Stupid, Stupid, Stupid!

[chocolatelover]

Had a (very small) hamburger and a milkshake for lunch today. Have felt like crap ever since then. So now I'm trying to decide if it was the gluten in the bun, the dairy in the milkshake or the fat in the hamburger that has left me with nausea, lightheadedness, dizziness, and an explosive intestine. Perhaps it was all three. I was just fine before I ate it almost 5 hours ago.

Stupid, stupid, stupid. I should know better by now.

[Viola 1]

Had a (very small) hamburger and a milkshake for lunch today. Have felt like crap ever since then. So now I'm trying to decide if it was the gluten in the bun, the dairy in the milkshake or the fat in the hamburger that has left me with nausea, lightheadedness, dizziness, and an explosive intestine. Perhaps it was all three. I was just fine before I ate it almost 5 hours ago.

Stupid, stupid, stupid. I should know better by now.

You had a regular hamburger bun? Or am I misreading your post?

[chocolatelover]

Yep, you read it right. Negative blood work and negative biopsy...still trying to figure out if it's gluten that's getting to me, so I'm eating it right now and documenting my reactions. I guess I know the answer now.

[Viola 1]

Yep, you read it right. Negative blood work and negative biopsy...still trying to figure out if it's gluten that's getting to me, so I'm eating it right now and documenting my reactions. I guess I know the answer now.

Not a fun way to find out

It's hard when the test results don't help. Were you eating lots of gluten before the tests? They would have given you a false negative if you weren't eating enough gluten when they were taken.

Perhaps it's a gluten intollerance instead of Celiac, however the treatment is the same.

[Nantzie]

I had negative blood tests and negative biopsy too. Trying the gluten-free diet is the only completely reliable way to determine if gluten poses a problem for you.

Nancy

[The One]

Try eating foods separately, have a sandwich with no milk or have milk with no gluten, etc. It could be possible to react to both.

[chocolatelover]

I think I am having both gluten and dairy issues...the dairy definitely leaves me feeling gassy and rumbly.

I am pretty sure I didn't have enough gluten in my system to register properly. Decided to do the Enterolab tests, though, which I suspect will show something that the blood work didn't. And it appears that the GI didn't take enough samples from the biopsy to get an accurate reading. I feel like this whole thing has been botched from the beginning! I think the thing to do is go gluten and dairy free and see where that takes me.

Thanks for your input everyone!

[Michi8]

I think I am having both gluten and dairy issues...the dairy definitely leaves me feeling gassy and rumbly.

I am pretty sure I didn't have enough gluten in my system to register properly. Decided to do the Enterolab tests, though, which I suspect will show something that the blood work didn't. And it appears that the GI didn't take enough samples from the biopsy to get an accurate reading. I feel like this whole thing has been botched from the beginning! I think the thing to do is go gluten and dairy free and see where that takes me.

Thanks for your input everyone!

chocolatelover,

I'm having the same experience. Negative blood, negative endo (though the GI found hiatal hernia and gastritis...plus said it's IBS and added the diagnosis of chronic fatigue syndrome?!) Anway, I was off gluten for a month and feeling good, but decided to eat it again before my colonoscopy next month. Don't think it will make much difference for the test though. I will be off gluten again after that. I feel good off of it, and find that I'm not really craving many gluteny foods anyway. Will be going dairy free too (lactose intolerant for sure) which I think will be much harder for me than eliminating gluten.

Michelle

[chocolatelover]

Michelle--first have to tell you I laughed out loud when I saw your mood swing icon

My problem seems to be I can't get one without the other. I KNOW I'm better off with neither, but haven't been very successful at doing it. I think the time has come, though...

Hope everyone has a great weekend!

[Michi8]

Michelle--first have to tell you I laughed out loud when I saw your mood swing icon

My problem seems to be I can't get one without the other. I KNOW I'm better off with neither, but haven't been very successful at doing it. I think the time has come, though...

Hope everyone has a great weekend!

Glad you laughed!

I find it very hard to get rid of dairy...it's in so much food, even in things you would least expect (like soy cheese!)...guess it's very much like gluten in that regard. It's become especially problematic for our family in that my son needs to try going dairy free again, but it's hard to find prepackaged lunch snacks that are both nut free (the school has some very strict, almost impossible, guidelines in their nut ban) and dairy free. We aren't even doing the gluten free thing for him (yet.)

Michelle

[tummyache]

Had a (very small) hamburger and a milkshake for lunch today. Have felt like crap ever since then. So now I'm trying to decide if it was the gluten in the bun, the dairy in the milkshake or the fat in the hamburger that has left me with nausea, lightheadedness, dizziness, and an explosive intestine. Perhaps it was all three. I was just fine before I ate it almost 5 hours ago.

Stupid, stupid, stupid. I should know better by now.

I did that not too long ago and I felt like I had hardened cement in my stomach. I paid for it for 2 days. It tastes soooo good, but feel so bad!

[Rachel--24]

Anway, I was off gluten for a month and feeling good, but decided to eat it again before my colonoscopy next month. Don't think it will make much difference for the test though. I will be off gluten again after that.

Michelle...I am curious as to why you are back on gluten for your colonoscopy???

[Michi8]

Michelle...I am curious as to why you are back on gluten for your colonoscopy???

Because I second guessed myself, and am too chicken to call the dr (and her snarky receptionist) for clarification about whether I need to be eating gluten for this test or not (when the appointments were booked 6 months ago she had originally told me I need to keep eating gluten.) My head tells me "no, I don't need to" but apparently I'm not listening to my own common sense right now. It actually fits quite well with the subject of this thread: stupid, stupid, stupid!

Michelle

[Rachel--24]

Because I second guessed myself, and am too chicken to call the dr (and her snarky receptionist) for clarification about whether I need to be eating gluten for this test or not (when the appointments were booked 6 months ago she had originally told me I need to keep eating gluten.) My head tells me "no, I don't need to" but apparently I'm not listening to my own common sense right now. It actually fits quite well with the subject of this thread: stupid, stupid, stupid!

Michelle

Oh...ok...as long as you're aware that the colonoscopy cannot detect Celiac. Whether or not you eat gluten shouldnt have anything to do with your colonoscopy....all Celiac damage occurs in the small intestine.

[Michi8]

Oh...ok...as long as you're aware that the colonoscopy cannot detect Celiac. Whether or not you eat gluten shouldnt have anything to do with your colonoscopy....all Celiac damage occurs in the small intestine.

Yes, I do realize that...and I appreciate you confirming that info. I wasn't sure, though, if eating wheat or gluten grains may not have some affect on the lower intestines and colon...especially if it's an issue of allergy vs. intolerance, and whether there is any other health issue going on such as colitis or crohn's.

My logic was that, since I was eating wheat/gluten and dairy at the time of my initial consultation (which lead to booking my procedures,) it may make sense to continue so that the dr gets as accurate a picture as possible. If the wait for these darned procedures wasn't soooo long, it could have been over and done with long before I even considered trying the diet out.

Michelle

[chocolatelover]

Michelle, I learned through my colonoscopy that I have lymphocytic colitis, which is a form of microscopic colitis that is often associated with celiac. I don't know how eating or not eating gluten may affect those results, but I thought it was worth mentioning. Once they saw that, they immediately scheduled me for the endoscopy to rule out sprue. Even though I had negative blood work and a negative endoscopic biopsy (though I don't trust that either of those tests were entirely accurate when done on me), I am pursing the gluten sensitivity because of the strong link between the two diseases. If you google lymphocytic colitis and celiac, you'll get a lot of links that explains it.

Also, microscopic colitis is different than Chrone's or ulcerative colitis. So, while celiac mainly affects the small intestine, it is definitely possible that gluten can affect the colon as well. You're wise to get all of the tests done to pursue what is going on with you. Of course, I don't know your symptoms, so I'm not sure what you're having to deal with and how much the gluten will affect you until your tests. When are you scheduled to have them?

Good luck! Keep us posted on what's happening...

CL

[Michi8]

Michelle, I learned through my colonoscopy that I have lymphocytic colitis, which is a form of microscopic colitis that is often associated with celiac. I don't know how eating or not eating gluten may affect those results, but I thought it was worth mentioning. Once they saw that, they immediately scheduled me for the endoscopy to rule out sprue. Even though I had negative blood work and a negative endoscopic biopsy (though I don't trust that either of those tests were entirely accurate when done on me), I am pursing the gluten sensitivity because of the strong link between the two diseases. If you google lymphocytic colitis and celiac, you'll get a lot of links that explains it.

Also, microscopic colitis is different than Chrone's or ulcerative colitis. So, while celiac mainly affects the small intestine, it is definitely possible that gluten can affect the colon as well. You're wise to get all of the tests done to pursue what is going on with you. Of course, I don't know your symptoms, so I'm not sure what you're having to deal with and how much the gluten will affect you until your tests. When are you scheduled to have them?

Good luck! Keep us posted on what's happening...

CL

I had a gastroscopy in November, and just got the results in January. From what I understand the dr didn't take enough samples from my duodenum, so I don't know if the negative result is accurate or not. She did find gastritis and a hiatal hernia though (and diagnosed chronic fatigue?!!...don't know if she's qualified to diagnose that one!...guess it's better than being told it's hypochondia! ) I had negative blood work. My colonoscopy is scheduled for March 8th, so we'll see what the results are. I think I'm not celiac, but seem to do better without gluten, and expect I'll do much better without dairy products.

I have a long list of symptoms that lead me to testing: IBS for 20 years, lactose intolerance, skin issues (eczema & possibly psoriasis), multiple allergies, feeling cold all the time, hair loss, occassional numbness in extremities, mood swings, exhaustion, memory loss, lack of concentration, etc. My family has many gastro symptoms as well, but none have gone for formal diagnosis. One brother does not eat whole grains, though, because his body doesn't process them well.

Michelle