Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got My Calgary Schedule Date!

num1habsfan

By num1habsfan
in Related Issues & Disorders

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

I figured I'd post this now when I'm a tiny bit more calmed down about things, so that it makes a little more sense I hope...

umm well what she said is its definitely both scopes, Feb. 27th is the date..its at 7:30 am, but I gotta be there at 7 :blink:

I asked if they HAD to freeze my throat(told her how i had issues before) and she said no, just tell them...

i cant even drink anythin after midnight that day...starve day before..coffee/tea is all i'm allowed..gotta drink some stupid laxatives startin at 5 pm the day before test..

and have to eat gluten for 5 frickin days :ph34r::blink::o .. 5 days before = started day after my scope in Saskatoon, and I have a midterm on day #2 of gluten :wacko: (99% sure I'll be failing that one). I cant change that midterm because I'm already switching 2 other ones around for the Saskatoon scope. OH ANDD I have to eat AT LEAST 2 piece of regular bread those horrible days (screw the bread, I'm going for the stuff like subs and anythin else I cant find replacements for)

I think this test is gonna kill me. Well not kill me physically (i hope), but mentally/emotionally. Yesterday at school was the first time I ever left to the bathroom just to cry. it was like WHAM all this important stuff to find out in a few mins. I dont even want to imagine the pain, because I KNOW how painful it'll be eating normal food for 4 days!!

Have any of you ever had 3 scopes/biopsies done within a 6 day span?? I highly doubt it...How I'm gonna do this I really dont know :( I didnt fall asleep til about 7 am this morning because my mind was running to much.....If only more people could understand.

~ lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


num1habsfan Rising Star
num1habsfan
Posted
  • Author

OK I'm gonna add this to this post because its what caused all my new issues...I honestly feel like having a nervous breakdown because of it.

To remind you, my endoscopy in Saskatoon will fall right in the middle of midterms, on Feb. 21. Since most of you have had an endoscopy, you know you need a day to recover, yes??

Well, (Daxin on this board knows the school i'm talking about), SIAST/Palliser have strictly decided I CANNOT write the midterms from the 21st and 22nd on the 20th, simply because they think we'll go and tell everyone in Palliser what was on the tests (no i'm not kidding you!!!). So all they could say was write on the 23rd and 28th. OK, 1 more on the 23rd is fine...but on the 28th is when I'm on my way back from Calgary and trying to recover from THAT endoscopy/colonoscopy. And I'm not allowed to write on the weekend...

I DONT KNOW WHAT TO DO *cries*. I AM NOT changing my appointments, not when theres a crazy wait!!

PLEASE GIVE SUGGESTIONS!!!!!!!

~ lisa ~

Felidae Enthusiast
Felidae
Posted

I wish I had a suggestion for you. All I can say is most of my university degree was done as an undiagnosed celiac. And I know how it feels to be sick from gluten when you are trying to write a final. I know that is why I did poorly in many classes. When you have to leave an exam because the immodium isn't working, it really sucks.

So to compound how I felt for years with additional testing for you in the middle of exams. Holy s**t. I feel for you. I don't see why they can't at least try to accomodate you with rescheduling some finals. Especially because your appointments also need to be done sooner than later. I wish I could help you.

Carriefaith Enthusiast
Carriefaith
Posted

Wow, that's a lot of information to process all at once. I'm happy that you have your appointments are so soon and I'm sorry that you have to eat gluten and that your midterms are around the same time (or on the same day in one case).

My advice is to not cancel any of your appoitments. Health is important... I would go to a trusted prof and tell them everything. Maybe you can write the midterms after the week-end or before you start eating gluten. You may get better luck asking to write them before you start eating gluten and before the appoitments. There should be someone who is understanding and who will help.

Good luck and keep us posted.

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Wow, that's a lot of information to process all at once. I'm happy that you have your appointments are so soon and I'm sorry that you have to eat gluten and that your midterms are around the same time (or on the same day in one case).

My advice is to not cancel any of your appoitments. Health is important... I would go to a trusted prof and tell them everything. Maybe you can write the midterms after the week-end or before you start eating gluten. You may get better luck asking to write them before you start eating gluten and before the appoitments. There should be someone who is understanding and who will help.

Good luck and keep us posted.

Well that is the whole issue....they wont let me write before I start eating gluten or before I have the appointments (because like I say, they think I'm gonna go blabbing what was on the test to everyone). The college in Yorkton would be just fine with it, and my teachers said they wouldnt care if I'm in there writing a different exam...its the main college (in Moose Jaw) that says nope...they get the final decision. You're not allowed to speak to someone from Moose Jaw either.

the only idea i can think of is to get one of my family docs to write a letter saying I DO have these tests and I NEED a recovery day after each and sent it direction to Palliser ... for those who agree, please say. Because I'm determined to follow whatever suggestion I get the most..

~ lisa ~

Michi8 Contributor
Michi8
Posted

Just to clarify, Lisa, are you having an endoscopy on the 21st and then an endo and colonoscopy on the 27th? Is there any increased risk (infection or damage to system) to have the second procedure so soon after the first? Is 6/7 days long enough to recuperate before undergoing meds and scopes again?

Michelle

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Just to clarify, Lisa, are you having an endoscopy on the 21st and then an endo and colonoscopy on the 27th? Is there any increased risk (infection or damage to system) to have the second procedure so soon after the first? Is 6/7 days long enough to recuperate before undergoing meds and scopes again?

Michelle

Yes, endoscopy on 21st, both on 27th. And i'm not sure how safe it is :lol: ...I usually recuperate within a few days but need at least 1 to sleep.

~ lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Lisa,

Here we can take an "incomplete" and finish the course the next semester without any penalties. Is that an option?

jerseyangel Proficient
jerseyangel
Posted

Lisa,

I see you have thought about it, but I was actually going to suggest you get something in writing from your doctor. That might hold more weight with the school.

It's worth a try, anyway. :)

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Lisa,

I see you have thought about it, but I was actually going to suggest you get something in writing from your doctor. That might hold more weight with the school.

It's worth a try, anyway. :)

Yeah, thanks glad you agree. I'll reply later (even from school) once I find out how to get that phone # ... I want this next month to be OVER WITH already.

And btw Jestgar, cant do that (the incomplete) because I already will be 1 class short of graduating and kinda already got things planned out about how I'm gonna make up for that 1 class.

~ lisa ~

Nantzie Collaborator
Nantzie
Posted

Definitely ask your doctor to send a letter to (or maybe even call) the school.

Nancy

Phyllis28 Apprentice
Phyllis28
Posted

Lisa,

Hope all goes well. I was undiagnosed most of my Junior year of college. I was able to incomplete one of my classes because I was sick and make the work up later.

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Definitely ask your doctor to send a letter to (or maybe even call) the school.

Nancy

Yeah...calling would be a good idea but I bet you anything the school wouldnt believe that either. I think actual document might be the only thing that works. I'm gonna see if the main guy here is back from dinner yet, will post again soon. Wish me luck, everyone

~ lisa ~

num1habsfan Rising Star
num1habsfan
Posted
  • Author

OK I talked to the principle dude/main guy and he even called to Palliser to talk to the main guy there but he wasnt in..and his receptionist even said theres absolutely no way. I asked if there was ANYTHING, even with a VERY valid reason that would permit me to write them sooner, and they completely refuse. He said he completely understands why I need the time off and even himself said if it was their choice I could write them before.

So I guess its final....

I have to write 2 on friday, feb 23rd (1 from 9-1 pm, the other 4-8:30 like planned)...and 1 on thursday, mar 1st (from 9-1 pm). no other choices. :( .. ugh!!!

Time to say NOT GOOD THINGS about this whole system :angry:

~ lisa ~

Daxin Explorer
Daxin
Posted

Lisa,

I am sorry to hear about all the things that have been going on with your exams. I can emapthize however.

It angers me that the school is so inflexable as to not let you write early, since you will be not only out of commission, but physically out of the province during the rest of the exams. There is NO WAY you could pass on information to your fellow students!

I hope things go well, and you find the answers you seek. We're all here for you (eh. ;))!

Judyin Philly Enthusiast
Judyin Philly
Posted

Lisa,

Just getting back on line after some time.

Missed this.

so sorry..your trying so very hard in all areas of your life.

i'll keep you in my prayers...

judy in philly

  • 2 weeks later...
num1habsfan Rising Star
num1habsfan
Posted
  • Author

*bumps* 15 days to go :unsure:

btw, I got my midterms changed around yet again. So this IS the final plan:

I write one this friday (Feb 16th)

and I write the other 4 from March 5th to March 8th

They are also allowing me some extra days off for rest, as long as I get a doctors note.

~ lisa ~

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,154
    • Most Online (within 30 mins)
      7,748
    bobadigilatis
    Newest Member
    bobadigilatis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.