Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Aargh!


Michi8

Recommended Posts

Michi8 Contributor

I just called to see if I could use Pico-Salax for my colonoscopy prep rather than the Golytely/Colyte. I'm pretty sure I'm going to have a lot of trouble keeping 4 litres of that stuff down, and heard that Pico-Salax is much less product to take, and easier to take.

The receptionist was incredibly rude. She told me there was no way the doctor would allow this or ever consider it. She told me she wouldn't even consider asking the dr about it. I asked that she ask the dr on my behalf then. I don't give two hoots if it's inconvenient to her...what if the dr has never considered this product, and decides that maybe it is okay to take (though I'm not holding my breath on that one!) I'm pretty sure I'm not going to hear back on this either.

This office and dr treats patients like they're pains the ass (no pun intended!) I hate being made to feel like I'm bothering someone when I need important information. I hate being made to feel like they're doing me a huge favour by attending to my health issues. How do people like this end up working in a business that deals with human beings? Shouldn't doctors be trained to be sensitive and caring towards patients? This goes for pretty much every specialist I've been sent to see in my lifetime...what is with the holier than thou attitude? :angry:

Michelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

Sounds like they need a lesson in people skills!

Pico-Salax has been used in Canada for at least 2 years, and I have a site from a GI clinic about it.

Maybe it will help (?) to bring it to tgeir attention - although based on the initial contact I doubt it!

Open Original Shared Link

Pico-Salax is the easiest laxative to take. Although it is gentler than previous laxatives, it still gives better results. Pico-Salax is a concentrated solution which works by taking water out of the body and putting it into the colon to flush it out, therefore you must drink enough fluids to avoid dehydration.

I did find links to other articles about its use for colonoscopy (Canadian based).... there are clinical trials currently underway - so it may not be widely accepted yet - it has cautions about administering Pico-Salax to patients with renal or cardiac problems or conditions that affect electrolyte balance. Apparently it causes more dehydration that other "bowel cleansers" and is not without side effects in some patients.

There is an outside possibility that this particular GI doc had a patient suffer serious problems and decided that he/she would stick with the "tried and true" method.

I work at a vet clinic and we have had problems with new drugs or protocols that didnt have lot of clinical data ...then we had patients not respond well or get very sick and we stopped using it. Just giving another "train of thought"

Still doesnt excuse the rude response, they could have told you that much...like...: "The doctor hasnt had good results with that product and does not recommend it.."...or..."its still in clinical trials"....

Sandy

Michi8 Contributor
Still doesnt excuse the rude response, they could have told you that much...like...: "The doctor hasnt had good results with that product and does not recommend it.."...or..."its still in clinical trials"....

Sandy

Thanks, Sandy. :)

I actually got a quick reponse from the Dr's office. They left a message for me saying that the dr finds Golytely/Colyte does a better job of cleansing, so that is what I must use. I'm pleased that, though the receptionist was rude, she did take my inquiry seriously and responded quickly. I prefer to know "why" rather than "just because." Still wish they were nicer to talk to though.

Michelle

Eriella Explorer

I have had problems with that product as well and I didn't realize that there were any alternatives. What I have found in the past is having the pharmacist call on your behalf will make it far more likely to get the drugs that you want. Just explain the problem to them, ask for their opinion, and ask if they could explain it to the doctor. It works wonders.

Felidae Enthusiast

I don't understand why some of those offices have to be so rude. I had a very similar experience after a minor surgical procedure on my cervix. I called the OB/GYN office to explain my symptoms. I was in serious doubled over pain. The nurse said it can't possibly be related and basically to get lost. I was in tears and I went to emergency instead. I just don't get the rudeness of some people.

kbabe1968 Enthusiast

UGH! I HATE that!!!! It's like why the heck did you get into that job if you're going to be such a miserable SOB while doing it? HUH??? Get a new frieacking job so that someone nice can be in your place.

I would call back and say you want to talk to the doctor and that it's not of the nursed ding-dong business what it's about. I've had to do that a couple times.

Truthfully, I don't think there's anyway to make the prep for a colonoscopy easier on the body. You are trying to clear your entire colon so that there is nothing caking up the sides (pardon the imagery). And you're trying to do it in a short amount of time. The test was no big deal, preparing for it nearly killed me!

Viola 1 Rookie
I don't understand why some of those offices have to be so rude. I had a very similar experience after a minor surgical procedure on my cervix. I called the OB/GYN office to explain my symptoms. I was in serious doubled over pain. The nurse said it can't possibly be related and basically to get lost. I was in tears and I went to emergency instead. I just don't get the rudeness of some people.

No wonder the medical system is in such trouble :angry: The emergency is so much more expensive than going to the OB/GYN.

That nurse should have insisted that you go in to their clinic and got looked after right away.

I'm so glad that the clinic we go to is much better at getting things looked after. When I put my back out they got me in right away, not to my regular doctor, as he wasn't there, but I got in to see a doctor without having to sit in emergency for hours.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Felidae Enthusiast
No wonder the medical system is in such trouble :angry: The emergency is so much more expensive than going to the OB/GYN.

I know, I felt like I was totally abusing the system. I even said that to the ER nurses and they said I was not and that I needed to be there. They said many others do abuse it, but I didn't fit into that category, luckily, because I'm really against that sort of thing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,153
    • Most Online (within 30 mins)
      7,748

    Mmoc
    Newest Member
    Mmoc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.