Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Have U Had Celiac?

Kara B.

By Kara B.
in Introduce Yourself / Share Stuff

 Share

Recommended Posts

Kara B. Newbie
Kara B.
Posted

Hey

ive had celiac for about a year. i no peeple who have had it a long time i just dont no many teens w/ celiac. how long have u guys had celiac?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kassie Apprentice
Kassie
Posted

1 year 1 month and 1 week. wow i didn't realize i actually now it from the exact day wierd :blink: lol

ErraticBinxie Explorer
ErraticBinxie
Posted

I have been gluten free for about 10 years now.

  • 1 month later...
.paulaa Newbie
.paulaa
Posted

i found out i had celiac 5 days ago.

believe it or not.

lol

Ashley Enthusiast
Ashley
Posted

I've had Celiac for 2 years on the 15th of April.

-Ash

  • 2 weeks later...
Paris96 Newbie
Paris96
Posted

I JUST FOUND OUT 2-3 WEEKS AGO THE HARD WAY IF U KNOW WHAT I MEAN! I JUST SAW THE NUTRIONULIST YESTERDAY SO BASSICLY 2 DAYS! I HATE IT!!!!! I WAS REALLY SAD AT FIRST :( I DONT KNOW ANYONE WITH CELIAC DISEASE AND I CANT TALK TO MY FRIENDS CUZ THEY DONT UNDERSTAND HOW HARD IT IS!!!!!

Speedy Newbie
Speedy
Posted

Ive had it about 18 years, pretty much since i could start eating solid foods...thats when i was diagnosed, so about since i was about a year old

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 weeks later...
DestinyLeah Apprentice
DestinyLeah
Posted

I got my official diagnosis this morning.

My doctor said that with the damage I have and my medical records, I have had it my whole life, and it nearly killed me.

I was really surprised to find so much support on the web, though. It is making it easier to be gluten free, which I have had to be since I was released from the hospital a couple of months ago.

Guest Damo
Guest Damo
Posted

You'd have to ask my intestines.

I was unofficially diagnosed a month and a half ago but only officially from biopsy results a week ago. Judging by the fact that I haven't put on any significant weight for 5 years, and have had on-and-off low iron for about 3 years, I'd say it'd be at least that long sinse I've had it. Those are my only symptoms which is good in a way but it also means my diagnosis has been postponed.

  • 2 months later...
lex4850 Newbie
lex4850
Posted

a little longer than two years...

blueeyedmanda Community Regular
blueeyedmanda
Posted

Coming up on 3 years

Ed-G Newbie
Ed-G
Posted

I had celiac almost all my life -- nearly 50 years. That's why I refer to myself as a banana baby. Way back then you eliminated everything and were started on bananas, and gradually added things.

Ed in MD

Crystalkd Contributor
Crystalkd
Posted

About three weeks ago although I've been on the diet for 5 weeks. I've prob. had symtoms all my life but was told it was the Cerebral Palsy. I started having unexplained problems in 95 and my first bout of low iron in 2000. I'd say I've been sytomatic for 13 years it just got to a breaking point 6 months ago.

kml55 Rookie
kml55
Posted

I have had celiac officially for about 3 years..always had stomach aches though since ealry childhood, so probably longer.

at first it was really hard, but each day it gets easier.

I am a nutrition major in college, so i hope that one day i can help people the way i was helped.

Lollipop Newbie
Lollipop
Posted

I am on my 6th week on my trial diet and it seems to be helping. I'm going on my first long trip soon. I'm not sure how much or what I need to bring. Any advice?

the-elmel Newbie
the-elmel
Posted

I was diagnosed in August of 2001. ;)

  • 2 weeks later...
Alexandra Rosenberg Rookie
Alexandra Rosenberg
Posted

about 6 months since I was diagnosed.

flagbabyds Collaborator
flagbabyds
Posted

15 years and 3 monts and 20 days (approximately :D)

taylor- Rookie
taylor-
Posted

approx. 17 years. I've had it since I was 1 1/2

flagbabyds Collaborator
flagbabyds
Posted
approx. 17 years. I've had it since I was 1 1/2

hey you're like me! i'm just a year behind you lol. i was diagnosed at 20 months so about 1 1/2 as well :D

pedro Explorer
pedro
Posted

Hi.

I been having symptoms all my life, since I was a kid, and I found out about Celiac at the age of 39.

The worse and more severe symptoms have been with me for the past 20 years.

Best regards to everyone.

little d Enthusiast
little d
Posted

I'm not "offically diagnosed" but I found out about Celiac last year from my sister who has the same symptoms but affecting her differantly than me.

donna

  • 2 months later...
Guest Joshua
Guest Joshua
Posted

I have only known for one month. Some of my symptoms are definately those of celiac. I tested positive for the genetic test so no gluten for life they say. :unsure:

celiacvictim123 Newbie
celiacvictim123
Posted

hi i am only 12 but i want to know more about celiac and i have it :):huh:

Guest Joshua
Guest Joshua
Posted

celiacvictim123 how long have u had it.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748
    ChrisMary
    Newest Member
    ChrisMary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.