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Results Tomorrow

Robiond19

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Robiond19 Newbie
Robiond19
Posted

Hi Everyone,

I posted two weeks ago about the biopsy for celiac disease.

I am a little nervous about the results. I really don't want to go gluten free or be sick for that matter, but on the other hand if I had an answer at least I could move on.

Looking down at this enormous belly is really making me p####off, especially since I am so thin and work so hard to stay in shape. My partner measured my belly last week, a whopping 39", I wear a 31" jean and run, cycle and swim 5x a week. Looking in the mirror I feel like an old guy with skinny legs, no butt and a big beer belly. Will I ever see my abs again?

Sorry just had to sound off. I really have been feeling down lately, my energy level has definitely dropped. I am still following my training schedule but it really wears me out now. Finding it hard to eat enough because if I eat too much I feel really bad and the Belly grows! I haven't gone gluten free because I am going to request, no I am going to demand, the blood work panel for Celiac whether or not the biopsy is positive or not.

I understand that one can have a negative biopsy but yet still have Celiac? Would that be in the earlier stages where there isn't much damage to the small intestine?

Also last summer I had a severe bout with diarrhea, six weeks several timeas a day and in the middle of the night. At that time my GP ran a zillion tests and found nothing. I lost 12 lbs and started to feel really bad. After seeing a gastro he determined that the diarrhea was a result of the Nexium that I was prescribed for all the stomach problems that I was having. After stopping the Nexium the diarrhea cleared up and I gained about half the weight back, now here is a thought, I wonder if that whole episode could have been related to Celiac? Has anyone had a similar experience?

I have to say that my bathroom habits have never been the same, I don't go frequently like that last episode, but my stool is different, runny, floats, etc.

Anyway, thanks for listening. I will post tomorrow after I see the Gastro with the reuslts. Thanks for lthe support and the answers.

Rob

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tarnalberry Community Regular
tarnalberry
Posted

Good luck tomorrow! It could be celiac, it could be something else that you eat. But getting tested is a good route to start on. I know it's tough to wait, but hang in there. It will get better!

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    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

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      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
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      Fiber Supplement

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      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
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      By Wheatwacked · Posted

      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
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