Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Underweight/Overweight?


Mballerina

Which are you?  

41 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

Mballerina Explorer

This is a poll to get an idea for psychological research that is badly needed on the psychological issues and workings of celiac disease and further make clear that it is not simply a gastrological disease.

Thank you for your help!

Sorry, if you stayed the same just reply and right "stayed the same"

Otherwise for your body shape and size you either went up or down. Just use your best judgement. This is not scientific, it is just the first poll to get and idea of which direction to go in.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mydnyt Newbie

Hmm. how about another response...

I was anywhere between a size 10 and 12, healthy weight for my height etc, but with an extra inch or two just from bloating. Having gone gluten-free, dropped the bloating, and now a size 9/10 (smallest I've been in my life), but hell of alot healthier.

Essentially, I wasn't over or underweight, just carrying alot of 'bloat'.

burdee Enthusiast

I think celiac disease is a gastrointestinal disease affecting the whole body with psychological ramifications. Long undiagnosed, even painful symptoms can make anybody confused, desperate, anxious and depressed. I believe lack of knowledge by medical 'experts', years of misdiagnoses from doctors who discount celiac disease symptoms, and needless suffering for undiagnosed celiacs influence many extreme but very logical emotional responses to unfair, terrible treatment by doctors. Furthermore having a bloated belly in a society that esteems small waists and flat tummies and embarrassing bowel symptoms like gas and diarrhea in a society that considers bathroom habits shameful makes understanding or even describing those symptoms difficult to say the least.

However, studies about opiate peptides from gluten digests which affect brain chemistry as well as 'brain fog' symptoms from gluten ingestion do suggest some psychological as well as physiological symptoms from celiac disease. Nevertheless, I believe the psychological is directly related to, rather than independent of, physiological symptoms of celiac disease.

BURDEE

tarnalberry Community Regular

Doh! You don't have a category for being neither under- nor over-weight! That would be me.

strack2004 Rookie

I, too, do not fit the given categories. I put myself down as overweight and losing weight after going gluten-free. However, I weighed 140 on the clinic scales when I went gluten-free. I am 6'61/2" tall. The dietician felt I should not lose anymore. I had alread lost some 20 lbs. pretty much eating gluten-free except for eating bread and macaroni, noodles, etc. while still planning to get the biopsies. Last week I weighed 134labs. on clinic scales. Don't know what category that really puts me in. I don't really feel I am underweight, but am not sure 140 lbs. was overweight either. Ruth

P.S. I gained a couple lbs. when I went off the wagon a couple of times while I had company two weeks ago, but promptly lost them again. So I know I can gain weight if I want to.

Carriefaith Enthusiast

When I was really sick last November I was 112 pounds (I'm 5'6.5). After my diagnosis in March I was told that I was underweight. Now after 6 months of being gluten free I am 120 pounds give or take 2 pounds. So I've gained almost 10 pounds and I am a "normal" weight again.

-Carrie

celiac3270 Collaborator

January of this year (pre-gluten-free): 5' and 70 pounds (around my 13th b-day)

Summer of this year (gluten-free): 5'1" and 80 pounds

Good that I gained 10 pounds......not good cause I'm supposed to be really growing around age 13-14........and I'm in the same percentile for weight


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 6 years later...
sallyb Newbie

I had been working out and lost 20 pounds and then after diagnosis I have gained 8 pounds back from diet and lack of exercise. I am currentley working out 5 days a week again and am starting to lose the weight again. Either way life has dramaticallly improved in so many ways that weight is not really to much of a priority. Just staying healthy.

This is a poll to get an idea for psychological research that is badly needed on the psychological issues and workings of celiac disease and further make clear that it is not simply a gastrological disease.

Thank you for your help!

Sorry, if you stayed the same just reply and right "stayed the same"

Otherwise for your body shape and size you either went up or down. Just use your best judgement. This is not scientific, it is just the first poll to get and idea of which direction to go in.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,193
    • Most Online (within 30 mins)
      7,748

    Loiswxm333
    Newest Member
    Loiswxm333
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.