Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Luke's Enterolab Results--help!

Luvs to Scrap

Recommended Posts

Luvs to Scrap Apprentice
Luvs to Scrap
Posted

Luke has been gluten-free since last June from a blood test. After doing more blood work in Aug and then the pediatrician wanting us to but Luke back on a regular diet for 6 months to see how sick he got and then do the scope we decided to save up for Enterolab. We just got his results back last night and I think I know what they mean but I want to make sure.

Fecal Antigliadin IgA 20 units

Fecal Antitissue Transglutaminase IgA 11 units

Quantitative Microscopic Fecal Fat Score <300

Fecal anti-casein (cow's milk) IgA antibody 31 units

HLA-DQB1 Molecular analysis, Allele 1 0301

HLA-DQB1 Molecular analysis, Allel 2 06xx

Serologic equivalent HLA-DQ 3-1 (subtype 7,6)

Fecal anti-ovalbumin (chicken egg) IgA antibody 7 units

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 10 units

Fecal Anti-Soy IgA 28 units

normal range for all units is supposed to be <10

The gluten results don't surprise me--just confirm what we have been doing and since he doesn't have malabsorption issues maybe being on a gluten-free diet helped that. I had sort of figured out the soy while we were waiting for the results. Casein is what is freaking me out. Also, does that also mean we need to avoid yeast? To me the results mean he is intollerant to gluten, casein, soy and maybe yeast. And at some point I need to be tested to since I contributed on of is DQB1 genes. My bloodwork this summer turned up normal. My DH has been on the gluten-free diet since Oct 2005. His grandma has celiac and DH was the first one we did the bloodwork on.

I am on the Enterolab site ordering the same tests for Kirsten, my DD, who had elevated levels when we did bloodwork but they were still in the normal range. Gut feeling is that she will have similar labs results as Luke. She will be 2 on Jan 31st so hoping we can get results with her this young.

Ok, I thought gluten-free was a big challenge but I have been figuring that out. Soy is hidden in everything but I discovered as I started looking this month. We will have to eliminate his gluten-free animal cookies, pretzels, and some other commercial stuff but I haven't been using it when I bake. My big hurdle is casesin. Luke has been off milk but I have still been using cheese, half and half and buttermilk for cooking. Now I will need to find substiutes. He loves cheese and the gluten-free pizza I have been making and mac and cheese. The casein intollerance makes me feel like our life is ending! Help! :o

DH wants to know if casein and soy intollerances are lifelong like gluten or just for awhile. I told him I thought lifelong--am I right? Hopefully not!

Anyway, thanks in advance for your help and prayers! :) Kendra

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

When I gave up dairy I found it was just easier to try to give up all the "old" foods and not try to substitute for them. It just means finding new favorite foods that don't involve cheese, milk, etc. That was easier to do than live with the disappointment of new foods not tasting as well with weird substitutions. I think it was also easier in some regards because I wasn't constantly reminding myself of what I was missing.

So for me, SE Asian cooking was a great fit (Thai, Vietnamese). They don't use much wheat or dairy. I realize that might be harder to do with kids. But you could go through the family meals and try to figure out which ones don't use any of the forbidden ingredients and then slowly increase your collection of gluten-free/CF recipes. There are a lot of kids eating gluten-free/CF so I bet you'll find tons of recipes online.

Luvs to Scrap Apprentice
Luvs to Scrap
Posted
  • Author
When I gave up dairy I found it was just easier to try to give up all the "old" foods and not try to substitute for them. It just means finding new favorite foods that don't involve cheese, milk, etc. That was easier to do than live with the disappointment of new foods not tasting as well with weird substitutions. I think it was also easier in some regards because I wasn't constantly reminding myself of what I was missing.

So for me, SE Asian cooking was a great fit (Thai, Vietnamese). They don't use much wheat or dairy. I realize that might be harder to do with kids. But you could go through the family meals and try to figure out which ones don't use any of the forbidden ingredients and then slowly increase your collection of gluten-free/CF recipes. There are a lot of kids eating gluten-free/CF so I bet you'll find tons of recipes online.

Thanks for your encouragement, Nancy. DH said that we do eat some stuff already that will work so I asked him to mention them as he thinks of them so I won't feel so overwhelmed and can make a list of ok things I already know how to make.

:) Kendra

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,694
    • Most Online (within 30 mins)
      7,748
    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.