Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie

lilly22278

By lilly22278
in Coping with Celiac Disease

Recommended Posts

lilly22278 Newbie
lilly22278
Posted

Hi all.

I am new to this whole concept. My children and I have decided to go gluten free(ok I made the decision for them) My aunt has the gluten allergy and since its genetic...and we sem to have many of the smptoms...we are giving it a try.

I think the main thing that prompted going gluten free was my sons ezcema. Its a whole body thing and hs been since I quit breastfeeding him. He is 5 now and I was at my whits end dealing with the constant open sores all over his body. We has emlinaited red dye, all soaps, shampoo, went thru every laundry detergent know to man and still no success. Of couse his diet otherwise was chicken nuggets and pudding. He is little for his age... and so skinny even though he eats nonstop. My daughter has ADD. And both of them always seem to have runny noses. My daughter always seems to have bowl problems either contipation or diarrhea. I have a whole assorted list of problems that the doctors just wanna drug up. I've had bowl problems since I was a child. any....maybe TMI there. The list seems to go on and on.

I guess as of right now I'd like to know how soon we will see resuts. It's been 11 days since we started the diet. His ezcema had another major flare up and my stomach is still in turmoil.

We didnt get diagnosed by a dr b/c our doctors (we went to 3 different ones) wouldnt even consider it. It's just ezcema they said...wouldnt even listen to the idea. Told me to go to a dermatologist who in turn gave him an antibiotic that did nothing for him.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

I just wanted to officially welcome you to the boards! Just eczema...aren't doctors frustrating?! When I was a baby wheat actually CAUSED my eczema, so I don't know why they were so quick to dismiss your idea. It can take a while to really see major improvement on a gluten free diet--in some people it can take months unfortunately.

CarlaB Enthusiast
CarlaB
Posted

Welcome!

How long it takes varies from person to person.

Are you sure you have all the gluten out of your diet? It's quite a challenge to get 100% gluten-free, and it takes most of us a couple months to figure out where all the gluten is. You may not feel better until it's all out of your diet. Gluten hides in many places ... toasters, wooden spoons, body lotions, shampoo, soy sauce, teflon, etc.

Were any of the doctors willing to allergy test your son? There may be other allergies involved.

The One Apprentice
The One
Posted

It definitely takes time to eliminate all the gluten products and finding replacement! but it can be done.

I understand completely why you would want your kids to go gluten free. The eczema practically gives it away, ADD is very common in celiac children, so is failure to thrive and growth problems, tell me about it, I

TCA Contributor
TCA
Posted

Welcome!

My daughter's eczema improved going gluten-free, but didn't go away completely. Her other GI symptom and FTT are no longer an issue. My son is doing great too. We did go through testing, which was inconclusive, so we just tried the diet and the results were miraculous.

I also wanted to let you know that a good friend of mine has a daughter with similar eczema. She was miserable. They ended up going to an allergist who found she was allergic to peanuts, milk and eggs. They eliminated those foods and she's now eczema free! You might want to go to an allergist to make sure there aren't other foods involved.

There is a list in my sig line that might have some inof that would help you get started.

Good luck!

Creative-Soul Newbie
Creative-Soul
Posted

I just wanted to say hello and welcome; I hope you all feel better soon!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.