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Allergic To Gluten-free Too?


Candy

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Candy Contributor

Rice and oats are gluten-free but give me gut pains .Why? They also give me head allergy symptoms-puffy itchy eyes,sneezing,runny nose -it's like summer allergies all year round. It keeps me miserable for a few days :blink: ,but it's the only grains I can eat. This site say there are certain types of wheat that don't irritate Celiacs, ancient wheats called diploid Einkorn and tetraploid pasta wheat,which I read is just plain old pasta durum wheat that noodles are made of.....but,that was the first wheat that started to get me illing, was pasta durum wheat,so this ain't adding up,that it's edible to celiacs . If I wasn't tested for celiac I wouldn't know what to believe,but I know I have the main Kinds of Celiac HLA 2/8. But all the grains bother me including rice and oats,I wish there was a grain I could eat. Even though bread wheat is bad for us I feel more robust over all when I eat some ,but not too much.The leader of this site Scott,says the severity of celiac depends on how many copies of the Celiac gene you get;if I didn't get too many copies maybe I benefit from a small amount of bread. There was a celiac pill -you take it and you can eat bread I 'd like to see if I can get a prescription for that-I want a slice of pizza.


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lovegrov Collaborator

No kind of wheat is safe for a person with celiac. There are some lower gluten wheats and some people who are allergic to wheat can handle those, but people with celiac should not eat it.

You also should not eat oats unless you're buying one of the brands that is grown specifically to be free of wheat cross contamination. Most regular oats are contaminated.

While there is research into a pill going on, there is no approved medication that allows people with celiac to eat gluten.

richard

Tim-n-VA Contributor

Regarding wheat being okay: There might have been some confusion because there are things with the word wheat in the name that doesn't contain the wheat protein and might be okay for a celiac but not okay for other intolerances. Buckwheat is one example of something that has wheat in the title but is not wheat in the celiac sense.

Wheat starch is a more questionable thing. Some people claim that it is possible to remove starch from the wheat protein and that theoretcially would make it okay for a celiac but still not okay from some wheat allergies.

Let me be clear, I'm not advocating using gluten-free wheat starch, I'm just trying to explain why there is seemingly contradictory information on this and other website.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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