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Could This Be Celiac

confused

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confused Community Regular
confused
Posted

Hello, im new to this forum. I have been to the Er many times in the last few weeks. The first time they told me i was severly constipates. Then the second time they said they had no idea what was wrong with me. Then the third time, they said it was gastritis. I then went to see my dr, and asked for an celiac panel done, only the IgA and IgG levels were done. The IgG was High and IgA was normal. I have had mouth sores now for over an year and today i woke up with severe joint pain in my knees. I have tried to research these ailments and it shows lupus or celiac. Does anyone else have these symptoms.

dan

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Tritty Rookie
Tritty
Posted

Hi Dan-

I'm brand new to this too. I've had D since September every morning for hours. I had plurisy and have had terrible mouth sores (in my throat even!) since August. My wrists ache something terrible. My blood test came back positive for celiac (I need to call the Dr now that I've been on here and find out exactly which ones he did) and the GI is doing an endoscopy on Tuesday. I started the diet 3 weeks ago and noticed a HUGE difference within a week. The D stopped. Finally the next week the weight loss stopped. My wrists and mouth sores still here though... :(

So some similar symptoms - enough that they should look into it more....

GFBetsy Rookie
GFBetsy
Posted

Dan -

Celiac is definitely a possibiblity. If I were you I'd visit the NIH (National Institute of Health) website and print up some articles on celiac. I'm not sure if they've got a list of the necessary tests, or not, but tell your doctor that the Gliadin antibody tests are not very sensitive or specific, and that the endomysial and tissue-trans-glutaminase tests are the currently accepted "best" blood tests for celiac. Ask him to run your bloodwork again.

Do this before you go on a gluten free diet, as going gluten free can cause a falsely negative result on the celiac blood tests.

Good luck!

confused Community Regular
confused
Posted
  • Author
Dan -

Celiac is definitely a possibiblity. If I were you I'd visit the NIH (National Institute of Health) website and print up some articles on celiac. I'm not sure if they've got a list of the necessary tests, or not, but tell your doctor that the Gliadin antibody tests are not very sensitive or specific, and that the endomysial and tissue-trans-glutaminase tests are the currently accepted "best" blood tests for celiac. Ask him to run your bloodwork again.

Do this before you go on a gluten free diet, as going gluten free can cause a falsely negative result on the celiac blood tests.

Good luck!

Well i got the other test results today and they came back negative. So the only test that was high was the IgG, so i am so confused at what this means now. Does this mean i might have an intolerence just to specific things and not everything like in celiac disease. Or does this mean i am fine and have no intolerence.. Does anyone else just have high IgG levels?

dan

Nancym Enthusiast
Nancym
Posted

You can have negative blood tests and still have biopsy proven celiac. In some forms it doesn't manifest in the intestines at all but in the brain, liver or skin. However, most doctors didn't learn this in school and they're ignorant.

For anyone with IBS you really should give the gluten-free diet a try, I'd recommend dairy free too since dairy causes a lot of constipation for many of us.

confused Community Regular
confused
Posted
  • Author
You can have negative blood tests and still have biopsy proven celiac. In some forms it doesn't manifest in the intestines at all but in the brain, liver or skin. However, most doctors didn't learn this in school and they're ignorant.

For anyone with IBS you really should give the gluten-free diet a try, I'd recommend dairy free too since dairy causes a lot of constipation for many of us.

So are you sayin g it might be IBS?

kairey Newbie
kairey
Posted
Hello, im new to this forum. I have been to the Er many times in the last few weeks. The first time they told me i was severly constipates. Then the second time they said they had no idea what was wrong with me. Then the third time, they said it was gastritis. I then went to see my dr, and asked for an celiac panel done, only the IgA and IgG levels were done. The IgG was High and IgA was normal. I have had mouth sores now for over an year and today i woke up with severe joint pain in my knees. I have tried to research these ailments and it shows lupus or celiac. Does anyone else have these symptoms.

dan

Hi Dan

I'm new to this also - your symptoms sound similar to those I had before I was diagnosed three years ago. I thought I had a virus at first as I felt ill and had diarrhoea. Afer a week, my shoulder became really painful and stiff and this was followed by my knees, finger knuckles and toe joints. I had suffered from mouth ulcers for years on and off including ulcers on my tonsils and was booked in to have these removed.

My Doctor sent me for blood tests which came back negative for coeliac disease but she wouldn't give up and after an endoscopy, I was diagnosed with coeliac disease - the damage to my gut was described as severe. After two weeks on a gluten free diet, I felt like a new person and have had no mouth ulcers or joint problems since. I get the odd bout of pain and intestinal upsets if I have inadvertently eaten somthing containing gluten. I declined to have my tonsils removed and have not had a sore throat since.

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