Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Can Kids Get Tested?


Q1821

Recommended Posts

Q1821 Apprentice

I really need some help here, my husband and I want to have kids but I am scared. I was never actually diagnosised with celiac disease, the doctors ran the blood tests but not EDG. Anyway, the blood tests were negative but I had all the symptoms. The docotrs said I had IBS but I didn't believe them, to make a long story short my insurance ran out before I could get anymore testing done (I got married). I've go gluten free and my symptoms have gone away, I know when I eat something that has gluten in it.

Ok having said all that my question(s) are I don't know if I have celiac disease for sure but how should I feed my kids? Gluten free diet for them or not? How old before they can get tested? Will my not eating gluten/wheat affect them after birth?

I really could use any information anyone has, thank you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jayhawkmom Enthusiast

Ok... deep breath!! =)

Since you don't have children yet... I would not be concerned with what age they could be tested. Who knows what is on the horizon for Celiac/Gluten Intolerance issues and testing. Things could change drastically in the next year... two years, three years down the road. In fact.... I certainly HOPE so!!

If you know you have issues with gluten.... don't eat it. Period. As long as you are eating a healthy diet, there will be no negative impact on your child/ren.

If you maintain a gluten free home, feed your children the same way you eat. Healthy whole grains, lean meats, veggies, fruits... there's no real "need" for gluten grains in there anyhow. No one needs gluten.

When the time comes - approach the subject with your OB. Our, your child's pediatrician. Some folks never feel it necessary to introduce gluten to their children, especially those who have a strict gluten free house. And, I can tell you right now.... it's MUCH easier when everyone is gluten free!! =)

Lots of luck to you!!! =)

Kelgs Rookie

This article says you can use the gene test at ANY time. They can even use cord blood. Open Original Shared Link

My husband is celiac and at least 2 of my boys are celiac. We have not given any gluten to our 1 year old yet.

Celiac is not the end of the world I am finding. My boys are doing great! You should be scared to have kids! LOL! They will change your life.... but in wonderful, wonderful ways.

Good luck,

Kelly

Mom of Alex 9 - Gluten free since 1/07

Ethan 6 - Gluten free since 1/07

Zac 1 - has never had gluten

Wife to Mark - Gluten free since 2003

I really need some help here, my husband and I want to have kids but I am scared. I was never actually diagnosised with celiac disease, the doctors ran the blood tests but not EDG. Anyway, the blood tests were negative but I had all the symptoms. The docotrs said I had IBS but I didn't believe them, to make a long story short my insurance ran out before I could get anymore testing done (I got married). I've go gluten free and my symptoms have gone away, I know when I eat something that has gluten in it.

Ok having said all that my question(s) are I don't know if I have celiac disease for sure but how should I feed my kids? Gluten free diet for them or not? How old before they can get tested? Will my not eating gluten/wheat affect them after birth?

I really could use any information anyone has, thank you

  • 3 weeks later...
Kibbie Contributor
I really need some help here, my husband and I want to have kids but I am scared. I was never actually diagnosised with celiac disease, the doctors ran the blood tests but not EDG. Anyway, the blood tests were negative but I had all the symptoms. The docotrs said I had IBS but I didn't believe them, to make a long story short my insurance ran out before I could get anymore testing done (I got married). I've go gluten free and my symptoms have gone away, I know when I eat something that has gluten in it.

Ok having said all that my question(s) are I don't know if I have celiac disease for sure but how should I feed my kids? Gluten free diet for them or not? How old before they can get tested? Will my not eating gluten/wheat affect them after birth?

I really could use any information anyone has, thank you

My daughter was diagnosed at 18 months old because she was showing symptoms and was the first in the family to show symptoms. For my next child (not pregnant currently) I plan on having them test him/her for the celiac genes using cord blood right away so that I'll know for school and stuff. (Our entire house is gluten free so its only important for me to know about the gene for outside our home.)

My daughter only got breast milk for 6 months at 6 months we introduced her to solid foods... you can choose to start rice/oatmeal at the point or choose not to and just stick with vegetables and fruits!

The great thing about being gluten free is that anyone with the celiac genes who are gluten free will never develop Celiac Disease! Being gluten free with no harm or hurt a child at all... infact it think my daughter is eating much healthier than most of the other kids her age because of the gluten free diet!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    2. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    3. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    5. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748

    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.