Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Have U Had Celiac?

Kara B.

By Kara B.
in Introduce Yourself / Share Stuff

 Share

Recommended Posts

Kara B. Newbie
Kara B.
Posted

Hey

ive had celiac for about a year. i no peeple who have had it a long time i just dont no many teens w/ celiac. how long have u guys had celiac?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kassie Apprentice
Kassie
Posted

1 year 1 month and 1 week. wow i didn't realize i actually now it from the exact day wierd :blink: lol

ErraticBinxie Explorer
ErraticBinxie
Posted

I have been gluten free for about 10 years now.

  • 1 month later...
.paulaa Newbie
.paulaa
Posted

i found out i had celiac 5 days ago.

believe it or not.

lol

Ashley Enthusiast
Ashley
Posted

I've had Celiac for 2 years on the 15th of April.

-Ash

  • 2 weeks later...
Paris96 Newbie
Paris96
Posted

I JUST FOUND OUT 2-3 WEEKS AGO THE HARD WAY IF U KNOW WHAT I MEAN! I JUST SAW THE NUTRIONULIST YESTERDAY SO BASSICLY 2 DAYS! I HATE IT!!!!! I WAS REALLY SAD AT FIRST :( I DONT KNOW ANYONE WITH CELIAC DISEASE AND I CANT TALK TO MY FRIENDS CUZ THEY DONT UNDERSTAND HOW HARD IT IS!!!!!

Speedy Newbie
Speedy
Posted

Ive had it about 18 years, pretty much since i could start eating solid foods...thats when i was diagnosed, so about since i was about a year old

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 weeks later...
DestinyLeah Apprentice
DestinyLeah
Posted

I got my official diagnosis this morning.

My doctor said that with the damage I have and my medical records, I have had it my whole life, and it nearly killed me.

I was really surprised to find so much support on the web, though. It is making it easier to be gluten free, which I have had to be since I was released from the hospital a couple of months ago.

Guest Damo
Guest Damo
Posted

You'd have to ask my intestines.

I was unofficially diagnosed a month and a half ago but only officially from biopsy results a week ago. Judging by the fact that I haven't put on any significant weight for 5 years, and have had on-and-off low iron for about 3 years, I'd say it'd be at least that long sinse I've had it. Those are my only symptoms which is good in a way but it also means my diagnosis has been postponed.

  • 2 months later...
lex4850 Newbie
lex4850
Posted

a little longer than two years...

blueeyedmanda Community Regular
blueeyedmanda
Posted

Coming up on 3 years

Ed-G Newbie
Ed-G
Posted

I had celiac almost all my life -- nearly 50 years. That's why I refer to myself as a banana baby. Way back then you eliminated everything and were started on bananas, and gradually added things.

Ed in MD

Crystalkd Contributor
Crystalkd
Posted

About three weeks ago although I've been on the diet for 5 weeks. I've prob. had symtoms all my life but was told it was the Cerebral Palsy. I started having unexplained problems in 95 and my first bout of low iron in 2000. I'd say I've been sytomatic for 13 years it just got to a breaking point 6 months ago.

kml55 Rookie
kml55
Posted

I have had celiac officially for about 3 years..always had stomach aches though since ealry childhood, so probably longer.

at first it was really hard, but each day it gets easier.

I am a nutrition major in college, so i hope that one day i can help people the way i was helped.

Lollipop Newbie
Lollipop
Posted

I am on my 6th week on my trial diet and it seems to be helping. I'm going on my first long trip soon. I'm not sure how much or what I need to bring. Any advice?

the-elmel Newbie
the-elmel
Posted

I was diagnosed in August of 2001. ;)

  • 2 weeks later...
Alexandra Rosenberg Rookie
Alexandra Rosenberg
Posted

about 6 months since I was diagnosed.

flagbabyds Collaborator
flagbabyds
Posted

15 years and 3 monts and 20 days (approximately :D)

taylor- Rookie
taylor-
Posted

approx. 17 years. I've had it since I was 1 1/2

flagbabyds Collaborator
flagbabyds
Posted
approx. 17 years. I've had it since I was 1 1/2

hey you're like me! i'm just a year behind you lol. i was diagnosed at 20 months so about 1 1/2 as well :D

pedro Explorer
pedro
Posted

Hi.

I been having symptoms all my life, since I was a kid, and I found out about Celiac at the age of 39.

The worse and more severe symptoms have been with me for the past 20 years.

Best regards to everyone.

little d Enthusiast
little d
Posted

I'm not "offically diagnosed" but I found out about Celiac last year from my sister who has the same symptoms but affecting her differantly than me.

donna

  • 2 months later...
Guest Joshua
Guest Joshua
Posted

I have only known for one month. Some of my symptoms are definately those of celiac. I tested positive for the genetic test so no gluten for life they say. :unsure:

celiacvictim123 Newbie
celiacvictim123
Posted

hi i am only 12 but i want to know more about celiac and i have it :):huh:

Guest Joshua
Guest Joshua
Posted

celiacvictim123 how long have u had it.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Watch this space! 😊
    2. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but...
    3. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10). Since then it has gone up to 10. I am not happy with that. I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I...
    4. Mike Maurillo
      0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

      until
      Hi everyone, I’m Mike, one of the co-founders of Academy Camps, a sleepaway sports camp for kids ages 10 to 16. I’m posting here because one of our camp families whose daughter has Celiac encouraged me to share our experience wit...
    5. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer. Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748
    Beanography
    Newest Member
    Beanography
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Watch this space!  😊
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.