but she isn't taking it. However she keeps asking me for advise on the topic. She says she can't not give her baby food, the baby is wanting it so badly...I give up don't know what else to say to her.

lovegrov Collaborator

Just my opinion, but I don't think I'd put much stock in the muscle response testing, especially not on a 6-month-old.

richard

chrissy Collaborator

janel, two possibilities that come to mind are either an eosinophilic problem, or a condition called FPIES---food protein induced enterocolitis syndrome.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wowzer Community Regular

Just a thought, maybe you should show your friends these posts. It couldn't hurt. I feel sorry for that little baby.

janelyb Enthusiast
janel, two possibilities that come to mind are either an eosinophilic problem, or a condition called FPIES---food protein induced enterocolitis syndrome.

Can you reffer me to some sites that will better explain what this is?

janelyb Enthusiast
Just a thought, maybe you should show your friends these posts. It couldn't hurt. I feel sorry for that little baby.

I have been verbally telling her everyone's responses because with 2 kids and 1 on the way she has little to no internet time anymore. I'm sad to say she is not gonna take the advise that everyone is offering thus far. I totally agree with many of you she should stop solids. I'm just very fustrated because she calls me often and asks for advise on this topic but doesn't take the advise given.

kirbymom Newbie

Is your friend a celiac as well? This sounds very much like my friend's daugher (friend is celiac, her hubby is IBS). The child has no IgA, multiple food sensitivities (wheat, soy, egg) and allergies (milk, peanuts, tree nuts, sesame) and a genetic fructose-sucrose sensitivity causing lack of a certain enzyme (therefore no sugar, fruit, high sugar veggies, or sorbitol).

janelyb Enthusiast
Is your friend a celiac as well? This sounds very much like my friend's daugher (friend is celiac, her hubby is IBS). The child has no IgA, multiple food sensitivities (wheat, soy, egg) and allergies (milk, peanuts, tree nuts, sesame) and a genetic fructose-sucrose sensitivity causing lack of a certain enzyme (therefore no sugar, fruit, high sugar veggies, or sorbitol).

Not that I know of. But my friend does have IBS and some food allergies like she's allergic to melon.

Is IBS related to celiac or wheat intollerantcy?

tarnalberry Community Regular
I have been verbally telling her everyone's responses because with 2 kids and 1 on the way she has little to no internet time anymore. I'm sad to say she is not gonna take the advise that everyone is offering thus far. I totally agree with many of you she should stop solids. I'm just very fustrated because she calls me often and asks for advise on this topic but doesn't take the advise given.

Perhaps it's time to say "I've given all the advice I can give. I understand that you are looking for a different answer, but I don't have a different answer to give, so please stop asking." (or time to just stop giving advise even when asked...) There's only so much you can do.

tarnalberry Community Regular
Not that I know of. But my friend does have IBS and some food allergies like she's allergic to melon.

Is IBS related to celiac or wheat intollerantcy?

IBS is one of the most common mis-diagnoses of celiac.

janelyb Enthusiast
IBS is one of the most common mis-diagnoses of celiac.

I will be sure to let her know along with my mother in law who has IBS as well.

And I hate to sound harsh to her but I agree next time she asks for advise I will be blunt and tell her I have given you my advise and it's still the same.

chrissy Collaborator

janel----i don't know a whole lot about the conditions i mentioned, but one of my friends has a child with FPIES and i know she would be happy to talk to either you or your friend. i will have her give me some sites and pm her e-mail addy to you tomorrow----if i happen to forget, send me a pm. (i have memory problems sometimes)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.