Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Restricted Diet


hez

Recommended Posts

hez Enthusiast

I am pretty sure I was glutened around Christmas. I have had the "D" ever since. Usually, when I get glutened the "D" lasts for about three weeks and eases up in the fourth. I am now six weeks into this and still feeling horrible.

So I decided to cut out all processed foods to see if I could get myself better. Started the "diet" yesterday. I am trying to eat chicken/meat, vegies, fruits and eggs. Any other ideas on things I could eat that are dairy free and unprocessed?

For those that have done something similar how quickly did the "d" disappear?

For those with intolerences, is "d" a symptom of an intolerence? Once feeling better how quickly did you react when a food was reintroduced? I am wondering if I am intolerent to dairy. Can intolerences be tested for?

The gluten-free diet is a breeze compared to this one. I miss my junk food. I am trying hard not to cheat and indulge in a gluten-free goodie.

Thanks for your help. I just am in a bad spot. I got used to feeling good!

Hez


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jlynn Rookie
I am pretty sure I was glutened around Christmas. I have had the "D" ever since. Usually, when I get glutened the "D" lasts for about three weeks and eases up in the fourth. I am now six weeks into this and still feeling horrible.

So I decided to cut out all processed foods to see if I could get myself better. Started the "diet" yesterday. I am trying to eat chicken/meat, vegies, fruits and eggs. Any other ideas on things I could eat that are dairy free and unprocessed?

For those that have done something similar how quickly did the "d" disappear?

For those with intolerences, is "d" a symptom of an intolerence? Once feeling better how quickly did you react when a food was reintroduced? I am wondering if I am intolerent to dairy. Can intolerences be tested for?

The gluten-free diet is a breeze compared to this one. I miss my junk food. I am trying hard not to cheat and indulge in a gluten-free goodie.

Thanks for your help. I just am in a bad spot. I got used to feeling good!

Hez

I am VERY New to this myself and am on a strict diet. I would suggest eating brown rice with garlic everyday. Also start taking(if youare not already) a probiotic, this will help settled down an inflamed stomach mucosa. I also have "d" as a symptom of intolerance. My nutritionist has suggested drinking carrot juice as it helps to soak up the extra water in the gut. I am starting to feel better. I have had a few days of solid stool and I have been doing this for about a month. I also eat chicken, fish, sweet potatos and eat yogurt (plain)!!!! Hope this helps, and hope you get feeling better soon!!

lorka150 Collaborator

This happened to me last year, and I could only down about 8 foods for about 8 months. Finally, I started to feel a little better. Have you tried an elimination diet? I was in a tough situation. Like you, I am casein free, but I am also allergic to buckwheat and rice, and some other foods.

Regarding the last poster's response, I would not recommend garlic. A lot of people get digestive trouble from it.

icmarmots Newbie

:o My Nutritionist would say to take gluten free digestive enzymes and high dose "live" probiotics.

Now when I get glutened I do both for several days.

Nancym Enthusiast

You might want to check out paleofood.com, lots of eating ideas there.

hathor Contributor

...So I decided to cut out all processed foods to see if I could get myself better. Started the "diet" yesterday. I am trying to eat chicken/meat, vegies, fruits and eggs. Any other ideas on things I could eat that are dairy free and unprocessed?

...

I am wondering if I am intolerent to dairy. Can intolerences be tested for? ...

You can also eat legumes, nuts, seeds, and gluten-free grains.

One test for intolerance is simply to eliminate the food and see how you do. Enterolab has testing for dairy, egg, soy, and yeast intolerances, also. Some places test your blood (they may say it is for "sensitivities" or "allergies," rather than "intolerances"), but I'm not sure they are completely accurate. You might have to confirm any findings with personal experience.

hez Enthusiast

I think I am going to have to see the doc. It seems to be getting worse not better. It is just so frustrating! I have been gluten-free for almost two years and have been feeling great. I think this is really getting me depressed as well. Thanks everyone for your ideas!

Hez


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbabe1968 Enthusiast

Is it even possible you're continuing to be glutened by something and not realizing?

I just had a glutening because - before going gluten free, I spilled flour in my kitchen. I vacuumed it up. Well, when I went to change the bag (since going gluten free in on Jan1), I had a SERIOUS reaction because I actually breathed in the wheat flour. OH MY...I was sick for at least 4 days so far. And I just can't shake it. I think it's in the AC now....having hubby change the filter just in case.

Anyway....is it possible?

hez Enthusiast

Yes it is possible. I have been slowing going through the list of things I do. I have especially been looking at my shampoo and chapstick. I am the only one who is gluten-free in the household. So dh and I are going back through the routines to make sure I am not getting cc. It is just so hard to be this sick again. I hate it.

Thanks,

Hez

gfpaperdoll Rookie

cross contamination is so awful...

I get sick from just touching something that someone else touched with wheaty hands - unless I remember to wash my hands before touching my food.

Maybe get your own little refrigerator to keep your food in.

Are you cooking in teflon pans or cast iron? cutting board - new? Only you use it?

Is there any flour in the house? If so, I would think that is the cause of your problem. Like the post above the flour poofs up & gets on & in everything - even your lungs & throat which goes down to your tummy. Anyone with celiac disease in a house that also contains flour - needs to just take the flour, container and all, & toss it in the trash. Bread crumbs are bad enough but there is no way that you will not get sick from flour.

hez Enthusiast

My dh does not use flour. Really the only gluten in the house is their cereal and bread. Everything else is gluten-free. Dh even makes gluten-free pancakes even though I rarely eat them :lol: We have seperate condiments and he can only have his gluten in one area of the kitchen.

I am just really struggling. I feel awful even on no processed foods. I have spent most of the day reconfirming that all the things I use are gluten-free. I am so hoping this gets better in a few days. I will see the doc at the end of the month.

Hez

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    5. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.