Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy Tomorrow

num1habsfan

By num1habsfan
in Related Issues & Disorders

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted
  • Author
oh man you must feel like barfing with all that gluten i went to the doctor today and my celiac disease showed up after all those years of being gluten-free im still having stomach prombles ahhhhh but ive been cheating here and there but like you i felt sick to my stomach after a day or so i was fine but i dont get as to why all thoses years of being gluten-free it still shows up in a biopy

Yeah puking is what i feel like doing. And the toilet loves me even more. I've barely made it to the bathroom 8 times today, and I can feel it coming on yet again! At least it means I can just fill more evil food in me :lol: (gotta laugh about it, right?)

Only downside is my dad being cruel today, but calling me a wimp, etc. blah.

~ lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Yenni Enthusiast
Yenni
Posted

Thinking of you. Eat some Pizza for me too. ;)

Nantzie Collaborator
Nantzie
Posted
Yeah puking is what i feel like doing. And the toilet loves me even more. I've barely made it to the bathroom 8 times today, and I can feel it coming on yet again! At least it means I can just fill more evil food in me :lol: (gotta laugh about it, right?)

Only downside is my dad being cruel today, but calling me a wimp, etc. blah.

~ lisa ~

Sigh... For some reason the saying "Be nice to your children because they're the ones who will choose your nursing home" just springs to my mind right now. Hm.. Wonder why...? ;)

Nancy

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Sigh... For some reason the saying "Be nice to your children because they're the ones who will choose your nursing home" just springs to my mind right now. Hm.. Wonder why...? ;)

Nancy

HA yeah. Well dad not so bad, but mom...EVERYONE she has talked to tonight, she's told them that not enough fibre and water is the cause of my pains in my large intestine...when what he said was try eating higher fibre and drinking more water, and that my pains are definitely in my colon. a BIG difference between the truth and what she's saying, dont you think?

~ lisa ~

ravenwoodglass Mentor
ravenwoodglass
Posted
And the worst part is the eating gluten, of course. Had to start that yesterday. SO i treated myself to some pizza and breadsticks, that'll be my lunch again today. And I'm still determined to eat a sub and some donuts before this weekend is done. I already feel like puking just from the pains.

Theres your story. Keep replying if you want, I still need all your help to get me thru the next 4 days.

~ lisa ~

Hi Lisa, I am so sorry you are having to go through this. Why is the doctor making you eat gluten after the endo but before the biopsy reports are in? If it is making you feel so ill have you contacted them to let them know? You seem to suffering so much I hope it gets better soon.

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Hi Lisa, I am so sorry you are having to go through this. Why is the doctor making you eat gluten after the endo but before the biopsy reports are in? If it is making you feel so ill have you contacted them to let them know? You seem to suffering so much I hope it gets better soon.

Thanks. You must have not read the part where I explained that eating the gluten is for another doctor, and for the endoscopy/colonoscopy I have on Tuesday ;)

Speaking of gluten affects...I couldnt fall asleep until about 5:30 this morning (because of the pain) and then when i DID get to sleep I had a nasty nightmare :blink: (i'm assuming i can blame gluten for that too?)

I am soooo tired *goes to make some strong coffee :lol: *

~ lisa ~

ravenwoodglass Mentor
ravenwoodglass
Posted
Thanks. You must have not read the part where I explained that eating the gluten is for another doctor, and for the endoscopy/colonoscopy I have on Tuesday ;)

Speaking of gluten affects...I couldnt fall asleep until about 5:30 this morning (because of the pain) and then when i DID get to sleep I had a nasty nightmare :blink: (i'm assuming i can blame gluten for that too?)

I am soooo tired *goes to make some strong coffee :lol: *

~ lisa ~

I did miss that. I feel so bad for you. Since it is making you feel so awful I hope the other endo gives a clear result. I know this can't be easy for you at all. It is not surprizing that you had a nightmare you are going through a lot right now. (((((((hugs))))))

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


num1habsfan Rising Star
num1habsfan
Posted
  • Author
I did miss that. I feel so bad for you. Since it is making you feel so awful I hope the other endo gives a clear result. I know this can't be easy for you at all. It is not surprizing that you had a nightmare you are going through a lot right now. (((((((hugs))))))

Thanks again *hugs you back*. It is very very very hard to deal with this. Surprisingly, I havent had a panic attack or anything yet. I've been on the verge tho thats for sure. I'm gonna try to get an internet connection when I'm in Calgary, so I can keep posting. I'll probably just start a new post on Monday tho. I'm so glad you guys keep replying to this one, each reply makes me a little more calmer about things.

<3

~ lisa ~

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Hi, I hope you are feeling better. What a tough time you've been having!

I just wanted to suggest that maybe brown rice is not the huge source of fiber that most people think--I believe there is much more fiber in fruit and vegetables. I hate to say it, but if you haven't been eating a lot of those (like, WAY more of them than the brown rice), then your idiot doctor might actually be right.

Can you maybe eat a little less of the brown rice and a little more of the rabbit food when you're done with all your testing?

Also, if you are having such severe intestinal problems, you aren't really drinking coffee, are you? That would be one of the irritating things you could put in your stomach (besides for gluten, of course). Caffeine is also linked to a whole host of neuro problems, which is not what you need right now!

babygirl1234 Rookie
babygirl1234
Posted

i know the feeling my celiac disease is acting up on me to the point that they have me on a sedative for the stomach spams and a pain pill and i feel like crying at times because the pain get that bad after i eat anything they are doing a breathing test for overgrown battira in my bowl my doctor said that sometimes people with celiac disease have overgrowm bactira is that true?

num1habsfan Rising Star
num1habsfan
Posted
  • Author

I havent been drinking too much coffee, I've been filling up on orange juice. I just bought a 2 L jug of it yesterday, and its already over half gone. Since i've had such nasty diarrhea, I've been drinking a lot of fluids (or trying to).

PS: I forgot what Kraft dinner tasted like :lol:

~ lisa ~

  • 4 weeks later...
holdthegluten Rising Star
holdthegluten
Posted

The procedure truly is a breeze... I Was really nervous and requested to be put out under propofol. It was beautiful. No nausea afterward and i woke up and went home in an hour. Dont worry.........it's unnecessary......youll will be fine!

Sesheta Rookie
Sesheta
Posted
Hope all goes well tomorrow. Update us when you can.

I have gone through this twice and I'm terrified of doctor's. I can say the worst thing about this is the IV. Trust me the only thing I remember is them putting a biteguard in my mouth and then the next thing I know I'm back in my room with fiance. I know you'll be alright and I will keep you in my prayers. =^.^=

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin and low vitamin D. I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,341
    • Most Online (within 30 mins)
      7,748
    Eppie
    Newest Member
    Eppie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin and low vitamin D. I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.