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Something New I've Noticed


JerryK

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JerryK Community Regular

When I eat gluten, it seems like my hands and feet are tingling and slightly numb.

I don't know if it's my imagination or what....but I certainly do notice it.

This is in addition to all the other crappy feelings....


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Electra Enthusiast
  JerryK said:
When I eat gluten, it seems like my hands and feet are tingling and slightly numb.

I don't know if it's my imagination or what....but I certainly do notice it.

This is in addition to all the other crappy feelings....

My right foot and lower leg were doing that to the point of where I was losing feeling in them and I couldn't keep my balance and stuff. Then it started moving into my right hand, and now when I get accidentally glutened one finger tip on my left hand pricks constantly (it's so annoying lol). It was mostly on one side, but numbness and tingling in limbs are very good sign that gluten is causing some major damage in there. I would try very hard to stay off gluten because most nerve damage is not reversable. Good Luck and I hope you feel better soon!!

jerseyangel Proficient
  JerryK said:
When I eat gluten, it seems like my hands and feet are tingling and slightly numb.

I don't know if it's my imagination or what....but I certainly do notice it.

This is in addition to all the other crappy feelings....

Not your imagination!

In the year before I was finally diagnosed, I had increasing tingling and numbness in my legs and feet. Sometimes the bottoms of my feet would feel like they were burning.

My left arm had a sensation that is hard to describe--somewhere between numb, and tight. I also had tingling and burning in my face and mouth--and still sometimes still have the facial tingling today.

It took some time, but except for the facial tingling, it has all gone away on the gluten-free diet. When it began, I was petrified I had a more serious neurological disease. It was pretty scary--I wish I knew then what I know now.... ;)

num1habsfan Rising Star

I get this too!! that it feels that that part of my body is dead :P

~ lisa ~

GeoffCJ Enthusiast
  num1habsfan said:
I get this too!! that it feels that that part of my body is dead :P

~ lisa ~

i have serious issues with my hands and feet tingling. To the point where walking can be painful/difficult. Unfortunately, I've seen little improvement since going gluten free 5-6 weeks ago.

Geoff

wowzer Community Regular

I have complained about that tingling feeling for years to my doctor. It seems to have gotten better since I started the gluten free diet. It's been one month. He always thought it was because of the sinus infection I had. I still get it once in awhile, so I'm not sure if it is from eating or ingesting gluten that I didn't realize.

darlindeb25 Collaborator

Geoff--have you had your blood tested--sounds like a B12 deficiency to me. The others seem to have found the cure for their tingling, well, except maybe for wowser. I do have neuropathy and I have to take B12 daily.


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That is usually a sign of B-12 deficiency. You need to be very careful as it gets worse meaning it is more often and painful. It will also result in your not remembering things and getting so fatigued that you can barely make it up a set of stairs. Mine became so bad that I was 2 points away from being paralyed and 4 points away from permanent brain damage. I still have problems remembering things after that. If you ever get as low as I did with B-12 you need to take B-12 either shots or sublingual for life. That is because your body loses something that you can never truly aborb B-12 and maintain without supplementation. I know when my B-12 is dropping as I get tingling and fatigued all over again.

mamabear Explorer

Definitely not your imagination...peripheral neuropathy is associated with celiac disease, and more mainstream medical literature is being published recently which will hopefully reinforce this for neurologists and internists. B12 may not be the only answer, and lab results may not confirm a deficiency, but neuropathy is diagnosable via a nerve conduction velocity test. Doctors have known for many,many years that "idiopathic neuropathy" should be closely monitored three years for associated malignancies when no source is found for the nerve damage. I find this intriguing as celiac is also associated with malignancy, and I wonder how mant patients are being missed when the neuro guys should order celiac panels,too??

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    • cristiana
      Very interesting, @Idnam.  When I was experiencing this problem at its worse, I found high carb meals like lots of rice or too many cookies were a trigger.
    • cristiana
      Really interesting, Kitty, thank you. 
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      Thankyou I will definitely have a look your very  insightful and a lot is making sence 👍
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